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pattymac
@pattymac

Posts: 88
Joined: Oct 13, 2011

Lung nodules & scared!

Posted by @pattymac, Mar 19, 2017

March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can’t even think. Advice please

REPLY

@pattymac

Thank you and right now you all are my lifeline! I’m glad I made it to mass even though late mass:) I keep blaming myself bc I put on so much weight ( I’ve been walking and changed to plant based diet weeks ago), also former smoked but quit when I found out I was pregnant with my now 30 year old!I will try to calm down but hate the waiting. Kind of wish I would have let that ER Dr admit me and do all the tests in February!

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My first name is Patty:) And I just noticed my picture is sideways lol! Hmm wonder what happened there!

@kaystrand

Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait…..6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.

Now I’m 8 months into MAC drugs and I’m feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it’s scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don’t always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that’s scary, but also they told me it looked “infectious”- there are antibiotics for infections and things they can do for you after you know what’s going on. Stay with the Forum and know most of us here have felt numb and scared too….you’ll be ok!!

Kay S

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Ground glass is a abnormal finding on a Ct scan. I was just saying Ct scans show all kinds of crazy stuff, mine did and I’mOk. Finding a good pulmonary doc is key. It’s so hard to go thru the worry but you do get through it!!Kay

@kaystrand

Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait…..6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.

Now I’m 8 months into MAC drugs and I’m feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it’s scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don’t always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that’s scary, but also they told me it looked “infectious”- there are antibiotics for infections and things they can do for you after you know what’s going on. Stay with the Forum and know most of us here have felt numb and scared too….you’ll be ok!!

Kay S

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what city and state do you live? maybe someone is close and can help you find a local Doc

@kaystrand

Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait…..6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.

Now I’m 8 months into MAC drugs and I’m feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it’s scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don’t always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that’s scary, but also they told me it looked “infectious”- there are antibiotics for infections and things they can do for you after you know what’s going on. Stay with the Forum and know most of us here have felt numb and scared too….you’ll be ok!!

Kay S

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Michigan city Indiana

I forgot to mention that when I had stress test done the other day bc of chest fluttering ( passed treadmill nuclear test) and waiting on images! I went bc I was scheduled for a knee replacement and cardiologist wanted me to have stress test first so now I don’t know if I can still have one or not? I have a great cardiologist and he helped when I had my PEs.

@pattymac

I forgot to mention that when I had stress test done the other day bc of chest fluttering ( passed treadmill nuclear test) and waiting on images! I went bc I was scheduled for a knee replacement and cardiologist wanted me to have stress test first so now I don’t know if I can still have one or not? I have a great cardiologist and he helped when I had my PEs.

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What’s PEs?

@kaystrand

Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait…..6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.

Now I’m 8 months into MAC drugs and I’m feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it’s scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don’t always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that’s scary, but also they told me it looked “infectious”- there are antibiotics for infections and things they can do for you after you know what’s going on. Stay with the Forum and know most of us here have felt numb and scared too….you’ll be ok!!

Kay S

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@rayhastings, Ray, sorry to disagree .. but I’m a great believer in doing our own “due diligence” in checking our a doctor’s bios and credentials .. just because one person “likes” a doctor .. frankly that doesn’t do it in my book. I’ve just had to do this too many times with my husband’s medical issues and seen the variations in doctors .. just my opinion. To each their own. Katherine

Liked by pattymac

@pattymac

I forgot to mention that when I had stress test done the other day bc of chest fluttering ( passed treadmill nuclear test) and waiting on images! I went bc I was scheduled for a knee replacement and cardiologist wanted me to have stress test first so now I don’t know if I can still have one or not? I have a great cardiologist and he helped when I had my PEs.

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Pulmonary embolism, blood clots in my lungs.

I need a biopsy:(

I’m really scared now!

@pattymac

I’m really scared now!

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I just had a surgical biopsy and lung resection in December. I had a new nodule in my upper left lobe that was 1.1 cm. Biopsy was negative for cancer but that is how I was diagnosed with MAI. I was also very nervous about it, especially since my mom and maternal grandfather died of lung cancer. Worrying doesn’t do anything. My way to deal with it was to tell EVERYONE what was happening, that way I had A LOT of people praying for me and sending positive energy. There are a lot of people on this forum who will be doing the same for you. Gina K

I picked up report today to read myself and it’s a mass that is” There is a hypermetobolic right hiler/Supra hiler mass present, which appears to partially encase the superior margin of the right bronchus at its lateral margin.The most hypermetobolic focus is seen along the posterior margin of the distal trachea where there is a peak of 13.9 present. There is also a hypermetobolic lower right paratracheal lymph node present measuring 9.2 peak SUV.”
I’m not sure how bad this is but in December it was a 3.5 cm nodule so will I die fast from this?

@pattymac

I’m really scared now!

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First I want to say, You have a beautiful
smile! Breath deep and imaginevyou are blowing away those fears as you begin to
help your lung issue be blown away!
Take time out for “you” & tell your nervous system to be calm and help you heal… this is whatbI had to learn after I had lung cancer with a 3cm tumor, ground glass
pulmonary fibrosis and a nodule!
That was 9 years and 3 months ago… And to boot, I never smoked! So,with most of my left lung gone, I decided to live! Live one moment and one hour and one day with gratefulness. Then it dawned on me,
life is great because I choose to stop trying to be in control ! Lung cancer became my blessing, i ran a 5k race in 50 states in celebration of my 5?years of survival… a 10knin 4 continents and Insumired Kilimanjaro in August 2016!
Get a second opinion with a team of doctors who support you! Know you are not alone!!!
so let’s stay Connected! You are braver than you realize because you had. outage to share your honest fears! I want you on my team! You deserve a big hug!
linda

@pattymac

Thank you and right now you all are my lifeline! I’m glad I made it to mass even though late mass:) I keep blaming myself bc I put on so much weight ( I’ve been walking and changed to plant based diet weeks ago), also former smoked but quit when I found out I was pregnant with my now 30 year old!I will try to calm down but hate the waiting. Kind of wish I would have let that ER Dr admit me and do all the tests in February!

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Mass as in church? : )

Dearest darling Patty mac:
Only God knows the answer to your question. I am sorry you are do ScareD! Yikes!

One of my doctors said, “We learn a lot more about our lungs, than we ever wanted to know, don’t we …after our scary diagnosis! Then he told me he was diagnosed with lung cancer during his residency! He had a second scare a few years ago…We both are happy he is alive, happy and practicing medicine and just saw his son graduate from medical school!
You are a survivor! So breath deep and imagine you are blowing away the fear and the disease, because you are not alone! I am so happy you chose to share your journey on Connect. You make me feel sane! I want you on my team, you will be ok! Thank you for sharing and please keep us posted!
You deserve a Great Big Hug,
linda

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