Share this:
islandmomma
@islandmomma

Posts: 14
Joined: Dec 10, 2018

Mesothelial Tumor

Posted by @islandmomma, Dec 11, 2018

I had a large biliary cystadenoma found bc it was pressing on my gallbladder and this prompted a liver resection, during this surgery they found another tumor attached to my diaphragm and they had to scrape it off, results from biopsy said biliary cystadenoma, no cancer and the other tumor was a mesothelial cell tumor (non cancerous).
Wondering if anyone else? This was foubd by chance bc it was not seen on any of my scans prior to surgery.
I had been having problems with breathing for some time even though I was walking 2-4mi and running 1-2 several times a week I would get winded just going up oir stairs.

I’m in the middle of waiting for follow ups with pulmonologist late Jan. Wondering if maybe I should go on sooner.

Thanks

REPLY

A warm welcome @islandmama. I'm glad that you found us. I am hoping that others with Mesothelioma tumors will join in this discussion. I am not that familiar with mesothelial tumors. I think that whenever there are problems with breathing it is a worth cause for immediate attention. Does your pulmonologist know of your present problems with breathing? It probably wouldn't hurt to giver her a call. It looks like your lesions are not cancerous which is a very good thing. What is your follow-up to your surgery? Are you undergoing any treatments?

@merpreb

A warm welcome @islandmama. I'm glad that you found us. I am hoping that others with Mesothelioma tumors will join in this discussion. I am not that familiar with mesothelial tumors. I think that whenever there are problems with breathing it is a worth cause for immediate attention. Does your pulmonologist know of your present problems with breathing? It probably wouldn't hurt to giver her a call. It looks like your lesions are not cancerous which is a very good thing. What is your follow-up to your surgery? Are you undergoing any treatments?

Jump to this post

Thank you. So my surgery was done by a GI Oncologist since it was for my liver and was there he found the other tumor attached to my diaphragm on same side as liver, they assumed it was same liver cells but sent for biopsy there it showed mesothelial cells. Shortly after that we retired from military and moved so I am just now starting with pulmonology. First appt late Jan.
The follow ups are to see what else is going on as I have other cysts ans lessions on my liver (much much smaller than the one removed) and we just found some large lessions on right ovary that were not there during surgery or 2yrs before when I had hysterectomy. I am scheduled for more scans this month and possibly a biopsy.

@islandmama- You're welcome! Have any of your doctors mentioned why you have shortness of breath? The liver is located under the ribs on the right hand side of the body. It lies just below the lungs, under the top of the diaphragm to which it is attached. The diaphragm is the muscle beneath the lungs which regulates our breathing. I would think that anything that changes that and is that close to your lungs would interfere with your breathing because your operations changed the architecture of your chest. Things move around, fill in and reposition themselves. I would expect something to change but whether it has affected your breathing can only be answered by your doctors. Have you had any breathing tests?
I'm sure that all these new cysts and lesions are very worrying. How are you coping?
Did your pulmonologist order the new scans? Maybe she is waiting to see the results so that she has a bigger picture for your January Appointment. If you breathing has changed, gotten worse than I would call her! Please let me know how you make out.

@merpreb

@islandmama- You're welcome! Have any of your doctors mentioned why you have shortness of breath? The liver is located under the ribs on the right hand side of the body. It lies just below the lungs, under the top of the diaphragm to which it is attached. The diaphragm is the muscle beneath the lungs which regulates our breathing. I would think that anything that changes that and is that close to your lungs would interfere with your breathing because your operations changed the architecture of your chest. Things move around, fill in and reposition themselves. I would expect something to change but whether it has affected your breathing can only be answered by your doctors. Have you had any breathing tests?
I'm sure that all these new cysts and lesions are very worrying. How are you coping?
Did your pulmonologist order the new scans? Maybe she is waiting to see the results so that she has a bigger picture for your January Appointment. If you breathing has changed, gotten worse than I would call her! Please let me know how you make out.

Jump to this post

My shortness pf breath was due to the very large tumor pressing against everything on that side and the tumor on diaphragm which was restricting my breathing . I am doing better now. It took a while since When they scraped the tumor off they have to repair my diaphragm and that caused so much pain it would restrict my breathing.
I will add I was military and lived and worked in WWII buildings and was also exposed to chemicals, I worked with Jet fuel.

islandmama- Love the name! I think that a lot of vets have experienced this. I am glad that you are feeling better now. Are you having any treatments now?

I'm on meds for thw inflammation I have inside to help ease the pain

Islandmama what is thw?

@merpreb

Islandmama what is thw?

Jump to this post

Sorry typo "the"

Lol. What is your next appointment?

GYN scan and check for my lessions next week and Hepatology Dec 31 and Pulmonology end of Jan

Your original question islandmama was seeing if you should call your Dr sooner. What do you think? Do you feel worse?

I still have exhaustion, IBS symptoms and have to really watch what I eat so much that I hate eating now. My concern would be of last time the mesothelial cell tumor didnt show up on CT or MRIs what if I have more?

Islandmama- that's a question we all ask ourselves before another scan. Have you been able to get a straight answer from your new doctor's? I bet you're tired, especially with worrying so much. Can you still get out and walk some? It might help a bit.
Maybe call your pulmonologist and talk to her about your concerns. Maybe get more answers.

Please login or register to post a reply.