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Pain medication changes due to regulations

Posted by cmedina1 @cmedina1, Sep 4 10:03am

I’ve been told twice now by my current doctor that they have to lower my pain medication because they’re being forced to by the government. I myself have lowered my medication twice to cut it in half. I’ve been on this medication for 26 years. I’ve tried to lower it again, but life as you know it changes so quick that I was not able to take care of myself. Now I’m in this position where they will have to lower it. I’m just wondering if anybody else out there has been told the same . Thanks for any input you may have.

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Profile picture for jenatsky
jenatsky | @jenatsky | Sep 15 7:51am
In reply to @jackiet "@jenatsky Could you mention what other pain-relieving drugs you take with the cannabis ? Can/should hydrocodone..." + (show)
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@jenatsky Could you mention what other pain-relieving drugs you take with the cannabis ? Can/should hydrocodone or oxycodone be taken with cannabis ?

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@jackiet it works for me without any ill effects but everybody is different. What works for me may not work for someone else.

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ksrodulski1 | @ksrodulski1 | Sep 15 12:35pm
In reply to @jackiet "@jenatsky Could you mention what other pain-relieving drugs you take with the cannabis ? Can/should hydrocodone..." + (show)
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@jenatsky Could you mention what other pain-relieving drugs you take with the cannabis ? Can/should hydrocodone or oxycodone be taken with cannabis ?

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@jackiet I have taken both with cannabis with no issues. But everyone is different and so are their drs. My pain specialist is fine as long as I have a medical marijuana card.

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mamahun | @mamahun | Sep 15 1:13pm
In reply to @mslee56 "Are you under the care of a pain management specialist or a pc? A pain management..." + (show)
Profile picture for mslee56 @mslee56

Are you under the care of a pain management specialist or a pc?
A pain management doc can help you a lot more than a primary care doc.
I was denied my meds for about 2 years and it was just awful.
I am seeing a great rheumatologist now and the monthly injections of Cimzia I get in her office for RA are so helpful. I also take a muscle relaxer and an opioid 3 times a day. It is all working together now and my pain levels are manageable.

Good luck on your pain management journey.

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@mslee56 I wish they would give us something other then gabapentin or Pregabalin. I can’t take this pain anymore

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reemylove | @reemylove | Sep 15 3:33pm
In reply to @reemylove "@tyyne21wigwam Yes i take hydrocodone for pain but if you change do tors would they still..." + (show)
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@tyyne21wigwam
Yes i take hydrocodone for pain but if you change do tors would they still give me pain meds that I truly need

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@reemylove
I dont know but some doctor's dont believe I'm pain meds

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jackiet | @jackiet | Sep 15 4:24pm
In reply to @ksrodulski1 "@jackiet I have taken both with cannabis with no issues. But everyone is different and so..." + (show)
Profile picture for ksrodulski1 @ksrodulski1

@jackiet I have taken both with cannabis with no issues. But everyone is different and so are their drs. My pain specialist is fine as long as I have a medical marijuana card.

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@ksrodulski1 Thanks much. I appreciate your response.

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christine2076 | @christine2076 | Sep 16 9:03pm

I take medical cannabis with Targin and Endone (Australia) with no bad effects. The cannabis is CBD oil only.
The CBD oil addresses the muscle spasm for fibromyalgia but I need to take some THC for bad arthritis and severe pain. In NSW Australia we cannot legally drive with THC in our bloodstream This combination works well for me.. My cannabis specialist has told me there is an interaction with warfarin a blood thinner but other things should be ok
Christine

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cecilyl | @cecilyl | Sep 16 11:08pm
In reply to @tyyne21wigwam "As far as I have read in California,and maybe US, it would be illegal to withhold..." + (show)
Profile picture for tyyne21wigwam @tyyne21wigwam

