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Low Dose Naltrexone and Neuropathy

Posted by lorirenee1 @lorirenee1, Jan 6, 2020

Hi everyone. Lori Renee here. I have been on Low Dose Naltrexone for about 2 weeks. It may be too soon to post about this medication, but I thought I would post now, and post again, in about 2-4 weeks. Bottom line is that Low Dose Naltrexone has helped considerably with my foot neuropathy. My pain is sometime gone, and usually only reaches a level 5 or so, sometimes. Usually, it is about a 2-3, kind on a low level foot throbbing. Enough to be annoying, but not enough to want to cut my feet off. Without it, I wanted to cut my feet off. Certain problems do remain, so my feet are far from normal still. I put on shoes, and feel like my socks are bunched up, or that there are pebbles in them. It takes me a long time to find a shoe to wear. The balls of my feet still feet like they have been stuck in cement, but not all the time. My toes still feel stuck together, or too widely spread. All crazy sensations of neuropathy. So Low Dose Naltrexone has not taken all the crazies away. However, the pain is so much lower, that I am amazed. I have only used Kratom once in two weeks, which is remarkable. I have no side effects at all from the drug. It is not covered by my Medicare insurance, but is about 35 bucks a month. Not too bad. Anyway, it really is the best pain killer I have tried, other than Kratom. I don't have to taste the vile Kratom, so that is very good. I suggest that everyone give it a try. I read that it helps approximately 25% to 40% of people that try it. The endorphin rush it produces is loaded with pain fighters. Yes, give it a try. I will post again about it, as I use it more. Love to all, Lori Renee

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patrick17 | @patrick17 | Sep 7, 2020
In reply to @jesfactsmon "@rwinney @patrick17 Hi Guys, we received an order from a pharmacy in NJ about 2 months..." + (show)
@jesfactsmon

@rwinney @patrick17 Hi Guys, we received an order from a pharmacy in NJ about 2 months ago and it too has been "just sitting" on a counter. Linda is a good candidate as she takes no opiates whatsoever. But on any given night she worries so much about getting to sleep that she is afraid it might affect it negatively. I believe her plan is to wait until the weather cools down to start it, as she feels she sleeps better when it's not hot out. I too want to express my thanks to you Patrick, for thinking to update us on your status. Sorry to hear it hasn't helped so far. Wishing for it to start to work at the 5mg dose. Best, Hank

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@jesfactsmon Hi Hank, I can understand your wife’s reluctance to take low dose naltrexone. I think it is often prescribed to take at night. I tried taking it at night, but I was tossing and turning all night. After a couple of nights I switched to taking it in the morning. I didn’t have problems with sleeping then. There’s a low dose naltrexone group on Facebook and some people there said they take LDN in the morning. Apparently it still helps them. The unfortunate thing with LDN is that for some people it takes several months before it works, if it does work. On the positive side, there are few side effects and you can stop taking it at anytime.
Patrick

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1 reply
bustrbrwn22 | @bustrbrwn22 | Sep 7, 2020
In reply to @lioness "@rwinney. Just read your post about your pain from neck to fingers I have this from..." + (show)
@lioness

@rwinney. Just read your post about your pain from neck to fingers I have this from fibro and found when I use Topricin on neck where the nerves come from eventually the burning, tingling goes away Have you tried this Rachael?

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I just tried Topricin and it does relieve some of the pain. I slather it on the bottom of my feet and try to follow asleep while it air dries. Thanks so much! Should I cover my feet instead?

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1 reply
Hank | @jesfactsmon | Sep 7, 2020
In reply to @patrick17 "@jesfactsmon Hi Hank, I can understand your wife’s reluctance to take low dose naltrexone. I think..." + (show)
@patrick17

@jesfactsmon Hi Hank, I can understand your wife’s reluctance to take low dose naltrexone. I think it is often prescribed to take at night. I tried taking it at night, but I was tossing and turning all night. After a couple of nights I switched to taking it in the morning. I didn’t have problems with sleeping then. There’s a low dose naltrexone group on Facebook and some people there said they take LDN in the morning. Apparently it still helps them. The unfortunate thing with LDN is that for some people it takes several months before it works, if it does work. On the positive side, there are few side effects and you can stop taking it at anytime.
Patrick

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@patrick17
Well I will tell her about this info; thanks for the tips Patrick. You are a helpful person! (Can always use another one of those 'round these parts 👌). Hank

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sunnyflower | @sunnyflower | Sep 7, 2020
In reply to @patrick17 "@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either...." + (show)
@patrick17

@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either. It is somewhat rare. I was seen by several doctors before one of them, a neurologist, diagnosed it. I even had surgery on my neck which I probably didn’t need because it didn’t help my condition. I wish I could have a “do over” on the surgery. Perhaps the surgeon had never seen anyone with Parsonage Turner syndrome. Thanks for your kind words and thoughts! I wish you healing as well.
Patrick

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Thanks for your kind words Patrick. I'm sorry to hear your surgery didn't help! Whatever you do, get a 2nd opinion if you do decide to proceed w/ a potential re-do. I'm doing that now w/ 2 neurosurgeons for my "severe" spinal stenosis. I keep being told I'm very high risk. Ug. Fondly, Sunnyflower

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bustrbrwn22 | @bustrbrwn22 | Sep 7, 2020

I am so sorry to hear that for both of you!

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lioness | @lioness | Sep 7, 2020
In reply to @bustrbrwn22 "I just tried Topricin and it does relieve some of the pain. I slather it on..." + (show)
@bustrbrwn22

I just tried Topricin and it does relieve some of the pain. I slather it on the bottom of my feet and try to follow asleep while it air dries. Thanks so much! Should I cover my feet instead?

Jump to this post

@busterbrown Glad it gives you relieve the only thing I can think of it would keep the heat in on it might work give it a try and see let me know

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patrick17 | @patrick17 | Oct 18, 2020

This is a follow up to my September 5th post about my experience with low dose naltrexone. I took LDN for 6 months starting at 0.5 mg and increased by 0.5 mg about every two weeks to 4.5 mg. Unfortunately, LDN didn’t help me. I’ve been off it for several weeks and haven’t noticed any change in my pain. It was worth a try, but I wasn’t one of the lucky people who have been helped by LDN.

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Hank | @jesfactsmon | Oct 18, 2020

@patrick17
Thank for posting this update. Not glad at all about this, either for you or for my wife. She is still waiting to start it as she wants to finish experimenting with another supplement first. Sorry it didn't work for you but do appreciate you letting us know. Best, Hank

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runnergirl | @runnergirl | Dec 21, 2021

Hi, @lorirenee1 - any update on the LDN? Are you still taking it and finding it helpful?

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bcool123 | @bcool123 | Nov 18, 2022

Just read 2020 posts about Naltrerxone for PN. My PN causes my feet to absolutely freeze. Anyone have experience with Naltrerxone helping freezing feet? Appreciate any input. Cold feet in Colo. Bcool123

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