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sonogirl
@sonogirl

Posts: 1
Joined: Oct 18, 2016

Metabolism/ Hormones

Posted by @sonogirl, Oct 18, 2016

My daughter is 31 years old and had her thyroid removed for multicystic goiters 10 years ago. She is currently on Synthroid. She has a concerning weight gain (50 pounds), hot all the time, and fatigue. At the end of the day she feels like she just can’t go another minute. She has dieted and exercises but unable to get control of these health concerns. She is a registered nurse so is educated in health care but it seems there is nothing to be done. She also has had psoriasis since childhood that are a constant source of uncomfort. I am not a nurse but do have education in healthcare. I feel like the bulk of her problems stem from her thyroid. The doctors do blood test on her and they come back normal. other than the psoriasis and ear/throat infections as a child she was very healthy prior to the thyroid disease. Any input or suggestions on treatment/diagnosis would be most appreciated. I am really worried about the well being of my daughter.

Liked by taterjoy

REPLY

Welcome @sonogirl. I can understand your concern for your daughter. I am tagging fellow Connect members who have or are taking Synthroid, and manage thryoid issues. I hope you can learn something from their experiences. Please meet @popolopo @cahnny @taterjoy @michellecrcrn @katemn @lynnkay1956 and @akogut

You might also be interested in this discussion started by @coloradoroses called Lingual thyroid http://mayocl.in/2e83Yb3
Is your daughter seen by an endocrinologist?

Thanks for the tag. – as a fellow thyroid sufferer, I will say the most important test is antibodies. That’s the auto immune factor. Be sure your daughter gets tested for thyroglobulin and peroxidase. Vitamin levels such as vitamin D and iron. Ferritin and selenium. I also suggest that she cut out inflammatory foods such as dairy and gluten. It’s an elimination diet and she must be strict with it. After a few months she can slowly introduce one at a time and she will be able to see also if certain foods are causing her issues. I’m in the process myself of doing allergy testing and looking to see why levothyroxine is bothering me now after 20 years of being on it. I found lennett laboratories manufactures it now and acquired Levo roughly a year and half ago. / so could be ingredient formula change. Hope your daughter feels better / I felt the same and just got dxd with Hashimotos last December. I’ve been on AIP diet and noticed a huge difference but something still us bothering me and only thing it could be is Levo. It’s a very hard disease to live with and each of our cases is different, but I do know the thyroid controls the whole body and each cell thrives on t3. When we take t4 pill our liver converts it to t3. Have a full thyroid test done and tsh doesn’t mean squat if you have Hashimotos.

@michellecrcrn

Thanks for the tag. – as a fellow thyroid sufferer, I will say the most important test is antibodies. That’s the auto immune factor. Be sure your daughter gets tested for thyroglobulin and peroxidase. Vitamin levels such as vitamin D and iron. Ferritin and selenium. I also suggest that she cut out inflammatory foods such as dairy and gluten. It’s an elimination diet and she must be strict with it. After a few months she can slowly introduce one at a time and she will be able to see also if certain foods are causing her issues. I’m in the process myself of doing allergy testing and looking to see why levothyroxine is bothering me now after 20 years of being on it. I found lennett laboratories manufactures it now and acquired Levo roughly a year and half ago. / so could be ingredient formula change. Hope your daughter feels better / I felt the same and just got dxd with Hashimotos last December. I’ve been on AIP diet and noticed a huge difference but something still us bothering me and only thing it could be is Levo. It’s a very hard disease to live with and each of our cases is different, but I do know the thyroid controls the whole body and each cell thrives on t3. When we take t4 pill our liver converts it to t3. Have a full thyroid test done and tsh doesn’t mean squat if you have Hashimotos.

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Thanks for responding to the tag, Michelle. So good to hear from someone who has been there!

Liked by Michellecrcrn

I’ve taken thyroid medication for almost 25 years. My hypothyroidism symptoms have been on-going for most of those years even with adjustment of synthroid as my numbers changed. However, several years ago I read that taking name-brand synthroid might be beneficial opposed to generic. I asked my doctor to specify only name-brand and “no generic” on my prescriptions. Since that time my symptoms have decreased and feel so much better without all the ups and downs I use to have. Insurance companies encourage people to go back to generic to save money, but the difference in how much better I feel is worth every extra dime I pay! Generic might be fine for some people, and we are told there is no difference, but for me….I will never go back to generic.

