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Mac question: Arikayce Inhaler Antibiotic

Posted by jr2366 (Jennifer) @jr2366, Dec 26, 2020

hi all I have a question does anyone know if the medication from arikayce made them sort of feeling little bit more congested and do you think in a few months from being on this inhaler antibiotic pain in the lung will get better in time. i'm only on it for about 9 days now. getting frustrated already I feel like crying I have no voice and not sure if it will come back. I feel like I'm holding back from going to see family sometimes because I can't even speak with hardly no voice. I'm going to call the pharmacist today about those lozenges called strepfen to see if its safe to try them. has anyone found there voice was much better from trying them? I definitely need my voice I'm getting so frustrated thanks to anyone who can help thank you so much.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 3, 2022
In reply to @1065408 "Hi Everyone. Considering nebulizing Arikayce only for MAC infection. Has anyone done this, and how successful..." + (show)
@1065408

Hi Everyone. Considering nebulizing Arikayce only for MAC infection. Has anyone done this, and how successful was it? Unable to do parts of Big 3 due to drug interactions for other conditions, allergies and drug sensitivities. Diagnosed MAC in 2017, never treated, was livable. At this point plummeting oxygen levels and shortness of breath leave no choice. Your input is really appreciated. Barb

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Hi Barb,
I moved your question about Arikayce and asking for others experiences with the drug to this existing discussion:
- Mac question: Arikayce Inhaler Antibiotic: https://connect.mayoclinic.org/discussion/mac-question-1/

You may also be interested in this related discussion
- Starting Arikayce - nervous: https://connect.mayoclinic.org/discussion/starting-arikayce-nervous/

I did this so you can easily read other experiences and connect with fellow members like @rits @hydrang3a @sounder27 @beatitnow @jr2366 @irene5 @yaggi01 @marlin and more.

Barb, sorry to hear about plummeting oxygen levels and shortness of breath. I hope Arikayce will help.

REPLY
2 replies
Barb | @1065408 | Mar 4, 2022
In reply to @colleenyoung "Hi Barb, I moved your question about Arikayce and asking for others experiences with the drug..." + (show)
@colleenyoung

Hi Barb,
I moved your question about Arikayce and asking for others experiences with the drug to this existing discussion:
- Mac question: Arikayce Inhaler Antibiotic: https://connect.mayoclinic.org/discussion/mac-question-1/

You may also be interested in this related discussion
- Starting Arikayce - nervous: https://connect.mayoclinic.org/discussion/starting-arikayce-nervous/

I did this so you can easily read other experiences and connect with fellow members like @rits @hydrang3a @sounder27 @beatitnow @jr2366 @irene5 @yaggi01 @marlin and more.

Barb, sorry to hear about plummeting oxygen levels and shortness of breath. I hope Arikayce will help.

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Coleen, thanks for relocating topic to the appropriate place, and for the links which I will tap into. My doctor indicated one of the side effects of Arikayce was bronchospasms. Concerned because of shortness of breath and really low oxygen levels.

REPLY
yaggi01 | @yaggi01 | Mar 5, 2022
In reply to @colleenyoung "Hi Barb, I moved your question about Arikayce and asking for others experiences with the drug..." + (show)
@colleenyoung

Hi Barb,
I moved your question about Arikayce and asking for others experiences with the drug to this existing discussion:
- Mac question: Arikayce Inhaler Antibiotic: https://connect.mayoclinic.org/discussion/mac-question-1/

You may also be interested in this related discussion
- Starting Arikayce - nervous: https://connect.mayoclinic.org/discussion/starting-arikayce-nervous/

I did this so you can easily read other experiences and connect with fellow members like @rits @hydrang3a @sounder27 @beatitnow @jr2366 @irene5 @yaggi01 @marlin and more.

Barb, sorry to hear about plummeting oxygen levels and shortness of breath. I hope Arikayce will help.

Jump to this post

Hi Barb, I have been on the Big 3 and also Arikayce. No problems with any of those. I was instructed to do an inhaler (I use Albuterol) to open everything up 15 to 30 minutes before I use the Arikayce. It must do the trick because I haven’t had the brochospasms. Please send me a private message on this site and I will be glad to discuss any concerns you might have. Just click on my user name and my profile will pop up and there is a place where you can send me a message. Glad to help!! I also live in Kentucky!!
Blessings, Deb

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