Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

Posted by mpratto @mpratto, Nov 30, 2016

I have been fighting Lymphocytic Cholitis for a long time and it is getting worse. I really need some advise on how to live with this.

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

Becky, Volunteer Mentor | @becsbuddy | Apr 6, 2022

In reply to @cgc57 "Diagnosed with Lymphocytic (microscopic) colitis. Causes and treatment? diet related?" + (show)

@gcg57. There is a lot of information on The Mayo Clinic website. If you scroll to the bottom of this page, in the blue section on the left, there is a link to Mayoclinic.org. You can simply enter lymphocytic colitis in the search space that comes up. Hopefully, you’ll find what you need. The link to the discussion, that i gave you before, also has a lot of good information.
https://www.mayoclinic.org/diseases-conditions/microscopic-colitis/diagnosis-treatment/drc-20351483
Will you let me know what you can learn?

migizii | @migizii | Apr 6, 2022

In reply to @becsbuddy "Good morning @cgc57 I’m so sorry I didn’t see your posting until today. How long have..." + (show)

In reply to @cgc57…. My lymphocytic colitis began a few years ago and my doctor at the time made me discontinue a medication that he felt was contributing to the problem (zoloft). I eat a pretty clean diet and with this medication being stopped, my symptoms have been much improved with flares that are less intense and less frequent.

cgc57 | @cgc57 | Apr 7, 2022

In reply to @migizii "In reply to @cgc57…. My lymphocytic colitis began a few years ago and my doctor at..." + (show)

Do you think Trazadone could also contribute to lymphocytic colitis?

Becky, Volunteer Mentor | @becsbuddy | Apr 7, 2022

In reply to @cgc57 "Do you think Trazadone could also contribute to lymphocytic colitis?" + (show)

@cgc57 i found this article about medications and their possible connection with lymphocytic colitis.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5318339/
I haven’t read the article yet but the idea is interesting. My autoimmune disease caused lymphocytic lesions on my brain. Will you let me know if you learn something?

Colleen Young, Connect Director | @colleenyoung | Apr 7, 2022

In reply to @cgc57 "Diagnosed with Lymphocytic (microscopic) colitis. Causes and treatment? diet related?" + (show)

I've added this discussion to the Digestive Health group too: https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/

Here are some related discussions:
- Lymphocytic Colitis/Collagenous Colitis: https://connect.mayoclinic.org/discussion/lymphocitic-cholitis/
- Lymphocytic Colitis: https://connect.mayoclinic.org/discussion/lymphocytic-colitis/

migizii | @migizii | Apr 7, 2022

In reply to @cgc57 "Do you think Trazadone could also contribute to lymphocytic colitis?" + (show)

In reply to @cgc57….I don’t know how your body may react to certain medications, but Becky’s entry you may find very helpful.

lighthouseceliac | @lighthouseceliac | Aug 17, 2022

I was just diagnosed with LC just 2 weeks ago. What advice would you have and what things have you learned. I can’t get into a gastro at Mayo until the end of Nov. I have so many questions. Probiotics? Supplements? Budesonide? I have dealt with my celiac diagnosis like a champ. This LC diagnosis is a whole new beast.

carolyne | @carolyne | Aug 18, 2022

In reply to @lighthouseceliac "I was just diagnosed with LC just 2 weeks ago. What advice would you have and..." + (show)

I have collagenous colitis. None of the prescribed medications worked for me. I am now on Entyvio infusions. I am much better, relieved all my symptoms.
Hope you get the right medication to help you.