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Flower Lady (@flowerlady)

Mayo Clinic's Fibromyalgia Clinic

Fibromyalgia | Last Active: Dec 30, 2022 | Replies (35)

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@chbeck769

I'm scheduled for it on Monday. I was diagnosed back in 1997 and have tried ever med, pt and even thearpy possible but I'm trying to stay positive. Any one had any helpful recommendations for this clinic?

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Replies to "I'm scheduled for it on Monday. I was diagnosed back in 1997 and have tried ever..."

I attended the Fibromyalgia Clinic in Rochester in January 2012 and it changed my life for the better. It was a full five day week of various tests and information. There was honesty, sharing of information, and sincere compassion.<br />
I had to increase the medication after six months but my rheumatologist is monitoring my condition.<br />
She was pleased with the report from the clinic and the information about the new medication. I had been on Lyrica......bad bad medication. The change to Savella saved me. I think the Mayo Clinic is the place for all who have been diagnosed or think they have Fibro. You will not be sorry. <br />
EMR, nashville, tn.<br />

Welcome back to Connect @edriaragosin! Hearing from someone who has been there is so helpful for new members like @chbeck769.

Edria, did you only have to visit the clinic once and since been managing your health with your rheumatologist closer to home?

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Colleen, I only attended the week in jan2012. The exercises, medication, and Walking up to 3 miles 4 to 5 times a week My biggest problem is my arthritis. The biofeedback session at Mayo is utilized when the pain inhibits ADLs. I think the biggest problem fibromyalgia presents is depression. I make a conscientious effort to get up and get going. Also, it is important to take a short nap at least a few times each week. Meditation is difficult for me but I can see how it could help. I would love to get back to Rochester for a basic check up. I truly trust the doctors there.EMR, nashville<br />
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I agree Lyrica wasn't a good medicine for me Dr.put me on Cymbalta and what a difference It helps me plus I use Fibro Malic