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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Mar 17 1:03pm | Replies (726)

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@loribmt

Hi Jackie, MGUS is a watchful waiting condition so there aren’t medications specifically. I’m sorry, I had phrased that poorly in my last reply. Some patients who have MGUS might have symptoms associated with anemia, osteoporosis, neuropathy, etc., which might require some treatment such as your neuropathy. You’re in great hands down there in Texas with MD Anderson. ☺️

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Replies to "Hi Jackie, MGUS is a watchful waiting condition so there aren’t medications specifically. I’m sorry, I..."

@loribmt @gingerw @pmm
I have been going to MDA for some years for my bone density and the last time I visited my PA she quizzed me about calcium D3 I was taking. She asked me about my consumption of dairy products. My bloodwork showed high calcium levels ( I now know that was probably a beginning sign of MGUS). I was osteopenia at that time. She advised me to stop taking Calcium. I now have hypercalcemia. The full work up at MDA last Feb 2023 referred to it as osteoporosis on my diagnosis. My numbness/tingling in my ankles/feet has been for some time. I am able to walk every day 2-3 miles with no problem. But the numbness/tingling continues. Other than all that, I'm feeling great !!