Meet others living with autism: Come say hi

Posted by Lisa Lucier @lisalucier, Dec 19, 2019

Welcome to the Autism group on Mayo Clinic Connect.

Living with autism spectrum disorder (ASD) may have many aspects in common with neurotypicals, but also some uniquenesses. Whether you are someone diagnosed with ASD, or are living with or caring for someone with ASD, let’s connect.

I’m Lisa, and I am the moderator of this group. I look forward to hearing about the lens through which you look at life, your experiences, and what comes easily to you and what presents difficulties. Perhaps you or your loved one has been misunderstood or even mistreated by others, or maybe you have heightened senses that bring you much joy. Whatever your story, I encourage you to share it openly and frankly, and also provide compassion and a place of safety for others touched by autism.

I’d love to welcome you and introduce you to other members. Feel free to browse the topics or start a new one.

Have a seat in a comfy chair, grab a cup of coffee or a beverage you like, and let’s chat. Why not start by introducing yourself?

@lisalucier

@auntieoakley – thinking of you today and wondering how you are doing?

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@auntieoakley , I miss you! What are you up to these days? What books are you reading? I hope that you are well and taking time for yourself. It's been a hard lesson for me to learn. I was raised in an era where you worked hard six days a week. The only real rest we got back then was on church day.

I am retired and should be slowing downI suppose. But that is not my nature.

Happy Valentine's Day my friend!
Lots of love,
Mamacita Jane

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Thank you for thinking of me. Happy Valentine’s Day to you all. I am very busy with multiple cancer patients in the family, one entering hospice over the last 4 days. Hoping for some serious down and quiet time soon.

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@mamacita

@lisalucier
Today I met the mother of a young teenager who has Aspergers.
It never ceases to amaze me.
No matter where I go, they find me.
Or maybe I find them.

We shared the commonalities and enjoyed our little secret society.
She is,very proud of her child. And she should be.

I think she enjoyed our brief time together.
I know I did.

It feels so good to meet others who understand.
Kind of like being here.

Thank you all who scroll by, leave a comment, or ask a question. You are a valued member of this community.

Love and light,
Mamacita Jane

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That makes my heart happy to know this mama you met is proud of her son, @mamacita.

A friend of mine has a child in his mid-20s who has Asperger's and lives locally. She is a great mom, but has had a challenging time figuring out how much mothering is appropriate at this juncture in his life.

In order to get him some services he needed to live successfully on his own, she and her husband had to move him to an apartment and basically allow him to fail. She goes to visit and there are bagels and dirty dishes everywhere, he's not taking his meds as he should, and things are in general disarray. I know he struggles getting to his job at a local store regularly, too. Not sure exactly how much of this behavior relates to his diagnosis. So hard for her.

Have you heard of this kind of situation before, @mamacita @sirgalahad @auntieoakley @gingerw, where someone on the spectrum has to prove they cannot live without some help in order to get some help?

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@lisalucier

That makes my heart happy to know this mama you met is proud of her son, @mamacita.

A friend of mine has a child in his mid-20s who has Asperger's and lives locally. She is a great mom, but has had a challenging time figuring out how much mothering is appropriate at this juncture in his life.

In order to get him some services he needed to live successfully on his own, she and her husband had to move him to an apartment and basically allow him to fail. She goes to visit and there are bagels and dirty dishes everywhere, he's not taking his meds as he should, and things are in general disarray. I know he struggles getting to his job at a local store regularly, too. Not sure exactly how much of this behavior relates to his diagnosis. So hard for her.

Have you heard of this kind of situation before, @mamacita @sirgalahad @auntieoakley @gingerw, where someone on the spectrum has to prove they cannot live without some help in order to get some help?

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Sadly in our current climate, this applies to many things. Autism, mental health, seniors, and the disabled. If you need help you have to be in peril to show you need it before you can get it, and even then…………….

