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Julie
@juliehart4

Posts: 5
Joined: Jul 24, 2017

Menopause and Changes In Seizures

Posted by @juliehart4, Jul 26, 2017

Prior to menopause I had been seizure free for 20 years. I have been on seizure medication since the age of six when I was diagnosed with epilepsy. At the age of 48 and premenopausal I started having seizures. Now ten years later post menopause I continue to have the seizures. Medication has not worked and hormone therapy has not worked. My seizures come almost every month and last for about 7-8 days and then they stop. I have tried different medications and even hormone replacement therapy and so far nothing has worked. I am wondering if there is anyone who has had or is having a similar experience dealing with a change in their seizure activity relating to premenopausal or menopausal. If so what have you tried, articles you may have read? My doctor is at a loss and has somewhat given up. I have read articles on Catamenial seizures however these do not apply to me. It’s difficult to find any literature about this subject or possible solutions.

REPLY

Hi Julie, I’ve been taking seizure medications since I was 10. The Doctors have never been able to control the seizures but they’ve cut cut them from about 20 to 8 a month. I’m in the Postmenopausal stages now. Most of my seizures come within a weeks time. At times I have a lot more auras and Fast heartbeats during those auras, they last 30 seconds and It takes up to 2 minutes to slow my heart down. The Drs. Told me not to follow the hormone replacement therapy due to developing cancer from it. I have some information from WebMd. I hope this helps.
http://www.webmd.com/epilepsy/guide/your-changing-hormones#2

@carnation

Hi Julie, I’ve been taking seizure medications since I was 10. The Doctors have never been able to control the seizures but they’ve cut cut them from about 20 to 8 a month. I’m in the Postmenopausal stages now. Most of my seizures come within a weeks time. At times I have a lot more auras and Fast heartbeats during those auras, they last 30 seconds and It takes up to 2 minutes to slow my heart down. The Drs. Told me not to follow the hormone replacement therapy due to developing cancer from it. I have some information from WebMd. I hope this helps.
http://www.webmd.com/epilepsy/guide/your-changing-hormones#2

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Thank you for your sharing your story and the article. I wish you the best.

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