Mayo Clinic pulmonology Jacksonville FL

I just returned from a 6 month follow up at Mayo in Jacksonville. Good news for me, my CT and PFT remain stable. I had no symptoms to report other than my usual coughing up sputum after bronchial hygiene once daily. My previous sputum culture was negative, current sputum culture is still pending, but Dr said even if positive he would not change the treatment plan which is twice daily nebbing 7% saline, and once daily Aerobica, postural drainage, manual chest percussion, huffing and coughing up sputum. And return in 1 year for next follow up. Very happy. Thanks to everyone in this group that has suggested using 7% saline. Mayo did not initially offer it as a treatment but approved the continued use for me. Bill

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May I ask which doctor you saw?

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Has anyone seen Dr Ortega at the Mayo Clinic in Arizona? The doctor I saw at Mayo in Jacksonville retired. Need to get appointment but don’t know who is best. Thanks for your help.

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I think @trissi @lindam272 @joan912 may have info on Mayo Clinic in Arizona.

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Today I meet Dr B, an appointment that I made 2 months ago.
I got a note from them to fast, eat healthy, no alcohol the night before the appointment.
Dr B seemed surprised that I expected a blood test, and no other appointments were made. Last time I was given a line up of my appointments after talking with Dr. which included breathing test, sputum test, blood test, CT scan.
This was wasn’t done this time. I had blood, test today, tomorrow we stay in our hotel and no tests were able to scheduled tomorrow. Then the following day one test scheduled for 6:45 AM, another for 2:45PM.
I am very disappointed with what Mayo HAS NOT done for me.
I hope that can make up for their lack of preparation.
Sharon D

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Hi @pal131, Sharon. I'm really sorry to hear about this. Were you able to talk to the schedulers to get things lined up better? Have you downloaded the patient portal? It can make some of this easier. If you haven't used the patient portal and would like some help with it, the Concierge Services can walk you through it. You can contact them here:

Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
By phone 7 a.m. to 6 p.m. CT, Monday-Friday: 507-538-8438
Email: concierge@mayo.edu

I'll also encourage you to share your experience with the Office of Patient Experience. They will want to know about this. Here's how to reach them:
Mayo Clinic Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

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Today I meet Dr B, an appointment that I made 2 months ago.
I got a note from them to fast, eat healthy, no alcohol the night before the appointment.
Dr B seemed surprised that I expected a blood test, and no other appointments were made. Last time I was given a line up of my appointments after talking with Dr. which included breathing test, sputum test, blood test, CT scan.
This was wasn’t done this time. I had blood, test today, tomorrow we stay in our hotel and no tests were able to scheduled tomorrow. Then the following day one test scheduled for 6:45 AM, another for 2:45PM.
I am very disappointed with what Mayo HAS NOT done for me.
I hope that can make up for their lack of preparation.
Sharon D

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Sharon, I feel the same way as you. Two appts ago, I had only a lung function test and none of the others that I used to get. I had wondered if it was due to cutbacks, or possibly not enough drs for all of the patients? Is it possible that covid has worn done everybody? Perhaps the medical profession is tired of dealing with all of the sickness. I also wonder if the Mayo feels like it's losing its roots as a research institution and becoming more of a routine care kind of place. I dunno. It def does not run as the well oiled machine that it once did.

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