Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

Lymphocytic colitis…what kind of diet is best?

Ask your doc about chronic microscopic colitis which can only be diagnosed with a biopsy of tissue taken during a colonoscopy. After 25+ years of suffering, this was diagnosed 3 years ago. Avoid lactose, limit gluten, avoid cruciferous vegetables, eat small meals frequently. When have particularly bad flareup, I avoid most food, activity, rest and drink water. There are meds your gastro can prescribe that may help. It is curable, but mine does not respond to meds.

Discuss Rx options with doctor. Learn pros and cons. This is a very personal decision.

In addition, for me, after 20+ years, and undergoing both many stool and blood lab tests identifying high level food sensitivities, plus developing a high awareness of my reactions to anything/everything i consume and adjusting my intake accordingly has helped immensely.

I am much better after combining a short-term commitment to Rx and a full-time, high level commitment to dietary limitations.
Journaling your intake helps ID problem foods

Best wishes, q

Has anyone tried CBD oil to help with symptom relief? If so, did you have good results?

Hi, anyone out there..started amitiza and side effects are really awful. I have always suffered terrible allergies to most drugs. Has anyone experienced this. I’ve been on here for a few years because in 2921 due to severe motility I was scheduled twice for total colectomy but wanted to fight so I canceled both times. I’m running out of steam. I’ve tried everything,trust me and now backtracking a third time. Maybe it’s just time to toss in the towel and get the surgery. I have no life,always sick from drugs or over the counter meds. We’ve tried everything. Any ideas anyone.
Thanks…Joanne

@mothermary1
Welcome back Joanne! I’m sorry you are still suffering without relief.
I’m taking Amitiza and Motegrity now. Some days good others not. Helps in the long run I think.
I got a CC letter this week with some interesting information.
It’s an implanted nerve stimulator called Medtronic’s InterStim.
This indication was for fecal incontinence so I don’t know if it would apply to you.
Check it out!

After taking cholestyramine and using Pepto Bismol for a long time, the cholestyramine stopped working, along with the Imodium I took off and on. Then I developed A-fib which meant I could no longer take Pepto Bismol because it contains aspirin. Finally, after checking online, I eliminated lactose, gluten, nuts, uncooked fruits and vegetables, and so forth from my diet. It changed my life! I'm keeping a food diary now to learn how to eat. Why didn't my gastroenterologist tell me about this?!

Have you been tested for celiac disease?

I did and it sent me into a 3 day panic episode. Some find great relief though.

Colestipol has help me tremendously.