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smoothiesuzy
@smoothiesuzy

Posts: 1
Joined: Oct 08, 2018

Middle of the night "episodes"

Posted by @smoothiesuzy, Mon, Oct 8 11:52am

I'm new here and looking for some guidance. I'm having some very strange and unsettling episodes in the middle of the night, during sleep, that feel like a cross between a hypoglycemic episode and tremors/vibrations, but my body isn't visibly shaking, i'm shaking on the inside? They wake me up by what I assume is adrenaline, but my heart isn't racing, just a light jolt that arouses me. These began last April after a rather taxing ski mountaineering excursion where I suffered sun poisoning with facial swelling. The onset of these episodes where either coincidental, or a result…I'm not sure. Because of my hypoglycemic history, I immediately check my sugars when this wakes me as it feels quite similar to a low, but I'm usually in the 70's and fine. I keep a very, very strict diet to avoid lows and have learned to manage my RH quite well, with remaining active. However, in April I made the decision to cut down on simple carbs/simple sugars to further impact my hypoglycemia even more positively. What I've noticed is, these episodes seem to coincide with any ingestion of simple carbs/sugars since April. I'm not getting any reactive hypos during the day, but during the night, around 12-2am, I'll have these episodes, but normal sugar readings. I wake up, walk a minute, it passes, I go back to sleep. These repeat until I finally just get up for the morning. So, somehow the ingestion of any small, minute (and I mean MINUTE) amounts of simple carbs will lead to an episodic night. My doc ran all his tests and everything came back normal. I eat an extremely healthy diet, so much so that I don't think I can make it any better (no caffeine, no sugars, no gluten, no soy, no alcohol, but still a rich culinary life despite 🙂 I don't feel it's a sleep issue.
I'm Seronegative Celiac, diagnosed reactive hypoglycemic 30 yrs ago, POTS, & migraines, have treated EBV off and on for years, constant urinary burning (all tests come back normal), migraines, and an increasing intolerance to simple carbs/sugars. Recent test results show thyroid is normal, adrenals are normal, but low normal in the morning, A1C is in 4's. I don't take any prescriptions, but do take some supplements. Any ideas, thoughts? I cannot pin this down!

REPLY

Hello @smoothiesuzy, and welcome to Mayo Connect.

You do present with some very interesting symptoms. Is the doctor who ran the lab work an endocrinologist? If not, a second opinion from an endocrinologist might be wise.

Since these episodes occur only at night has it been suggested to you to see a sleep specialist and have an overnight sleep study done? This might be helpful in diagnosing these sleep related problems. I would encourage you to look through the discussions about sleep disorders. Here is a link to several discussions about sleep problem, https://connect.mayoclinic.org/group/sleep-health/. Perhaps, as you read through some of these, you can find someone with a similar problem.

I would also like to invite @dawn_giacabazi and @johnbishop into this conversation. They might be able to offer some other ideas.

You mentioned various diagnoses that you have including EBV. I'm not sure what that stands for. Can you explain that?

Hi @smoothiesuzy, I would like to add my welcome to Connect along with @hopeful33250 and others. Your description certainly sounds like low blood sugar even though it's not the case. Do you think it could be stress related? Sounds like you already have all the bases covered mentioned in this article.

Do You Bolt Awake at 3 a.m.? Low Blood Sugar Symptoms May Be to Blame
https://universityhealthnews.com/daily/diabetes/do-you-bolt-awake-at-3-a-m-low-blood-sugar-symptoms-may-be-to-blame/

I have no medical training or background but I do agree with Teresa that it may be a good idea to check with a sleep specialist just to rule out sleep apnea. I'm hoping others may have some better suggestions.

John

@johnbishop

Hi @smoothiesuzy, I would like to add my welcome to Connect along with @hopeful33250 and others. Your description certainly sounds like low blood sugar even though it's not the case. Do you think it could be stress related? Sounds like you already have all the bases covered mentioned in this article.

Do You Bolt Awake at 3 a.m.? Low Blood Sugar Symptoms May Be to Blame
https://universityhealthnews.com/daily/diabetes/do-you-bolt-awake-at-3-a-m-low-blood-sugar-symptoms-may-be-to-blame/

I have no medical training or background but I do agree with Teresa that it may be a good idea to check with a sleep specialist just to rule out sleep apnea. I'm hoping others may have some better suggestions.

John

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@johnbishop Great article, John!

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