Lung Cancer and Looking to 2019 and Beyond

Posted by Merry, Volunteer Mentor @merpreb, Dec 30, 2018

Happy New Year everyone! In a couple of days it will be a new year, new experiences and a new year of hope. I wish for peace, health and happiness for all of you.
For myself I hope for no new lesions and an answer for the cause for multifocal adenocarcinoma of the lung, and exactly what it is.
What are your hopes for 2019? What do you wish for?
Merry

Happy New Year to You too Merry! Thank you for all of your messages here.
I will go for another CT scan during the first week of the new year. Hopefully the scan will show that the chemo & radiation treatments helped.
Next up will be full brain radiation as preventative. Praying for a better New Year. 2018 has been stressful.

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@lady1lake, thank you. I go for my follow-up CT scan in early February. I hope that you can keep your anxiety down to a minimum. I never can. Just thinking about it gives me the willies! 2018 was definitely a horribly stressful year. Best luck on the scan and please let me know! Have your treatments ended?

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@merpreb happy new year! Hope and faith are keeping us alive. Tomorrow we will get my husband' s scan results. I' m so scared…the blood tests were good. Ah, very bad weather here with cold and rain and my husband is very sensitive to cold, he doesn' t want to go out, so very sad and lonely holidays. My heart goes to everyone who' s suffering and I hope for better days. Take care…

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@maraki

@merpreb happy new year! Hope and faith are keeping us alive. Tomorrow we will get my husband' s scan results. I' m so scared…the blood tests were good. Ah, very bad weather here with cold and rain and my husband is very sensitive to cold, he doesn' t want to go out, so very sad and lonely holidays. My heart goes to everyone who' s suffering and I hope for better days. Take care…

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@maraki– thank you.
That's positive about your husband's blood work. And it's a good sign.!

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@merpreb

@lady1lake, thank you. I go for my follow-up CT scan in early February. I hope that you can keep your anxiety down to a minimum. I never can. Just thinking about it gives me the willies! 2018 was definitely a horribly stressful year. Best luck on the scan and please let me know! Have your treatments ended?

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Thank you for asking Merry. All of my scheduled chemo/radiation treatments are finished. Now have to make an appt. with radiologist for Mayo recommendation of full brain radiation. Am praying that today’s CT scan doesn’t show any new developments.

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lady- I'm with you on this! Keeping my talons crossed. Let me know, if you wish, how you made out.

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@merpreb

lady- I'm with you on this! Keeping my talons crossed. Let me know, if you wish, how you made out.

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I am just finishing up the last 2 barium drinks before going for the CT scan. Will probably not get results until Friday.

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lady- Oh god, I hate the wait.

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@colleenyoung
I also appreciated the mentioning of Lung Cancer; as I just learned that the property in which I currently reside, is over a Waste site/dump! My friend also confided in myself and told me many Women living in the Townhouses on our property have Breast Cancer! My Asthma has been so exacerbated by the construction on our property, which is being upgraded, that my new Pulmonologist added a Nebulizer to my medications! I am personally furious with my Management Company; as they have been lying to us as Residents, don't care about our living conditions until things are of an urgent matter, etcetera!
I can't wait to move out of this Complex!

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2019 is off to an excellent start! My CT scan results were good. The small tumor is stabalized at its half shrinkage size shown on the prior scan done 2 1/2 months ago. There were no metatasic signs in any other areas. Thank God. I have an appt. with my radiologist next week to discuss brain radiation. Am doing research to decide whether or not to go forward with that plan. Just feeling like I need some time off without any more therapies. But, since small cell lung cancer is very aggressive it is a worrisome decision.

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@lady1lake

2019 is off to an excellent start! My CT scan results were good. The small tumor is stabalized at its half shrinkage size shown on the prior scan done 2 1/2 months ago. There were no metatasic signs in any other areas. Thank God. I have an appt. with my radiologist next week to discuss brain radiation. Am doing research to decide whether or not to go forward with that plan. Just feeling like I need some time off without any more therapies. But, since small cell lung cancer is very aggressive it is a worrisome decision.

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@lady1lake– Yahoo! Last year I felt the same way. It was a horrible year for me and the amount of tests and procedures and dr.'s visits blurred into one. I finally got a 3 month break away from doctors. Perhaps your radiologist will agree that you can take a bit of time off.

