MCTD

Posted by andromeda5845 @andromeda5845, Feb 6 8:18am

Hello. I’m a 49 year old woman living with pain and weird symptoms(hair loss, GI symptoms, dry eyes, pain everywhere) every single day. I’ve been to several specialists with different opinions for the better part of four years. I had a positive ANA ordered my gastro and was told
Not to worry about it. Symptoms continued and was finally referred to a rheumatologist a few weeks ago. I have a positive RPN but it’s only 1. Not sure if this means I’m not positive or if it needs to be higher to be considered positive. The pain in my body has made me quit my career and I’m presently barely working. My apt to go over labs and X-rays is tomorrow. Does anyone have any insight on this? I’m trying to prep myself for this apt and what to expect. I feel so frustrated it’s taken this long to get here and wonder if the damage to my body is going to continue to worsen if docs don’t take this seriously. I went from running and every working every day to a body I don’t even know anymore. Any insight is so appreciated.

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andromeda5845 | @andromeda5845 | Mar 19 5:38pm

In reply to @becsbuddy "@andromeda5845 That is so bad! Has your doctor said anything about this situation?" + (show)

Just tried to get the Quviviq covered by insurance but I think it’s pretty new and expensive so they aren’t going for it.

sonnyforee10 | @sonnyforee10 | Mar 31 1:15pm

I feel you’re oain. I also went from very active to very inactive. I make myself go to yoga 3 days a week it has helped with my soreness and stiffness. I was diagnosed with MCTD an overlap of sceladerma I January. It’s very depressing disease. Trying not focus on it but when you hurt it’s hard to forget.