Mayo Clinic Connect
I have MAC and Bronchiectasis. Has anyone tried medical cannabis for either of these?
@suenfl I have a medical marijuana card for cachexia. It was approved because of my severe weight loss and poor appetite. I have MAC and Bronchiectasis. Both my ID doctor and my pulmonologist agreed it was ok as MAC is such a “wasting” disease for some. I have tried it a few times, but clearly I am not a party gal. My husband encourages me to use it, and he was very against marijuana in the 60’s when we were in college. I will say the creams are nothing short of miraculous in terms of arthritis (which has nothing to do with your question). The dispensaries have many different kinds of marijuana products to fit your diagnosis. Insurance does not cover that expense. I hope that answers your question somewhat.
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Thanks for your reply. I am using it and have not been hospitalized in 9 months. I have a FL medical cannabis card. I was hospitalized 18x in the past two years. It will be interesting to see how my next scan looks.
Are you smoking it or using edibles?
If anyone is interested in my cannabis journey, please let me know. I have MAC and bronchiectasis.
Liked by janovr
@suenfl Yes! I am interested in your positive results. Thanks. Kate
Suenfl. I would like to hear as well.
suenfl….. definitely would like to know what you have learned. Thank you in advance
Cool! In 2017 and 2018, I was hospitalized +20x. I have not been in the hospital since January 1. I do a 3 sec vape about 10x a day. I did try the Big 3 in 2017. I was very sick. Could not take care of myself, I live alone, so that was a big problem. I started out with a lower dose and worked up to 30mg a day. I live in Florida, so this is also legal. I go to Trulieve. My Dr prescribed it because it is a brochodilator and anti-inflammatory. There is a great difference in the way I feel. Will keep you posted.
Liked by alleycatkate
Was it your pulmonologist that prescribed the canabis? Is it safe and all for your lungs. Just alot going on in the news about vaping now. Glad it is helping you, do keep us posted!
Yes I am interested in your cannabis journey.
I buy my vape cartridges legally. They are safe.
Very interested !
I too live in Fl.
Seem to get sick every spring and fall!😢
I am interested also. Would you know if there is a difference between vaping and smoking? I tried smoking a couple of times a few years ago, but it made my chest hurt and made me cough up thick, green phlegm for at least a day afterward. At that time I didn’t know I had bronchiectasis or MAC. I just knew then it was NOT for me. I wonder if vaping would be different now.
Ginak. It is my understanding that the current issues with vaping thc have to do with the oils that are created as part of the inhalation/deliveryprocess. Lungs, especially those with compromising conditions such as Mac or ntm’s, should not be exposed to substances that would inhibit oxygen exchange. I would check with your pulmonologist and follow recommendations . I don’t believe much if any research has been done regarding cannabis or thc vaping and more and more reports of lung damage are surfacing each day. I would definately proceed with caution and check with my pulmonologist. This is just my opinion.
Liked by ginak
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