Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

Is it getting better now?

I just joined and am quite interested in the comments I’ve read so far, my problem is the fecal incontinence I experience, I currently use Lomotil, pin. Any other suggestions would be greatly appreciated!

It comes an goes, but as a rule I have loose bowel movements every morning, I’m a nurse, work in a doctors office so I usually don’t eat all day

@vickeyb - Welcome to Mayo Clinic Connect!
As you can see from reading the posts there are many members with gastrointestinal problems. Even with the same diagnosis, an illness presents in different ways.
It is comforting for me to see I’m not alone - we learn from each other.
Have you had any testing done for your history of diarrhea and fecal incontinence? How old are you and do you have other health problems?

@stellawf - Hi! I’m just checking in to see how you are doing?

I am 74. I have dealt with IBS or so they thought for years. This all started with a bad case of bronchitis where I was put on antibiotics for weeks, that resulted in my getting c-diif with terrible diarrhea.
After that I have been experiencing acute colitis randomly. I have had a CT of the abdomen which showed a pancreatic cyst. I have had a US upper endoscopy where biopsy was done, the Gastro oncologist said we will just watch the cyst and do an MRI every 2 yrs
I was just at my Gastro’s office yesterday and we are increasing my Welchol to 2 tabs 2 times daily, also new blood work will be done, a VIP test for the pancreatic cyst
It just gets so discouraging!

It’s reassuring that the oncologist is following your pancreatic cyst.
Another question- did you have colonoscopies with the episodes of acute colitis?
I looked up Welchol to check on side effects- one is constipation!
My personal experience is years of IBS plus autoimmune colitis, then the reverse with chronic constipation and more recently some fecal incontinence- which I won’t tolerate. Had a recent colonoscopy- one of many through the years- and diagnosis chronic constipation. With this condition, loose stool runs outside the large amount of stool and causes loose stools and leakage. I have started taking Amitiza- there is improvement and less leakage. I still have to give it some time.
Do you think something like this could apply to you?

I was just diagnosed with LC just 2 weeks ago. What advice would you have and what things have you learned. I can’t get into a gastro at Mayo until the end of Nov. I have so many questions. Probiotics? Supplements? Budesonide? I have dealt with my celiac diagnosis like a champ. This LC diagnosis is a whole new beast.

I have collagenous colitis. None of the prescribed medications worked for me. I am now on Entyvio infusions. I am much better, relieved all my symptoms.
Hope you get the right medication to help you.

Awesome!! So glad you are better. There is much more known about treatment for CC. I look forward to better days.
Thanks!!