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@lisalucier

That makes my heart happy to know this mama you met is proud of her son, @mamacita.

A friend of mine has a child in his mid-20s who has Asperger's and lives locally. She is a great mom, but has had a challenging time figuring out how much mothering is appropriate at this juncture in his life.

In order to get him some services he needed to live successfully on his own, she and her husband had to move him to an apartment and basically allow him to fail. She goes to visit and there are bagels and dirty dishes everywhere, he's not taking his meds as he should, and things are in general disarray. I know he struggles getting to his job at a local store regularly, too. Not sure exactly how much of this behavior relates to his diagnosis. So hard for her.

Have you heard of this kind of situation before, @mamacita @sirgalahad @auntieoakley @gingerw, where someone on the spectrum has to prove they cannot live without some help in order to get some help?

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do you have group homes or industries where neurodiverse and disabled can work together. you need to make a weekly program and plan for him to follow and send mobile phone or Facebook prompts and colour code it .we auties need plans and a programme our executive functioning varies form autie to autie depending on their comorbidities and functionality

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sorry folks I am not making sense I just had another big fall at work and reinjured my sciatica and lumbar discs and its the third time trying to get better but I am in shock again

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@sirgalahad

you 2 ladies would run a ring around your president Trump and republican party .Because women are seen and not heard and are only chattel and owned by the republican male

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@sirgalahad Yes we would more of us then Trump could handle

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@mamacita

Oh @lioness I would love to see thst in person!!!
Love and light,
Mamacita Jane

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@mamacita My buck dressed out at 200 lbs my friend helped me by dragging him to my car .My husband came home from Mrs with s 90 lb mine was 8 pt buck his was a spike buck Didn't let him live it down

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@lioness

@mamacita My buck dressed out at 200 lbs my friend helped me by dragging him to my car .My husband came home from Mrs with s 90 lb mine was 8 pt buck his was a spike buck Didn't let him live it down

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@mamacita That was in 70,s

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@sirgalahad

sorry folks I am not making sense I just had another big fall at work and reinjured my sciatica and lumbar discs and its the third time trying to get better but I am in shock again

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Your are making perfect sense, @sirgalahad.

We do have group homes and some places that are very open to hiring neurodiverse or disabled individuals in our region. Not sure how much flexibility these employers offer versus employees who are neurotypical or able-bodied (e.g., if you don't show up one day, do you automatically lose your position?)

The phone prompts and color coding do seem like a really good way to keep organized. Will have to mention this to my friend at the right moment when she's discussing something related.

So sorry to hear you were injured. Do you know what prompted your fall? Or was it just a random occurrence?

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@sirgalahad

sorry folks I am not making sense I just had another big fall at work and reinjured my sciatica and lumbar discs and its the third time trying to get better but I am in shock again

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Oh no, @sirgalahad !!! Bless it! Lots of prayers and healing energy sent your way. Get better soon dear friend!
Love and light,
Mamacita Jane

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@sirgalahad

do you have group homes or industries where neurodiverse and disabled can work together. you need to make a weekly program and plan for him to follow and send mobile phone or Facebook prompts and colour code it .we auties need plans and a programme our executive functioning varies form autie to autie depending on their comorbidities and functionality

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Yes,@lisalucier, we do indeed have these homes. There is a long waiting list but my daughter finally got a place.

And yes, it is basically sink or swim. She takes her medicine pretty well, but the basic activities of daily living are almost more than she can handle.

While she is getting wound care treatment for lymphedema, she is not able to get home care services. Ridiculous.

She really should be in a group home or a nursing home. But we have to give this a try. She doesnt want that option.

We visit frequently and do what we can to help her. Hopefully she will get home health services when the wound care treatment is done.

My daughter is not on the Spectrum. But these apartments are available for all disabled individuals. Sometimes co-morbidities render an Autistic unable to meet their needs without some help.

Thankfully there is help available.

Love and light,
Mamacita Jane

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