Lung Cancer and Looking to 2019 and Beyond

Posted by Merry, Volunteer Mentor @merpreb, Dec 30, 2018

Happy New Year everyone! In a couple of days it will be a new year, new experiences and a new year of hope. I wish for peace, health and happiness for all of you.
For myself I hope for no new lesions and an answer for the cause for multifocal adenocarcinoma of the lung, and exactly what it is.
What are your hopes for 2019? What do you wish for?
Merry

@conniechoi84

Hi Merry- I found your blog posts when I began researching Lung Cancer treatments online and was interested in your story of survival and being a mentor for others with Lung Cancer. My mother in law went to the doctors for pneumonia treatment and when her doctors took an X-ray of her chest, they found multiple spots on her lungs. Her doctor said “it’s most likely cancer”. We were in shock. She went in for a cold and came out a cancer patient. She is getting her CT scan on Thursday and we will know for sure whether it’s cancer or not. In the meantime, my husband and I are lost. Any advice on how to get her better in regards to nutrition, exercise and etc will be greatly appreciated. We have so many questions but don’t know where to start. What is expected to follow if her CT Scan is positive for cancer? Also, can you share your story of survival?

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conniechoi84 – I just wanted to add that until a biopsy is performed it is only assumed it is cancer. Since they found multiple spots on her lungs I am hoping they will do a CT scan with contrast from the neck to the thighs. They then can see if there are other spots where it may of spread to and give a better idea where to do the biopsy. This can be a long journey so hang in there and thanks for supporting your mother in law.

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@merpreb

@conniechoi84 Welcome to Mayo Connect. Thank you for joining us and for your great questions. My blog has my entire journey up until I develop PTSD. My blog is still active. I'm so so sorry that your mother in law has lung cancer. It's terrible disconcerting when you are hit in the head with having cancer. She must have had an Xray. CT scans will bring her closer to a diagnosis. There will be lots of blood work and maybe breathing tests.
Your mother-in-law is very lucky to have the both of you to support her. This is what she will need from now on, if it indeed is cancer.
Don't let her be indolent. Eating, a balanced diet and exercise are the most important things for her right now. She probably isn't getting a good night's sleep but if she can nap encourage her to.
I also suggest that you concentrate on one thing at a time. No what ifs! They will drive you batty. There are no answers to what ifs. The most important psychological thing for your mother is for her to feel in charge. She has just had her world kicked out from under her. She needs to get as much control back as possible. She needs to make all decisions after discussions with you and her doctors. Right now honesty is most important. That days of hiding things from people are long gone, buried deep in history where they belong.
You will be learning an entire new world and vocabulary. Make sure that you line up your priorities, one test, one day at a time. And take care of yourselves as well. If it is cancer than you have a long ride ahead of you.
Please let me know what the results of the CT scan are. And what kind of cancer they think that she might have.

Here is my entire blog so far. I am still writing. https://my20yearscancer.com/ I hope that you pass this on to your mother in law to read.

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Hi Merry
Diagnosed with adenocarcinoma on April 10th. Pneumonectomy (right lung). May 9th. Just started adjuvant chemo last Tuesday. They said it was light. It's been brutal for the last 4 days. Enough about me, just wanted to give you a little history.
I was looking forward to reading your blog but I'm not able to access it. Could be my browser but thought I'd check with you first.
Happy Tuesday
Diana

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@mdcjb– Good morning and welcome to Mayo Connect. Chemo is the really pits! Different people react differently. I don't know why some people say anything about light in anything regarding chemo. Other than tough side effects form chemo how are you doing with recovering from surgery?
Did you have your entire lung removed or just a part of it? What chemo are they giving you? You might want to switch browsers. Other than that I haven't the slightest idea what to suggest. Do you have anyone at home who could help you with getting my blog?

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@merpreb

@mdcjb– Good morning and welcome to Mayo Connect. Chemo is the really pits! Different people react differently. I don't know why some people say anything about light in anything regarding chemo. Other than tough side effects form chemo how are you doing with recovering from surgery?
Did you have your entire lung removed or just a part of it? What chemo are they giving you? You might want to switch browsers. Other than that I haven't the slightest idea what to suggest. Do you have anyone at home who could help you with getting my blog?

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Hi Merry,
Thank you for the quick response. I will try to view it from my tablet, and then move on to my laptop. I'll get it figured out.
My recovery from the surgery was phenomenal. Or so I'm told lol
I'm still having nerve pain but I am only 7 weeks out.
I had a pneumonectomy, removal of the entire right lung. The thoracic surgeon as well as the nurses have all said my recovery has been much better, and quicker than the highest percentage of patients they see with the same surgery.
Today is day 7since chemo and I'm still vomiting. This can't possibly be right. I've lost another 10 lbs this week. I'm down to 94. Unfortunately, it continues in a downward trend, and obviously not something I'm wanting right now.
Carboplatin and Alimta is what I'm getting. The nausea meds aren't working, and even ice chips cause me to vomit. I've taken to sucking on pieces of watermelon for moisture. I can't swallow the pulp unfortunately.
I am not on the minimum MG available for those drugs, although I was lead to believe I would be. I'm getting 700 mg of one, and 500 mg of the other. I know that's not huge, but definitely higher than the minimal.
I have an appointment tomorrow with the thoracic team, and while there will see if I can maybe meet worh someone from oncology. As of right now, this is not something I care to continue. Especially when no one is willing to give you any idea of the time you may be gaining.
Oh, btw, my tumor was large, about the size of a peach and towards the chest wall. At first no lymph nodes involved but after removal, 3 of 30 did have it. Didn't travel though, just in the ones right by the mass. Like it kinda rolled in there. Lazy cells lol
Gosh, I've written a book. My apologies.
On to my tablet!
Regards,
Diana

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@mdcjb

Hi Merry,
Thank you for the quick response. I will try to view it from my tablet, and then move on to my laptop. I'll get it figured out.
My recovery from the surgery was phenomenal. Or so I'm told lol
I'm still having nerve pain but I am only 7 weeks out.
I had a pneumonectomy, removal of the entire right lung. The thoracic surgeon as well as the nurses have all said my recovery has been much better, and quicker than the highest percentage of patients they see with the same surgery.
Today is day 7since chemo and I'm still vomiting. This can't possibly be right. I've lost another 10 lbs this week. I'm down to 94. Unfortunately, it continues in a downward trend, and obviously not something I'm wanting right now.
Carboplatin and Alimta is what I'm getting. The nausea meds aren't working, and even ice chips cause me to vomit. I've taken to sucking on pieces of watermelon for moisture. I can't swallow the pulp unfortunately.
I am not on the minimum MG available for those drugs, although I was lead to believe I would be. I'm getting 700 mg of one, and 500 mg of the other. I know that's not huge, but definitely higher than the minimal.
I have an appointment tomorrow with the thoracic team, and while there will see if I can maybe meet worh someone from oncology. As of right now, this is not something I care to continue. Especially when no one is willing to give you any idea of the time you may be gaining.
Oh, btw, my tumor was large, about the size of a peach and towards the chest wall. At first no lymph nodes involved but after removal, 3 of 30 did have it. Didn't travel though, just in the ones right by the mass. Like it kinda rolled in there. Lazy cells lol
Gosh, I've written a book. My apologies.
On to my tablet!
Regards,
Diana

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@mdcjb– Good morning. I'm so sorry that you are having a very rough time. I don't like that you are losing so much weight at all unless you are only 3.5' tall. Please, please contact your oncologist and relate how much weight you've lost and that you are vomiting all the time. Are you going back after your chemo for supplemental IV fluids to hydrate you or anything else?

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