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I was recently diagnosed with MGRS and am going to start treatment locally in South Dakota. I would be interested to hear about how treatment is effecting you.
Replies to "I was recently diagnosed with MGRS and am going to start treatment locally in South Dakota...."
Greetings! I spent a good deal if my life in Spearfish. Where are you going for treatment?
Patty
@msipma Let me also add my welcome to Mayo clinic Connect!
MGRS is not a common condition to have, but it is manageable. If you read my reply above to @f019521, there is some practical information about living with compromised kidneys. Everyone is different, and you'll want to get as much solid information from your medical team as you can. If you have existing co-health issues, everything, and all your specialists, will need to be on the same level of communication with you and each other! That is critical.
I found this article from Tufts University. The top part gives some additional information for you on this MGRS.
https://www.tuftsmedicalcenter.org/patient-care-services/departments-and-services/cancer-center/clinical-care-services/myeloma-and-amyloid/mgrs
Ginger
I was diagnosed last fall, I had done 4 months of chemo and go next week to do stem cell collection. I've pretty well so far
Welcome @msipma. I'm tagging @f019521 and @gingerw to make sure that they see your post.
What treatment will you get starting for monoclonal gammopathy of renal significance (MGRS)?