← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Mar 17 1:03pm | Replies (726)

Comment receiving replies
@redgiles

My MGUS was found through routine blood work (August 2022) Quest Lab suggested 2 more tests be done. Those produced the MGUS IgG results.
Prior to that I had high calcium (now diagnosed with hypercalcemia) and I have had numbness, tingling from my ankles down to my feet for some time prior to MGUS diagnosis. Very annoying. Otherwise, doing well, walk 2-3 miles every morning with neighbor.
@gingerw has been very helpful with her comments.

Jump to this post


Replies to "My MGUS was found through routine blood work (August 2022) Quest Lab suggested 2 more tests..."

Good morning, @redgiles. I love to hear that you’re walking 2-3 miles every morning! That’s such a wonderful way to get the day started, isn’t it? It really helps to keep our lives in perspective and to encourage positive thoughts! I’m a daily walker too and excited that we’re finally having some glorious weather where I live. Spring has erupted in a showy fashion…so many flowering trees, lush bright greens and all the spring flowers are in bloom. Birds singing everywhere! Love it! It seemed like winter would never end.

In spite of your diagnosis and neuropathy, it sounds as though you’re doing really well. @gingerw has walked your similar medical path and is an amazingly strong, resilient and inspirational friend. So it’s no surprise that she’s been very helpful for you. Most of us in Connect have gone through some challenges and medical adventures so I’m happy you’ve found your way to us.
You’ve probably chatted about this before, but are you on any medications for your MGUS? What’s the treatment for the hypercalcemia?

I so admire your commitment to walking. I need to do more. I find it so uncomfortable to walk with my neuropathy that I avoid it. I’ve gotten wobbly and have lots of foot pain.
I did walk all over the river towns of Germany touring on a recent river cruise so my avoidance is selective, it seems.
So, you have inspired me. Thank you!
Patty

@redgiles I so envy your daily walking! I was doing that, also, and have become very acquainted with the residential streets in my little town. But, I lose energy quickly now, and need to remember that anytime I am out, there is that same distance to get home! Using walking poles help me a lot to keep my balance, something that @pmm may find helpful; I use a cane almost all the time otherwise.

While there are not specific medicstions for MGUS, watching and dealing with some related symptoms can be useful. Watching your labs tests, eating healthy, getting enough rest, remaining as stress-free as you can, seem to help. Gosh, sounds like how we handle so many other conditions, doesn't it!? I tried low-dose Gabapentin for my neuropathy, but the therapeutic dose was way above what my ailing kidneys could handle, so I stopped it.

Monitoring MGUS was short-lived for me, as I rapidly moved to Smoldering myeloma, then onto active myeloma within 2 years of MGUS diagnosis. I blame it on being an overachiever! No one else I know morphed that fast.

So glad to hear you have a neighbor to walk with!
Ginger