1. < Digestive Health

Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

Posted by mpratto @mpratto, Nov 30, 2016

I have been fighting Lymphocytic Cholitis for a long time and it is getting worse. I really need some advise on how to live with this.

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lighthouseceliac | @lighthouseceliac | Mar 1 3:48pm
In reply to @jlp2 "Well, that's not good! I am sorry you had that experience. The info I saw about..." + (show)
@jlp2

Well, that's not good! I am sorry you had that experience. The info I saw about it was mixed results, so I thought I would ask on this forum to see if anyone had tried. I read that CBD oil can help with inflammation, so it seems like it might be worth a try, but I wouldn't want to have the experience you had, that's for sure! Thanks for responding…

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Try it, I read the same things. It just might work for you. That’s the only way to find out.

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tenpro | @tenpro | Mar 3 1:37pm
In reply to @lija "To answer your question, I am watching my diet, excercising, drinking more water and less coffee...." + (show)
@lija

To answer your question, I am watching my diet, excercising, drinking more water and less coffee. No creamer which really gives me problems! I eat lots of salads and vegetables. My doctor advises if I am going to eat them, to steam or microwave instead of raw! Even salads! (Well, I haven’t tried salads that way yet!). No skins or rough vegetables. No lactose or histamine releasing foods for awhile or artificial sweeteners except Stevia. Use Mega Spore probiotic (50 billion). Eat chia seeds or psyllium husk and ground turkey breast instead of beef (no red meat). No bread, instead corn tortillas, rice, potatoes, or quinoa. Popcorn for snacks. This is info I received at Mayo. I have just started but am willing to try anything they think will help!! If anyone has any things that help them, please let me know!

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Best probiotics are via prescription, Visabone. Pure, high dose and need your doctor to advise on quantity, no OTC is worth taking,waste of $$$$$

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parker63 | @parker63 | 2 days ago
In reply to @lija "I am joining as I was diagnosed with lymphocytic colitis at Mayo five months ago. I..." + (show)
@lija

I am joining as I was diagnosed with lymphocytic colitis at Mayo five months ago. I was prescribed budesonide 3 mg. It has helped. I have just returned to my doctor. He says I will probably need to take this for the rest of my life! I am now down to 1 cap. every other day.

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I have taken this script, for many years, on and off. At the beginning I’d take a round of it, and symptoms would go away a year , before increasing symptoms. If I’m off the script now ,5 to 9 stools a day😕 any suggestions, get concerned about , side affects, Rheumatoid arthritis.

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