Strange symptoms rapidly worsening -back pain, vibrating legs and body

Hi,

I've made a post in another group but I am convinced that I may have a form of neuropathy, so I thought I would post here and see if anyone has any advice or has experienced similar symptoms.

I am in my late 20s and have been having strange symptoms for a few years that have been having a waxing and waning kind of pattern. The symptoms include tingling, whole body fasciculations, muscle tightness and spasms. Most recently for the past few months, I have been having terrible hot flashes with excessive sweating on the central areas of my face, terrible neck and back pain (tightness with sharp stabbing, burning areas of pains in random areas of my spine), and worse tingling/fasciculations/spasms. My muscles have started shaking when doing things such as if I squat down or lean my head on my arm, when this sort of thing never happened previously. When I sit down my entire lower body feels like it's vibrating. I haven't received a diagnosis, and I don't know what to do at the point as everything seems to be worsening and I'm at my wits end. I have had all sorts of testing and everything has come back normal. It is worsening so fast that I'm considering going to the ER but I know it would probably be a massive money sink without much benefit. Has anyone experienced anything similar or have any advice?

Hi,

I've made a post in another group but I am convinced that I may have a form of neuropathy, so I thought I would post here and see if anyone has any advice or has experienced similar symptoms.

I am in my late 20s and have been having strange symptoms for a few years that have been having a waxing and waning kind of pattern. The symptoms include tingling, whole body fasciculations, muscle tightness and spasms. Most recently for the past few months, I have been having terrible hot flashes with excessive sweating on the central areas of my face, terrible neck and back pain (tightness with sharp stabbing, burning areas of pains in random areas of my spine), and worse tingling/fasciculations/spasms. My muscles have started shaking when doing things such as if I squat down or lean my head on my arm, when this sort of thing never happened previously. When I sit down my entire lower body feels like it's vibrating. I haven't received a diagnosis, and I don't know what to do at the point as everything seems to be worsening and I'm at my wits end. I have had all sorts of testing and everything has come back normal. It is worsening so fast that I'm considering going to the ER but I know it would probably be a massive money sink without much benefit. Has anyone experienced anything similar or have any advice?

@tennis123 Hello, I know this post is almost 3 years old, but I am having some of the exact same symptoms. Did you ever get any answers about the vibrating in your lower body while sitting? I have the vibrations you describe, and I have terrible hot flashes (I am perimenopausal though), terrible neck and lower back pain - the muscles are unbelievably tight and knotted, so much so that massage only helps for about a day or two and they are right back to being tight. My muscles shake, and the biggest issue is the lower body vibrating that I have while sitting, mostly in my left leg. The pain goes from my low back down into my hip and down my leg all the way to my left foot. The vibrating/buzzing/pulsating that happens drives me crazy. I have had 5 brain MRIs and two neck MRIs with no serious issues being diagnosed. They say I have stenosis and bulging discs, and I also have occipital neuralgia. I am about to get an MRI of my low back and left hip to see what could be going on there. I have also been waking up at night with heart racing certain I am having a heart attack, so I see cardiology tomorrow. I was diagnosed with POTs in 2023, so not sure if it is a POTs flare up or some new issue that has decided to appear. Every time I have been to the ER for any weird symptoms they tell me they can't find anything and send me home with papers saying I have an anxiety disorder. Well of course I'm anxious, anyone would be if they had this many crazy symptoms every day. Last ER visit $32k was billed to my insurance company, and I got absolutely no answers except I have anxiety 🙁

@tennis123 Hello, I know this post is almost 3 years old, but I am having some of the exact same symptoms. Did you ever get any answers about the vibrating in your lower body while sitting? I have the vibrations you describe, and I have terrible hot flashes (I am perimenopausal though), terrible neck and lower back pain - the muscles are unbelievably tight and knotted, so much so that massage only helps for about a day or two and they are right back to being tight. My muscles shake, and the biggest issue is the lower body vibrating that I have while sitting, mostly in my left leg. The pain goes from my low back down into my hip and down my leg all the way to my left foot. The vibrating/buzzing/pulsating that happens drives me crazy. I have had 5 brain MRIs and two neck MRIs with no serious issues being diagnosed. They say I have stenosis and bulging discs, and I also have occipital neuralgia. I am about to get an MRI of my low back and left hip to see what could be going on there. I have also been waking up at night with heart racing certain I am having a heart attack, so I see cardiology tomorrow. I was diagnosed with POTs in 2023, so not sure if it is a POTs flare up or some new issue that has decided to appear. Every time I have been to the ER for any weird symptoms they tell me they can't find anything and send me home with papers saying I have an anxiety disorder. Well of course I'm anxious, anyone would be if they had this many crazy symptoms every day. Last ER visit $32k was billed to my insurance company, and I got absolutely no answers except I have anxiety 🙁

Hi,

I am in my 20s and have started having symptoms that have been worsening. The symptoms include hot flashes with profuse episodes of facial sweating, waxing and waning neck and back pain (which has now progressed to always being in pain in some area of my neck/spine), muscle spasms in my pelvic area and legs, fasciculation in legs, vibrating sensation in back and both legs (sometimes I can feel the muscles in my thighs and physically feel them moving/tremoring very very fast). My legs have recently started vibrating/tremoring/shaking when I'm standing up (I am very scared). The pain is usually dull/boring pain along with nerve like pain like sharp pains. It sometimes feels like my entire spine/spinal cord is being pulled on from my neck all the way down into my lumbar spine. I had a non contrast MRI of my entire spine months ago before the symptoms got as bad as they are now. I am very scared and am having the worst time getting into a neurologist. I've had repeated workups that have been negative such as acute phase reactants and autoimmune panels etc. Has anyone experienced anything like this? It almost feels like the inside of my spine is inflamed throughout the length of it or something structural maybe in my neck causing pain all down my spine.