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Strange symptoms rapidly worsening -back pain, vibrating legs and body

Posted by tennis123 @tennis123, Jun 3, 2023

I have been having extremely weird symptoms and I've been having a hard time getting in to see a neurologist. I have been having extremely bad low back pain for about 6 months now with weird tingly sensations in the area. It has progressed and gotten severe and now am having muscle spasms in my legs and pelvic area. I am now also experiencing a vibrating sensation in my pelvis and both legs if I sit down. If I lay back and put any pressure on my spine, I am now experiencing it throughout my whole body. It only occurs when putting pressure on my back. If I lay down on my stomach it doesn't occur. Has anyone heard of this?

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rcgibson81 | @rcgibson81 | 21 hours ago
In reply to @tennis123 "Hi, I've made a post in another group but I am convinced that I may have..." + (show)
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Hi,

I've made a post in another group but I am convinced that I may have a form of neuropathy, so I thought I would post here and see if anyone has any advice or has experienced similar symptoms.

I am in my late 20s and have been having strange symptoms for a few years that have been having a waxing and waning kind of pattern. The symptoms include tingling, whole body fasciculations, muscle tightness and spasms. Most recently for the past few months, I have been having terrible hot flashes with excessive sweating on the central areas of my face, terrible neck and back pain (tightness with sharp stabbing, burning areas of pains in random areas of my spine), and worse tingling/fasciculations/spasms. My muscles have started shaking when doing things such as if I squat down or lean my head on my arm, when this sort of thing never happened previously. When I sit down my entire lower body feels like it's vibrating. I haven't received a diagnosis, and I don't know what to do at the point as everything seems to be worsening and I'm at my wits end. I have had all sorts of testing and everything has come back normal. It is worsening so fast that I'm considering going to the ER but I know it would probably be a massive money sink without much benefit. Has anyone experienced anything similar or have any advice?

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@tennis123 Hello, I know this post is almost 3 years old, but I am having some of the exact same symptoms. Did you ever get any answers about the vibrating in your lower body while sitting? I have the vibrations you describe, and I have terrible hot flashes (I am perimenopausal though), terrible neck and lower back pain - the muscles are unbelievably tight and knotted, so much so that massage only helps for about a day or two and they are right back to being tight. My muscles shake, and the biggest issue is the lower body vibrating that I have while sitting, mostly in my left leg. The pain goes from my low back down into my hip and down my leg all the way to my left foot. The vibrating/buzzing/pulsating that happens drives me crazy. I have had 5 brain MRIs and two neck MRIs with no serious issues being diagnosed. They say I have stenosis and bulging discs, and I also have occipital neuralgia. I am about to get an MRI of my low back and left hip to see what could be going on there. I have also been waking up at night with heart racing certain I am having a heart attack, so I see cardiology tomorrow. I was diagnosed with POTs in 2023, so not sure if it is a POTs flare up or some new issue that has decided to appear. Every time I have been to the ER for any weird symptoms they tell me they can't find anything and send me home with papers saying I have an anxiety disorder. Well of course I'm anxious, anyone would be if they had this many crazy symptoms every day. Last ER visit $32k was billed to my insurance company, and I got absolutely no answers except I have anxiety 🙁

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