Mayo Clinic Connect
Recently my son was found to have enlarged lymphnodes in neck abdomen and groin. Also mass in colon. They removed 1 lympnode and sent him back to jail. He is in a lot of pain. Should they be doing more????
Oh you poor thing. You must really be suffering. I am praying for you and your son. Go of knows who you are. Please pray with me
Liked by dillysmom25
I'm so sorry to hear this! As a parent, I can only imagine how worried you must be. Are you able to share some more details? What type of lymphoma does your son have?
I sincerely encourage you to read this discussion, https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-watch-wait-approach/, where you'll meet @beckyjohnson @ginpene05 @vonbaron36, and others who've shared their experiences. I'm certain that Mentor @travelgirl will join in this conversation with her insights as well.
Liked by John, Volunteer Mentor, Jackie, Volunteer Mentor, Lisa Lucier, Connect Moderator
Dillysmom, I would expect that the mass in the colon should be removed. If it is an early Lymphoma he could be cured.
@dillysmom25 I see you are a new member to connect and am so sorry about your son.
It depends on the kind of lymphoma your son has on how they will treat it?
I have what is called Follicular Lymphoma and the Dr's put me on a watch and wait approach. Blood work every 6 months, and Ct scans once a year.
Does your son have a Lawyer that you can get to fight on his behalf, that he needs to see a Dr? What kind of testing was done to determine he had a mass in his colon?That should be removed if he does. I am sure it is very stressful too for your son, and that could be the cause of lymphoma acting up. Stress is not good for lymphoma patients.
I wish you best praying it all works out for your son.
Liked by Justin McClanahan
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Hi there. I just have been diagnosed as having mild Lymphoma. I dont know anything about it. Cancer Doctor said its just at the monitoring stage right now. I do know that my spleen is enlarged as well as I have low iron. I’m also feeling crappy as I’m 11 weeks after fnishing taking a horrible drug called Effexor. Can anyone shed any light on how a person wih Lymphoma feels!!!!!! Thank you.
Liked by Teresa, Volunteer Mentor, Jackie, Volunteer Mentor
Hi, there, shaker1956. Everybody is so different, obviously. But your doctor should be able to stage you, for starters, then you have some idea. I bet he/she means stage 1 or 2, maybe with Follicular Non-hodgkins, and plans to follow you and treat your symptoms? I obviously am not a doctor but have had 2 types of Lymphoma. Have they decided to treat the anemia? That can make you uncomfortable, for sure. Generally I think that tiredness and pain can be associated with Lymphoma, and who knows whatever. We are all so different… Effexor does have a lot of possible side effects. I think that you should not be miserable, and that your provider should maybe consider a different medication for depression, because there are a lot of different ones… I wish you good luck. gp
Hi GP. Thanks for the info. I have been off Effexor since 11Jun so I dont know if I’m feeling the effects of withdrawal or what but I do know its not right. See the cancer Doctor on Thursday and my family Doctor on Tuesday. Then I know what I’ll be dealing with. I do know I will never ever take Effexor again. If I need something it will be probably Prozac that I’ll try. But ‘m hoping to not have ti be on any AD’s at all. Enjoy your evening!!!
Liked by Jackie, Volunteer Mentor
@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Liked by Teresa, Volunteer Mentor, Justin McClanahan, Lisa Lucier, Connect Moderator
Hello Jackie. Thanks so much for your post. Going through a boatload of feelings here as I wont know what I’m dealing with until this coming Thursday when I have my first app’t at the Cancer Centre. I do know how crappy I’ve been feeling though!!!! Lol. I’ve decided to no contact Dr Google as I know I will drive myself nuts just reading. I’m dealing with daily headaches as well as sore stimach as I also have an enlarged spleen which I’m told is part and parcel of all this Lymphoma stuff. I’m also 11 weeks removed from taking a drug called Effexor and I think I have some sid effects from the withdrawal. How does one feel when you have Lymphoma???? Trying to get a few answers so I know what I may be dealing with. Sure not enjoying feeling like this. Enjoy your day…..
@shaker1956 I think we all feel differently based on the location of the lymph nodes involved?
My issue is on and off chest pain, supposedly due to gerd. Its just ironically located in the area near thymus where they found several swollen lymph nodes.
Yea I Dr. GOOGLED at first, when I got through reading everything online I had four malignant brain tumors, a heart murmur, and prostrate cancer. And I dont even have a prostate.
Personally I think our illnesses end up with illnesses?
It took months to start feeling better. They gave me acid reflux medicine.
Now as time went on the lymph nodes shrunk and the chest pains subsided? Once in awhile they come back then I have to try remember everything I put in my mouth. To see if that is culprit.
I also am more anxious now then before so a hang toenail makes my mind wonder is this caused by lymphoma. Lol.. That was a bit exaggerated but close to how my mind words.
I have to constantly remind myself im not dying.cause not only are they watching my lymphoma I am under surveillance for cecum cancer a breast spot, gerd and a glaucoma suspect.
The Drs today are so good they find things you didn't even know you had. Seriously.
It could be several.months till you feel better.
Are you well enough to hit a gym and workout? It may help speed up the healing? Ask your Dr about this?
You are eligible for a free twelve week workout assessment through the Livestrong strong program offered at a local YMCA.
Exercising I think helps.
Now if you find yourself dr googling post on her. I will answer as soon as I can.
Right now I just cruising the highway. So im free to chat.. Hubby is driving.. Lol
Liked by Teresa, Volunteer Mentor, gingerw
Hey TravelG. Thanks for the reply. I guess everyone dies feel different when it comes to some types of Cancer. I will just have to wait a few more days and see what they have in store for me. I’m told they take a bllod sample, make you wait an hour so they can analyze it and then the Doc sits diwn with you with a plan. I do exercise a lot. I walk my dog everyday as well as I cycle at least 10km’s. But I find my energy level is not where it was a month ago. I also start playing hockey next week so I’m really looking forward to that. Enjoy your day…..
That's exactly how the doctors at "my" clinic do it. I am always reassured when my doc does it just like somebody else….
Well it sure will take the guessing out of it. And hopefully onto feeling better!!!!!! Tired of the crappy feeling!!!!!
@shaker1956 I will touch back with you on thursday to see what the Doc says.
Hang in there it gets better.
Liked by Teresa, Volunteer Mentor, Lisa Lucier, Connect Moderator
Wow. I really gotta start proofreading before I press the post reply button. Lolol
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