Does anyone else have MGUS?

I have low blood sugar (hypoglycemia), but have had it for at least 40 years -- unrelated to MGUS, I'm sure. My meals are similar to those for diabetics. If I eat sweets, I need to accompany them with protein -- as a dessert or with a snack like nuts.

I have experienced the same issues for the last 4-5 months.I was dx with MGUS in October 2021 following back surgery. I am lately experiencing weakness, shakiness that comes on quickly.I thought it was my blood sugar as I’m pre-diabetic but my primary tested my A 1C and it was improving since my last one. I am also dropping things, plate, coffee cup, even a half gal milk. I have really bad leg cramps at nite (RSL) that we are trying to get under control and was thinking my lack of sleep might be causing my weakness. I’m even using a cane on walks “just in case”. I hate not knowing what’s going on.

I have MGUS too and have a question about your dizziness. Is it a feeling of the room spinning or a feeling like you're drunk? I've had dizziness, but the feeling I have when I stand or sit is like I'm drunk. It has slowly worsened over the past year, and I have seen many different specialists trying to figure it out. I can't get into my ENT until the end of August. I was diagnosed with MGUS in July 2022, and my bloodwork is stable. I've had vertigo (dizziness), but this is different and goes away when I lie down. I too have lost my stamina, so recently purchased a stationary bike to try to get some exercise. I sometimes stagger, so don't feel safe going outside to walk.

You are so right I have seen a lot of doctors very few listen to what I'm saying if any. I too have very bad fatigue and neuropathy with MGUS. If you look at it closely you can only determine that MGUS is the cause and they continue to say it doesn't. I would say a hundred patients out rule anything a doctor has to say.

Welcome to Connect, @ravenh. I’m happy you found this great support group with members who have MGUS and joined in the conversation! There are veteran members like @pmm, @cheft @leslie2121 @susanh824 @cherylmcg and others who were diagnosed with MGUS years ago.
Newer members to the MGUS club are @sissypuss @robinrossrn who learned more recently that they have this condition.

I hope you take the time to look through all the conversations. There are more discussions on MGUS so feel free to type in MGUS on the search box in Blood Cancers and Disorders. You’ll see quite a few different topics related to the diagnosis.
I’m posting a couple of good articles about Monoclonal Gammopathy of Undetermined Significance (MGUS) for you. Searching the internet can often lead to stress and anxiety. These are trusted sites where I think you’ll find some useful information.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
https://www.healthline.com/health/how-serious-is-mgus
Have you met with a hematologist?

I have it too, my white blood cell count was low so they checked it and said i have that. I used to walk several miles a day but was exhausted so i did not. I forced myself to start again. I am doing 3 miles at least 3 times a week. Much better now. but get some confusion at times, and also can become quite dizzy. UGH.

Yes, you are correct. I did get labs from my recent visit to the Mayo. I will be posting an update soon, just been consumed with work.

When I found out just 2 months ago, I felt the same as you did but I soon realized...I was depressed! I wasn't sleeping well from anxiety and I really wasn't eating all that much. I too am a very healthy and trim gal. I also have no other symptoms or blood readings out of line. I realized that I just needed to STOP looking for things that just aren't there. My entire attitude changed. I decided to be grateful, happy, and choose to be positive. I survived stage III colon cancer 20 years ago because I DECIDED to remain positive. Believe in your good health, it is a gift
Not everyone has THAT. It will protect you so keep eating well and exercising ❤️ You are already winning.

Thank you for sharing. I think I saw in another comment that you take Qunol turmeric enhanced with black pepper and I have been taking this same one on and off for a year but only 2 capsules a day so I will try a higher dose. Please keep us posted how and if the turmeric affects your lab results. I am thankful for this resource to be able to connect with those who may be walking in my shoes and I lift you all up in prayer that together we can find some answers.

Greetings! I am losing a lot of my energy as well but I attribute this to a combination of age and neuropathy…which limits my enthusiasm for walking.
My hem/onc doc says that I should not be having symptoms from MGUS so I’m assuming that my primary physiological nemesis is age (here insert expletive). I do have type 2 diabetes which is well controlled.
I try to eat healthy and do an exercise class for seniors and water aerobics. I am no longer taking those lovely, long walks, however. I miss that.
I think part of the challenge of dealing with chronic illness and an aging body is to find ways to stay engaged in life, and not throw up one’s hands and retreat to the couch. There are many, many people who complain about fatigue and neuropathy who also have MGUS. I believe that it effects each of us differently and you know your body better than any physician ever will. Make sure your doctor really hears you and what you are experiencing. Your doctor should rule out anything outside of the MG US that might be causing your fatigue. Sadly, I think that actually being heard by physicians is our biggest battle.
Let us know how you are doing.
Patty