My husband has mobility issues

Posted by cmdw2600 @cmdw2600, Feb 21, 2023

My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He is still driving and playing golf-although poorly. He does go to the gym, but he is weak and feels that he cannot improve in this area. He is of a healthy weight, maybe a bit too thin, and we have a healthy diet. He currently takes Sinemet, and a drug that is not as well known called Gocoveri. This drug seems to control what he referred to as “bobble head”. His hand tremors are pretty well controlled with the Sinemet.

My question is this: does anyone have tips for getting out of bed, getting off the sofa, getting out of the car? I’d like him to get some kind of physical therapy for these situations but am not certain how to proceed. He does not use a walker, cane or Nordic sticks.

Anything that has worked for anyone out there?

Thank you! Cindy

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

I bought, on Amazon, a support brace/railing that fits under the mattress. He can use this to help get out of bed. The width is 18”.

There are great lift recliners at Lazy Boy. Very fashionable.

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I am all for helping him or practicing it. I am not sure how receptive he will be. My son was a premie. As he aged he could not articulate at all. I worked with him for 9 years. He talks normally and he was able to get in front of others and speak. They called it "Piggy exercises". The school system tried to say he was low functioning. I knew different. Yes, he had trouble communicating. I was not going to let them lable my child regardless of what they thought. He and I will always remember these times with love and understanding " Don't give up".💞

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@sillyblone

My spouse is going for speech therapy next week. If I am able to observe I will share. He also has PT as well. Hopefully all goes well for him.

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Hello @sillyblone,

I'm pleased to hear that your husband will begin speech therapy next week. That can be tremendously helpful. I look forward to hearing about his experience. If you request to be in the room, that should be no problem. It is important for you to observe the process so that you can follow up with the speech exercises at home.

One of the most helpful exercises that I still practice is reading out loud, which includes pausing at punctuation and breathing at appropriate times.

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@cmdw2600

Yes, my husband does have physical manifestations of PD as well as the soft voice. He has been doing some PT but does not feel it has helped yet. The voice issue is very frustrating for both of us. I am 70 and my hearing is not what it used to be. I am constantly saying “what!?” which is annoying to him as he has to repeat almost everything. I will suggest therapy for this also.
Thank you! Cindy

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My spouse is going for speech therapy next week. If I am able to observe I will share. He also has PT as well. Hopefully all goes well for him.

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@1died2x

I know the frustrations. I can't open a water bottle so my wife does. I can't do lots of things. I try to concentrate on what I CAN do and quit looking at who I was and concentrate on who I am. I am 78 years old and I can walk so I do. I watch my diet. I study things that interest me and I walk again. Getting old is not fun. Getting old with PD is less fun. NOT DEAD YET. Be greatful to be alive. Its tough being old with PD - do you have another choice? Watch the movies you never had a chance to watch when busy. Do it while walking on a treadmill. I know I am mean and unsympathetic. Just enjoy what you have because you will still have it happy or sad. Be happy.

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Thank you for your positive post,much appreciated. I am 76 years old & have a relationship with Jesus Christ and this is what helps to keep me fighting & NOT giving up.
I go for walks & do exercises that I found on youtube. It is very important to stay positive
& enjoy the time that we have left on this earth knowing that someday it all ends & we will be in a better place lf we have a relationship with Jesus. Take care my friend & keep on keeping on. God Bless You!!

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@barcon47

Not sure where you live but I live in Australia and I have a Dawson bed stick to help me getting in and out of bed.

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Thanks for this information. I think the Dawson bed stick might solve our problem. I have been straining my back muscles, as the caregiver, pulling my husband out of bed. I’m an Australian living in Maine.

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@katrii

Hi. Getting up is indeed a challenge! We found, on Amazon a hand-held device where if I stand sideways, feet apart I can be easily balanced and strongly, securely help my husband up. We have one in 2 rooms. We also bought a slide-under the mattress bed rail for getting out of bed. The chair thing would help with the car, also.

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I just bought the bed rail for my husband. So far, so good. It helps him sit up and lean back more easily. He hurt his back in a fall a couple of months ago, so that just adds to the fun. 🙄

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I will tell how I helped my brother and my spouse. Both have Parkinsons. My spouse sits up and dangles his legs. He then puts one hand on each leg and pushes up. It worked. When my brother had open heart surgery after being in early stages of Parkinsons , had a large bed. I stayed with him for 4 weeks. I made his bed across the bottom of the bed. He of course was using his heart pillow. He was able to get up with a maneuver of bring his legs over and then sit up. I was so proud of him. I was also able to get him to strengthen his legs with the movement of doing a marching step and walk beside me. He was weak at first. He was amazing at going everyday. The nurses they sent out took his vitals and did nothing. The OT had no info to share either. I asked to speak to a Case Mgr. before he would be discharged. She said she had nothing to offer. Really, he was in CCU for several days. When he went to PCU. He had on PT a few feet from his room. I walked with him and he was to weak to be released. I also asked for a Nutitionist . She was the only person who acted like she knew her job. I asked her to please talk with the Case Mgr.if possible. We went to my brother's home. I had already threw out everything and the fridge and filled it with heart healthy food. I taught him how to make meals. He was excited when he could ride in the back seat . I bought him some clothes as he lost so much weight. He was a great patient for his older sister. Finally the nurse called she sent the RN to a PO box number. I thought how dumb can you be. I had to get my brothers job to realize he had Parkinsons and needed therapy. I even had to check on his short term and long term disability from not his office but.. another state. I also did FMLA. I made sure everything was taken to the thoracic surgeon and the cardiologist. I could not believe when there was a call about this and they told us that he needed this done. I really enjoyed telling them I have already did what they were asking. My brother was flabbergasted that I could do this with a calm voice. We had tons of fun while he was cooking . He asked why I did all this..my comment was I love u. My spouse had not been given his dx. of Parkinsons yet. He said I want you to take care of me when I am sick. My point finally is never underestimate what your loved one deserves. I love both of them so much . My brother is in Stage 5/ hospice. He had DBS. It did not help him like they promised. He lives in a different state.
My spouse finally was able to see a Movement Disorder Neurologist. I am praying he gets the care he deserves. If not I will talk with someone and make sure he gets everything he is promised. Pray for us! Thank you everyone. 🫂 🤗

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Great that he can still play golf and drive. I have a video of my husband when he couldnt get out of car and was layed back in the seat. Neurologist started him on carbidopa levadopa. Not a fix all but in hindsight it must have helped. My husband no longer drives and can barely walk with a walker. Unfortunately, he will probably be wheelchair bound in the next year. He is so weak with his mobility.

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A rail , helps getting out of bed!
There is a rotating car cushion ! That is helpful!
A lift up lounge chair ! Helpful!!

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