As far as I have read in California,and maybe US, it would be illegal to withhold opioids from anyone who has been in your situation. I have had several doctors who would not see me at all and one that cut my prescription in half. They probably can refuse you as a patient,but can't reduce or stop success that you have now. Maybe it is possible to find a doctor that sees it differently. I have been able to do that
I am very concerned about doctors that think nsaids or physical therapy is all you need. I have had back problems for 30 years
It takes all I have to deal with pain. I now try mindfulness and meditation. I feel no one really gets how bad pain is. I do. I never give up and am now researching nalu neuro stimulation and a small electrical nerve stimulator,but it hAs some negatives

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@tyyne21wigwam Back problems are tough ones.
NSAIDS have their "dark side" as well. I've said to my PRP that I'd rather take one Vicodin, maybe two, instead of six Advils or whatever number of Tylenols to deal with pain.
PT is good but it's not a magic bullet.
Great you don't give up!
How is the meditation working?
I don't know about Nalu or the stim devices for backs, but see if they give you a trial period to see if it works. If you feel it's not enough time, say so.
I had a Curonix put in over my not great knee replacement a few months ago and it's worked very well.
The trial and permanent implant post op were painful (for me) though. This isn't always the case.

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rustyjones | @rustyjones | Sep 17 8:36am

i have been taking OxyContin for years It seems like it is made of GOLD it is so hard to get it I have found a pharmacy where I get it every month I am holding on to them I have been in the past looking up pharmacies in the phone book and asking if they had it I have called like 10 pharmacies in the past trying to get ,my prescription filled and nobody had it and they all say with the new laws or whatever that the government would only allow them to get so many pills and that they were reserved for their regular customers then insurance is also a night mare not wanting to pay for it. I have paid $1000 in one case at a particular pharmacy and another time I paid $600 for my prescription, and this is with insurance My pain is so bad that I can't get out of bed or do anything at all without it it is just ridiculous

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cecilyl | @cecilyl | Sep 17 7:32pm
In reply to @rustyjones "i have been taking OxyContin for years It seems like it is made of GOLD it..." + (show)
Profile picture for rustyjones @rustyjones

i have been taking OxyContin for years It seems like it is made of GOLD it is so hard to get it I have found a pharmacy where I get it every month I am holding on to them I have been in the past looking up pharmacies in the phone book and asking if they had it I have called like 10 pharmacies in the past trying to get ,my prescription filled and nobody had it and they all say with the new laws or whatever that the government would only allow them to get so many pills and that they were reserved for their regular customers then insurance is also a night mare not wanting to pay for it. I have paid $1000 in one case at a particular pharmacy and another time I paid $600 for my prescription, and this is with insurance My pain is so bad that I can't get out of bed or do anything at all without it it is just ridiculous

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@rustyjones That's horrible for you!
Is there another pain med or "procedure" that might help?
Have you tried Medfinder for pharmacies?
Good Rx can have decent rates. I use them when I've gotten Hydrocodone/Vicodin-that's not covered by my insurance.
Depending where you have pain there are some options to do as well as meds.

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mamahun | @mamahun | Sep 18 7:25am
In reply to @rustyjones "i have been taking OxyContin for years It seems like it is made of GOLD it..." + (show)
Profile picture for rustyjones @rustyjones

i have been taking OxyContin for years It seems like it is made of GOLD it is so hard to get it I have found a pharmacy where I get it every month I am holding on to them I have been in the past looking up pharmacies in the phone book and asking if they had it I have called like 10 pharmacies in the past trying to get ,my prescription filled and nobody had it and they all say with the new laws or whatever that the government would only allow them to get so many pills and that they were reserved for their regular customers then insurance is also a night mare not wanting to pay for it. I have paid $1000 in one case at a particular pharmacy and another time I paid $600 for my prescription, and this is with insurance My pain is so bad that I can't get out of bed or do anything at all without it it is just ridiculous

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@rustyjones how did you get a prescription for them. I would love to know. I have tried everything they offer and I can’t get them

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