Moya moya

Posted by @mamabear7116, Thu, Apr 5 3:48pm

My 20 month had a stroke and an aneurysm leak, and we found out he has moya moya. He had a procedure to help but it takes 3 to 6 months for it to work. Right now he has seizures and mood problems and most of all pain in his head.

Colleen Young, Connect Director
@colleenyoung

Posts: 5944 Joined: Jul 23, 2014

Posted by Colleen Young, Connect Director @colleenyoung, Thu, Apr 5, 2018 4:32pm

Hi @mamabear7116 and welcome to Connect.
I'm tagging fellow members @sallen52 @micayla09 @rdrreed on this discussion in the hopes that they will join the conversation and share their experiences of moyamoya with you.

I can't imagine what this journey has been like for you. As a parent, we always wish we could spare our children all pain and suffering. Can you tell me more about the procedure your son had? How do you manage his mood problems, seizures and the pain? It must be such a challenge for him to understand what is going on.

Liked by Teresa, Volunteer Mentor

Yolanda Rivera
@yolandar

Posts: 1 Joined: May 31, 2018

Posted by Yolanda Rivera @yolandar, Fri, Aug 17, 2018 8:20am

I'm so sorry I'm 49 and I got moyamoya 2 give him alot of love because moyamoya cause alot of headache Good luck and God bless!!

Liked by Teresa, Volunteer Mentor

Teresa, Volunteer Mentor
@hopeful33250

Posts: 5874 Joined: Mar 28, 2016

Posted by Teresa, Volunteer Mentor @hopeful33250, Fri, Aug 17, 2018 8:29am

Hello @yolandar

Welcome to Mayo Connect. I am sorry to hear of your diagnosis of Moyamoya, but I appreciate you adding to this discussion.

If you are comfortable sharing more about yourself: How long ago were your diagnosed? What type of symptoms do you have? What type of treatments have you had?

I look forward to getting to know you better and wish you well!

Teresa

Liked by Colleen Young, Connect Director

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Moya moya