Welcome Sonogirl, I responded to Cherriann below .. but now just saw your post. If you read the below you will see I did not for years bother to see a proper specialist .. if your daughter is not seeing the BEST Endocrinologist in your city. As I noted .. even though my tests show ” normal” .. I STILL have symptoms .. he regulates me better by adding/subtracting T3. But it takes a specialist to be able to be able to work with T3 I think. Your daughter is lucky to have a wonderful concerned Mom like you!
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Hello Cherriann, I absolutely agree with you .. having taken Synthroid for nearly 30 years! I have fought numerous battles to maintain taking the Synthroid brand .. and NO generics! Reason .. we are told that generics are EXACTLY the same as name brands .. but hooey .. there are FREQUENTLY slight variations .. AND our thyroids are SO sensitive even a SLIGHT variation can reek havoc on our bodies! Frankly as I have aged .. dealt with a bout of a serious lung disease .. taking 4-5 antibiotics for thirty months (so who knows how much that threw off my body) .. I began to lose my THICK hair by the hand fulls! So for the first time ever I decided to see the best Endocrinologist in the city .. he now has me taking T3 in addition to Synthroid. BUT what I have learned is our thyroid is SOOO touchy .. we can have symptoms .. such as hair loss if we are taking TOO much OR .. TOO LITTLE!! All while our thyroid tests show “normal”!! I couldn’t believe it!!

That is just how complex that little gland is! So it has been a frustrating journey for me. Balancing too little .. too much .. dealing with feeling “bald” after a lifetime of a HUGE head of hair .. but what is .. is! Could be worse! So those of you taking medication .. CONTINUE to insist on NOT getting the generic .. it is worth it!

Hello. I agree that despite levothyroxine treatment for hashimotos Thyroiditis and hypothyroidism, symptoms can persist. I also have weird hot flashes and my dose needs altering at least 3 times per hear. That said, your daughters weight gain is concerning and I wondered if she has been tested for Polycystic Ovarian Syndrome (which I have, concomitantly with Hashimotos). It can cause huge hormone issues including weight gain and sometimes acne on face or on back or buttocks, depression, hirsutism, infertility, glucose metabolism issues, menstrual irregularity or cessation (but not always). I hope she sees a top notch endocrinologist to evaluate all of her symptoms, and will feel better.

Hi! I am a 60 year old female that unexpectedly gained 50 lbs and use the same thyroid drug. I exercise and always eat right yet I can not lose any weight. When I complain to my endocrinologist she just says let’s focus on your thyroid results. Now they are good but I still can’t lose a pound. It is very depressing since I was and still am very active. Your advice please

Are you taking generic or name brand drug? I sure understand your frustration. I had fluctuating weigh loss and gain when I was on generic some years ago. I did some research on my own and found out that others taking generic had experienced this same thing. I went back to my doctor and requested a new prescription that stated "name brand" only Synthroid. This helped stabilize my weight issues a lot. My numbers do change once in awhile and so the amount of Synthroid I take has to be adjusted accordingly, and this of course might cause slight weight gain or loss, depending on whether you are getting the correct amount of medication.

@cherriann

Are you taking generic or name brand drug? I sure understand your frustration. I had fluctuating weigh loss and gain when I was on generic some years ago. I did some research on my own and found out that others taking generic had experienced this same thing. I went back to my doctor and requested a new prescription that stated "name brand" only Synthroid. This helped stabilize my weight issues a lot. My numbers do change once in awhile and so the amount of Synthroid I take has to be adjusted accordingly, and this of course might cause slight weight gain or loss, depending on whether you are getting the correct amount of medication.

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@cherriann
Hi I am taking name brand
And I was recently told my thyroid numbers are now perfect but not my weight!
She does not want to discuss my weight issue.
I don’t know what to do?

@cherriann It's hard to lose weight have you looked at the Mayo diet?

@joanmurphy

@cherriann
Hi I am taking name brand
And I was recently told my thyroid numbers are now perfect but not my weight!
She does not want to discuss my weight issue.
I don’t know what to do?

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Perhaps it might be worth making an appointment with an internist or another medical specialist that would look at other possibilities of what could be causing weight gain. If there is an underlying cause other than thyroid disorder, a checkup with another type of doctor for a complete physical evaluation probably would be something to consider.

@cherriann Weight gain can come from meds like Predinison

@joanmurphy

@cherriann
Hi I am taking name brand
And I was recently told my thyroid numbers are now perfect but not my weight!
She does not want to discuss my weight issue.
I don’t know what to do?

Jump to this post

That is a good point that lioness made about prednisone. There are other drugs that cause weight gain too, so if you take others meds beside synthroid, checking their side-effects would be a good idea.

Liked by lioness

@joanmurphy

@cherriann
Hi I am taking name brand
And I was recently told my thyroid numbers are now perfect but not my weight!
She does not want to discuss my weight issue.
I don’t know what to do?

Jump to this post

@joanmurphy Why does she not want to discuss weight? When I lost a lot of weight I asked my PCP how much more he thought I should lose. He said about five pounds! I lost about 20 more though, and my BMI was still above 25.
I have read that as a person ages it is good to have a few spare pounds, helps them if they get sick, so I will be happy with what I lost, and am working to get back there. I an about 7 or 8 pounds more than that now.
JK

Liked by lioness

@lioness

@cherriann Weight gain can come from meds like Predinison

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@cherriann @lioness I gained a lot of weight when I was once on prednisone. Now I am only on a small dose and it does not seem to have effected me.
JK

Liked by lioness

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