Meet others living with autism: Come say hi

Posted by Lisa Lucier @lisalucier, Dec 19, 2019

Welcome to the Autism group on Mayo Clinic Connect.

Living with autism spectrum disorder (ASD) may have many aspects in common with neurotypicals, but also some uniquenesses. Whether you are someone diagnosed with ASD, or are living with or caring for someone with ASD, let’s connect.

I’m Lisa, and I am the moderator of this group. I look forward to hearing about the lens through which you look at life, your experiences, and what comes easily to you and what presents difficulties. Perhaps you or your loved one has been misunderstood or even mistreated by others, or maybe you have heightened senses that bring you much joy. Whatever your story, I encourage you to share it openly and frankly, and also provide compassion and a place of safety for others touched by autism.

I’d love to welcome you and introduce you to other members. Feel free to browse the topics or start a new one.

Have a seat in a comfy chair, grab a cup of coffee or a beverage you like, and let’s chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

In reply to @sirgalahad "HI MAMACITA" + (show)
@sirgalahad

HI MAMACITA

Jump to this post

@sirgalahad,
Brother!!!!!! Welcome back!!!
So glad you are here.....
We will have some interesting chats here..
My cataract surgery went well. I have no restrictions any longer.
Looking forward to meeting new people here and sharing our stories.
You are a sight for sore eyes.
Love and light,
Mamacita Jane

REPLY

@lisalucier
Hello this fine Tuesday!
In reference to a conversation we started a little while back, I happened upon an article that is spot on.

How To Teach Autistic Pupils By Autistic Pupils. I am on my phone so I cannot give you the name of the person who wrote it just now.

I will. In the next few minutes.
Excellent read. Adheres to the "Nothing about us without us" philosophy, of which I am a staunch supporter.

My eye surgeries went great. I have no restrictions whatsoever. Good thing. I have a lot of reading to catch up on.

My husband is still disabled, temporatily, we hope. His hand is so swollen and they are treating him "as if" he has gout. It is so painful he hasnt driven in three weeks. His MRI results will be ready tomorrow morning when we go back to the doctor.

If nothing shows up we are going to ask for a sonogram to rule out blood clots.

I feel so blessed to be a part of this family of friends. The support here is absolutely amazing.

Everyone, check out this article. Read it. It doesn't matter if you are ASD, the parent or Grandparent of a child who is ASD, an educator, a therapist.....

It will benefit you greatly.

Peace and light,
Mamacita Jane

REPLY

Everyone...Craig Goodall is the name
The researcher who has put out this fine piece about students who are ASD.

Many of the points made would apply to a home setting or the student's room.

Easy on the accessories. Careful about huge collections of books, etc. They distract and confuse. Make it difficult to focus.

Catch y'all later!

Love and light,
Mamacita Jane
,

REPLY

Autism,Aspergers- Support Community. If any of you are on Facebook,this group comes highly recommended by the well known advocate, author, and Autist Samantha Craft. She does not randomly give her support to everyone who hangs up their shingle and purports to be our friend.

But she is. Our friend, that is.
She has been my friend and mentor for years now.
She is the Author of Everyday Aspergers.

Check her out. And this support group that she recommends.

Everything may not be your cup of tea. But hey, we learn from one another.
That's what we are here for.

To learn and help one another.
@sirgalahad, reckon which one of us will get there first?

Love and light,
Mamacita Jane

REPLY
@mamacita

Autism,Aspergers- Support Community. If any of you are on Facebook,this group comes highly recommended by the well known advocate, author, and Autist Samantha Craft. She does not randomly give her support to everyone who hangs up their shingle and purports to be our friend.

But she is. Our friend, that is.
She has been my friend and mentor for years now.
She is the Author of Everyday Aspergers.

Check her out. And this support group that she recommends.

Everything may not be your cup of tea. But hey, we learn from one another.
That's what we are here for.

To learn and help one another.
@sirgalahad, reckon which one of us will get there first?

Love and light,
Mamacita Jane

Jump to this post

you won

REPLY
@mamacita

@sirgalahad, tag...you're it.

Jump to this post

I AM OLD I SLIPPED OVER AND REINJURED MY LOWER BACK AND DISCS IT HURTIES

REPLY
@sirgalahad

first one has to be open that we autistic and neurodiverse do operate on different operating system .Dependent on our comorbidities there will be huge variances in levels of functionality and we all have quite high levels of cognitive abilities and there is functionalities which i pact on how we operate and our express ourselves .its huge mistake to view that we are all dumb.

Jump to this post

What a great perspective, @sirgalahad, and can I just say I'm so glad to see you back?

Your back situation sounds painful. I remember when I had a back injury from a skiing accident in college. Severe back pain colors your whole world.

What has your doctor suggested to rehabilitate your back, sirgalahad?

REPLY
@mamacita

@lisalucier
Hello this fine Tuesday!
In reference to a conversation we started a little while back, I happened upon an article that is spot on.

How To Teach Autistic Pupils By Autistic Pupils. I am on my phone so I cannot give you the name of the person who wrote it just now.

I will. In the next few minutes.
Excellent read. Adheres to the "Nothing about us without us" philosophy, of which I am a staunch supporter.

My eye surgeries went great. I have no restrictions whatsoever. Good thing. I have a lot of reading to catch up on.

My husband is still disabled, temporatily, we hope. His hand is so swollen and they are treating him "as if" he has gout. It is so painful he hasnt driven in three weeks. His MRI results will be ready tomorrow morning when we go back to the doctor.

If nothing shows up we are going to ask for a sonogram to rule out blood clots.

I feel so blessed to be a part of this family of friends. The support here is absolutely amazing.

Everyone, check out this article. Read it. It doesn't matter if you are ASD, the parent or Grandparent of a child who is ASD, an educator, a therapist.....

It will benefit you greatly.

Peace and light,
Mamacita Jane

Jump to this post

This article is very intriguing, @mamacita, and though I read all of it, I still want to go back and drill down into the many links included.

One thing I wanted to ask about from this article, @auntieoakley @mamacita @gingerw @sirgalahad is about this: Many autistic young people need routine (but not necessarily sameness).

When I think of routine, I think of sameness (e.g., brush your teeth at 8 p.m. every night, or eat a bowl of Cheerios, like my 11-year-old, every day right after you get home from school). What is the differentiation the author is referring to here between routine and sameness?

REPLY
@sirgalahad

I AM OLD I SLIPPED OVER AND REINJURED MY LOWER BACK AND DISCS IT HURTIES

Jump to this post

Oh? You poor dear! I am so sad to hear this news! Are you in the hospital? What are they doing for your back? @sirgalahad, please let us know how you are improving. You will be as right as rain before you know it. In the meantime, healing hugs and prayers sent your way!
Love and light,
Mamacita Jane

REPLY
Please sign in or register to post a reply.