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@rachelanne

@colleenyoung
I also appreciated the mentioning of Lung Cancer; as I just learned that the property in which I currently reside, is over a Waste site/dump! My friend also confided in myself and told me many Women living in the Townhouses on our property have Breast Cancer! My Asthma has been so exacerbated by the construction on our property, which is being upgraded, that my new Pulmonologist added a Nebulizer to my medications! I am personally furious with my Management Company; as they have been lying to us as Residents, don't care about our living conditions until things are of an urgent matter, etcetera!
I can't wait to move out of this Complex!

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@rachelanne– Hello again. I have a nebulizer. When I get Bronchitis it's a savior. It does make me shaky but I'll take that over breathing with difficulty. The delivery of the medicine is what makes it different than an inhaler. All you have to do is sit back and breathe it in! Do you find relief with it? Are you using any inhalers? Have you been able to move?

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Hi Merry- I found your blog posts when I began researching Lung Cancer treatments online and was interested in your story of survival and being a mentor for others with Lung Cancer. My mother in law went to the doctors for pneumonia treatment and when her doctors took an X-ray of her chest, they found multiple spots on her lungs. Her doctor said “it’s most likely cancer”. We were in shock. She went in for a cold and came out a cancer patient. She is getting her CT scan on Thursday and we will know for sure whether it’s cancer or not. In the meantime, my husband and I are lost. Any advice on how to get her better in regards to nutrition, exercise and etc will be greatly appreciated. We have so many questions but don’t know where to start. What is expected to follow if her CT Scan is positive for cancer? Also, can you share your story of survival?

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@conniechoi84 Welcome to Mayo Connect. Thank you for joining us and for your great questions. My blog has my entire journey up until I develop PTSD. My blog is still active. I'm so so sorry that your mother in law has lung cancer. It's terrible disconcerting when you are hit in the head with having cancer. She must have had an Xray. CT scans will bring her closer to a diagnosis. There will be lots of blood work and maybe breathing tests.
Your mother-in-law is very lucky to have the both of you to support her. This is what she will need from now on, if it indeed is cancer.
Don't let her be indolent. Eating, a balanced diet and exercise are the most important things for her right now. She probably isn't getting a good night's sleep but if she can nap encourage her to.
I also suggest that you concentrate on one thing at a time. No what ifs! They will drive you batty. There are no answers to what ifs. The most important psychological thing for your mother is for her to feel in charge. She has just had her world kicked out from under her. She needs to get as much control back as possible. She needs to make all decisions after discussions with you and her doctors. Right now honesty is most important. That days of hiding things from people are long gone, buried deep in history where they belong.
You will be learning an entire new world and vocabulary. Make sure that you line up your priorities, one test, one day at a time. And take care of yourselves as well. If it is cancer than you have a long ride ahead of you.
Please let me know what the results of the CT scan are. And what kind of cancer they think that she might have.

Here is my entire blog so far. I am still writing. https://my20yearscancer.com/ I hope that you pass this on to your mother in law to read.

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@merpreb

@conniechoi84 Welcome to Mayo Connect. Thank you for joining us and for your great questions. My blog has my entire journey up until I develop PTSD. My blog is still active. I'm so so sorry that your mother in law has lung cancer. It's terrible disconcerting when you are hit in the head with having cancer. She must have had an Xray. CT scans will bring her closer to a diagnosis. There will be lots of blood work and maybe breathing tests.
Your mother-in-law is very lucky to have the both of you to support her. This is what she will need from now on, if it indeed is cancer.
Don't let her be indolent. Eating, a balanced diet and exercise are the most important things for her right now. She probably isn't getting a good night's sleep but if she can nap encourage her to.
I also suggest that you concentrate on one thing at a time. No what ifs! They will drive you batty. There are no answers to what ifs. The most important psychological thing for your mother is for her to feel in charge. She has just had her world kicked out from under her. She needs to get as much control back as possible. She needs to make all decisions after discussions with you and her doctors. Right now honesty is most important. That days of hiding things from people are long gone, buried deep in history where they belong.
You will be learning an entire new world and vocabulary. Make sure that you line up your priorities, one test, one day at a time. And take care of yourselves as well. If it is cancer than you have a long ride ahead of you.
Please let me know what the results of the CT scan are. And what kind of cancer they think that she might have.

Here is my entire blog so far. I am still writing. https://my20yearscancer.com/ I hope that you pass this on to your mother in law to read.

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Thank you Merry ☺️ I look forward to reading your blog. I’ll keep you posted throughout this journey!

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