Middle of the night "episodes"
I'm new here and looking for some guidance. I'm having some very strange and unsettling episodes in the middle of the night, during sleep, that feel like a cross between a hypoglycemic episode and tremors/vibrations, but my body isn't visibly shaking, i'm shaking on the inside? They wake me up by what I assume is adrenaline, but my heart isn't racing, just a light jolt that arouses me. These began last April after a rather taxing ski mountaineering excursion where I suffered sun poisoning with facial swelling. The onset of these episodes where either coincidental, or a result…I'm not sure. Because of my hypoglycemic history, I immediately check my sugars when this wakes me as it feels quite similar to a low, but I'm usually in the 70's and fine. I keep a very, very strict diet to avoid lows and have learned to manage my RH quite well, with remaining active. However, in April I made the decision to cut down on simple carbs/simple sugars to further impact my hypoglycemia even more positively. What I've noticed is, these episodes seem to coincide with any ingestion of simple carbs/sugars since April. I'm not getting any reactive hypos during the day, but during the night, around 12-2am, I'll have these episodes, but normal sugar readings. I wake up, walk a minute, it passes, I go back to sleep. These repeat until I finally just get up for the morning. So, somehow the ingestion of any small, minute (and I mean MINUTE) amounts of simple carbs will lead to an episodic night. My doc ran all his tests and everything came back normal. I eat an extremely healthy diet, so much so that I don't think I can make it any better (no caffeine, no sugars, no gluten, no soy, no alcohol, but still a rich culinary life despite 🙂 I don't feel it's a sleep issue.
I'm Seronegative Celiac, diagnosed reactive hypoglycemic 30 yrs ago, POTS, & migraines, have treated EBV off and on for years, constant urinary burning (all tests come back normal), migraines, and an increasing intolerance to simple carbs/sugars. Recent test results show thyroid is normal, adrenals are normal, but low normal in the morning, A1C is in 4's. I don't take any prescriptions, but do take some supplements. Any ideas, thoughts? I cannot pin this down!