Has anyone been to the Fibromyalgia Clinic at Mayo? My 21 year old daughter is scheduled to go in May and we are wondering if anyone found it helpful? My daughters fibro is very severe and so far the medications we have tried have not helped.
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I did the pain rehab clinic at Foridas Mayo Clinic. At first I thought that it was helpful, but after leaving there was no support upon going back home which is out of state
I would like to know your opinion of the Fibro Clinic. I was just at Mayo last week (May 15-19) and I will be returning July 18 for the Fibro Clinic, among other tests. I cannot seem to locate much information on the web in regards to the Fibro Program other than the pamphlet they provided me. I would love to have any information anyone would be willing to share, as I have been dealing with severe pain for YEARS and have almost lost hope.
Thank you in advance.
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Hi I would like to say ,I also have had bad reactions to the meds.my Dr. has had me try over the past 5 yrs.the only thing that helps are pain meds hydrocodone!And most Drs. don’t want you to take those??WHY NOT IF IT WORKS AND HELPS?
I also had a bad time on the Cymbalta,the withdrawal was awfull!
I am so sorry for your Daughter,a young person with this illness,how sad.Hydrocodon 7.5 helps me get threw the day,I only take two a day.You must be carefull with Doctor advise!
I used that med for quite a long time. You end up needing higher and higher strengths of it. It is one of the most effective drugs for pain, however it is one of the MOST ADDICTIVE or one in which your body becomes most dependent on. After so long of taking it I began to have memory problems, no incentive for a “normal” life, and became even more depressed than when the pain was worse without the drug. I no longer take any narcotic drugs. After being off the drugs for over a year I participated in Mayo Clinic/Florida’s Pain Rehab Program hoping to learn skills to tolerate the pain. This HELPED!!! The pain does not stop but you learn coping skills. ATTITUDE IS IMPORTANT- you must really want to be able to cope and realize the drugs are just a band-aide and in many ways end up making the pain worse & certainly the situation worse. I didn’t think so early on in taking the meds, I just wanted relief from the pain but I finally learned what harm the meds were doing. It is well worth going to a cognitive behavior program- it WILL HELP IF and ONLY IF YOU LET IT!!! ONE MUST BE DETERMINED TO BE BETTER!!!!!
Many blessings wished for those in pain, God is able to comfort and heal you!
I’m scheduled for it on Monday. I was diagnosed back in 1997 and have tried ever med, pt and even thearpy possible but I’m trying to stay positive. Any one had any helpful recommendations for this clinic?
I attended the Fibromyalgia Clinic in Rochester in January 2012 and it changed my life for the better. It was a full five day week of various tests and information. There was honesty, sharing of information, and sincere compassion.
I had to increase the medication after six months but my rheumatologist is monitoring my condition.
She was pleased with the report from the clinic and the information about the new medication. I had been on Lyrica……bad bad medication. The change to Savella saved me. I think the Mayo Clinic is the place for all who have been diagnosed or think they have Fibro. You will not be sorry.
EMR, nashville, tn.
Welcome back to Connect @edriaragosin! Hearing from someone who has been there is so helpful for new members like @chbeck769.
Edria, did you only have to visit the clinic once and since been managing your health with your rheumatologist closer to home?
Could someone please share titles of books recommended by Mayo Clinic’s Fibromyalgia program? Thank you.
Hi @happymom. Welcome to Connect! Here is one book from Mayo Clinic about wellness solutions for fibromyalgia, that you might find helpful https://marketplace.mayoclinic.com/shop/diseases-and-conditions/book/mayo-clinic-guide-to-pain-relief_294200. Also, here is a pain management e-newsletter you might want to subscribe to- https://newslettersignup.mayoclinic.com/?fn=211. I’m also tagging @edriaragosin, @flowerlady and @lee626 to see if they have any other recommendations.
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