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Menopause and Changes In Seizures
Epilepsy & Seizures | Last Active: Apr 18 4:41pm | Replies (19)Comment receiving replies
Hi Chris,
I got a referral to a level 4 epilepsy center a couple of weeks ago, and now have to wait for them to call me to schedule an appointent. They are booked out so far that it could easily be 6 months before I get in to see anyone. Seeing the specific Epileptologist of my choice could take even longer. Such is the U.S. medical system. 🙁
Clearly, you have a great medical team looking after you. What you've acheived gives me hope. The knowledge and experiences you share with us are invaluable.
Thank you!
Replies to "Hi Chris, I got a referral to a level 4 epilepsy center a couple of weeks..."
I would contact them, don't wait for them to contact you. I am a nurse and work in Internal Medicine and always tell patients to contact scheduling.
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Hi @hopefullibrarian
6 months, this is amazingly long! I do not know well the health system in the US, but wouldn't it be helpful to try other 4 epilepsy centers? The Epilepsy Foundation has a 24/7 helpline that can perhaps provide you with relevant information in this regard. Here is the link: https://www.epilepsy.com/247-helpline
In another post of our group, I have shared a quote from a Brazilian writer that I share here with you again:
“I didn't win every time I fought, but I lost every time when I stopped fighting” – Cecília Meireles
Let's keep fighting and together. Self-knowledge of epilepsy is empowering!!!
That faith and new hopes continue in ourselves throughout this year that is about to start!
With kindness!
Chris (Santosha)