Mayo Clinic For Parkinson’s

Isnt the DAT scan pretty conclusive? What about a spinal tap looking at alpha-synucleon? Or skin punches? These all are markers I believe. Also, RBD and loss of smell of common symptoms. A person can have symptoms, but not have the full disease for many years apparently.

Yeah pretty conclusive. Not 100%. The neurologist takes a set of symptoms as proof. I got off the table from the DaTscan which took only like 10 minutes and they charge $5000 - so I looked over the shoulder of the technician at the image on the color monitor and immediately I recognized one of the dopamine transporters was irregular in shape. I knew immediately I had PD. The radiologist report came in three hours later and confirmed that. But the neurologist won’t confirm it off DaTscan. They need other symptoms because DaTscan could also be showing different dopamine related issues.

I'm Leaving This Wknd. I Will Let You Know How It Goes . We Are From New Jersey .
They Told Us We Will Be There 7 to 10 Days .

GM

Have you seen a movement disorder specialist ?
They will do a physical exam in the office that is so Eric for Parkinson’s. That’s the first step

LOL sorry not ERIC. Should read specific to Parkinson’s

@booplagirl3

I’m anxious to hear how it goes for you because we’re going in August for my husband; hoping Mayo will do all tests & be able to give him a diagnosis. Mayo told us to plan on 7 business days.

I see that your husband was going to Mayo in August, @kaymirkes. Could you share an update on his appointment?

You may see a partial message from me; I was typing it, answered a call & then lost the message. So I’ll start over in this one.

Our experience at Mayo Clinic in Rochester was absolutely stellar every step of the way; the most perfect medical experience. Nothing in our local area (Dallas) even comes close. I cannot recommend Mayo too highly. My husband saw Dr. Savica (movement specialist) & we were extremely impressed. The next step is a video meeting with him in late October for results. He ordered all tests that are relevant at this time; that never happened with his local neurologist at UT Southwestern. We are very thankful the experience was possible at Mayo; we believe Mayo will determine a correct diagnosis in time so we’re full of encouragement after going there.

And I have to say using Mayo’s travel agency was fantastic. It was a smooth trip. We stayed at the Grand Kahler Hotel that is connected to Mayo’s campus via the walking subway system & the skyway system. They couldn’t have made the experience any better.

I have been to the Mayo clinic in Florida, I saw one of their Movement Disorder Specialists. The exam was pretty straight forward and I was diagnosed with very early Parkinson's. It seems as though if Parkinson's is suspected it is imperative to see a Movement Disorder Specialist.

Hello, @addickens, and welcome to Mayo Connect. I am glad that you had such a great experience at Mayo in Florida. It sounds like you are in the early stages of PD. What symptoms are you having now? Are you taking any medications?