Low Dose Naltrexone and Neuropathy

Posted by lorirenee1 @lorirenee1, Jan 6, 2020

Hi everyone. Lori Renee here. I have been on Low Dose Naltrexone for about 2 weeks. It may be too soon to post about this medication, but I thought I would post now, and post again, in about 2-4 weeks. Bottom line is that Low Dose Naltrexone has helped considerably with my foot neuropathy. My pain is sometime gone, and usually only reaches a level 5 or so, sometimes. Usually, it is about a 2-3, kind on a low level foot throbbing. Enough to be annoying, but not enough to want to cut my feet off. Without it, I wanted to cut my feet off. Certain problems do remain, so my feet are far from normal still. I put on shoes, and feel like my socks are bunched up, or that there are pebbles in them. It takes me a long time to find a shoe to wear. The balls of my feet still feet like they have been stuck in cement, but not all the time. My toes still feel stuck together, or too widely spread. All crazy sensations of neuropathy. So Low Dose Naltrexone has not taken all the crazies away. However, the pain is so much lower, that I am amazed. I have only used Kratom once in two weeks, which is remarkable. I have no side effects at all from the drug. It is not covered by my Medicare insurance, but is about 35 bucks a month. Not too bad. Anyway, it really is the best pain killer I have tried, other than Kratom. I don't have to taste the vile Kratom, so that is very good. I suggest that everyone give it a try. I read that it helps approximately 25% to 40% of people that try it. The endorphin rush it produces is loaded with pain fighters. Yes, give it a try. I will post again about it, as I use it more. Love to all, Lori Renee

@lioness

@rwinney. Just read your post about your pain from neck to fingers I have this from fibro and found when I use Topricin on neck where the nerves come from eventually the burning, tingling goes away Have you tried this Rachael?

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Hi @lioness! Thanks for your message. I do have Topricin (per your recommendation) and have used to use it on various body parts including my shoulders. It has provided minimal relief.

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@rwinney

Hi @lioness! Thanks for your message. I do have Topricin (per your recommendation) and have used to use it on various body parts including my shoulders. It has provided minimal relief.

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My shoulders cant handle bedtime because I'm a side sleeper. Every morning I wake in burning pain and aching through my shoulders. I can avoid it if I sleep in my recliner. The other thing are the days when from my shoulder down is pins, needles, and numbness with burning. Who on earth would have ever imagined a body can have multiple pain descriptions.

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@rwinney

Hi @lioness! Thanks for your message. I do have Topricin (per your recommendation) and have used to use it on various body parts including my shoulders. It has provided minimal relief.

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@rwinney Oh good Im glad to hear you have tried it like all creams you get relief for a couple of hours then more needed . Not sure when people try my remedies. Thanks for replying Rachael

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@rwinney

My shoulders cant handle bedtime because I'm a side sleeper. Every morning I wake in burning pain and aching through my shoulders. I can avoid it if I sleep in my recliner. The other thing are the days when from my shoulder down is pins, needles, and numbness with burning. Who on earth would have ever imagined a body can have multiple pain descriptions.

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I am a side sleeper too. My physical therapist told me beside putting a pillow between my legs to have a pillow that I kind of hug. I think what this does is it supports the shoulder that is on top and by adjusting the pillow (a pretty firm pillow) you can sort of push your upper shoulder back relieving the strain on the upper back and shoulder muscles. Try it and see if it helps.

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@catharbert

I am a side sleeper too. My physical therapist told me beside putting a pillow between my legs to have a pillow that I kind of hug. I think what this does is it supports the shoulder that is on top and by adjusting the pillow (a pretty firm pillow) you can sort of push your upper shoulder back relieving the strain on the upper back and shoulder muscles. Try it and see if it helps.

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@catcando Thank you very much for your suggestion!

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@rwinney

@patrick17 I have neuropathy through shoulders, arms and hands with the right (dominant side) being worse. My pain flares on it's own. For instance, I can wake up with my hands feeling as though someone stomped on them with workbooks. Or they can feel fine until I use them. For instance the fine motor skills of writing, typing or gripping. They burn, ache, pain, and may have shooting pains. I've never thought of compression gloves but I do understand the theory. Another for instance …when my right side from shoulder down is burning and paining so awful, I lay on it to apply pressure. Same idea I suppose as the gloves. Do you mind sharing the symptoms and type of pain you experience in your hands? The best natural solution for me is to wrap my mine in either heat or ice depending on the type of pain. Thanks for any input you can offer.
Best,
Rachel

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@rwinney Hi Rachel, I’m so sorry for all of your pain. The nerve pain I have is from Parsonage Turner syndrome. It started out as severe pain in my right shoulder. Little did I know at the time that it was more than just shoulder pain. After several weeks I noticed tingling and pain in my arm and eventually it spread to my hand affecting three fingers. After 3 1/2 years I still have pain from my elbow to my hand in my right arm. My left hand has pain, but it is not nearly as bad as my right hand. I have the same pain that you have – burning, tingling, and occasionally shooting pain. Mine is pretty constant, 7 out 10 normally. On bad days it’s an 8. Most any activity I do makes it worse, but I know that after a while it will return to my normal level of pain. I use ice also when the pain is real bad. None of the many creams I’ve tried have helped at all.

As I said compression gloves help a lot. I wear ones with open fingertips because it’s easier to do things with your hands. The brand I mostly use is Isotoner. They are easy to get on and off because they stretch. Ones that are difficult to take off only cause more pain. Another brand I tried recently is ZZCARE. They are very reasonably priced. I like the way they feel when they are on, but are a little more difficult to take off. I find myself wearing a ZZCARE glove on my right hand and an Isotoner glove on my left hand because it’s easier to take off when I need to. As you can tell I’m not fashion conscious!

Rachel, I hope this information will help you.
Patrick

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@rwinney

@patrick17 I have neuropathy through shoulders, arms and hands with the right (dominant side) being worse. My pain flares on it's own. For instance, I can wake up with my hands feeling as though someone stomped on them with workbooks. Or they can feel fine until I use them. For instance the fine motor skills of writing, typing or gripping. They burn, ache, pain, and may have shooting pains. I've never thought of compression gloves but I do understand the theory. Another for instance …when my right side from shoulder down is burning and paining so awful, I lay on it to apply pressure. Same idea I suppose as the gloves. Do you mind sharing the symptoms and type of pain you experience in your hands? The best natural solution for me is to wrap my mine in either heat or ice depending on the type of pain. Thanks for any input you can offer.
Best,
Rachel

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@rwinney Hi Rachel, I would definitely add the compression gloves to your arsenol. They may help. Sometimes I use compression socks for my feet, and that helps at times. Other times, the compression is too great. I also notice that putting heavy pillows on my feet also help, so yes, maybe compression will help you. Oy, this is all so hard. Love to you, Lori

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Any specific type of compression glove?

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@patrick17

@rwinney Hi Rachel, I’m so sorry for all of your pain. The nerve pain I have is from Parsonage Turner syndrome. It started out as severe pain in my right shoulder. Little did I know at the time that it was more than just shoulder pain. After several weeks I noticed tingling and pain in my arm and eventually it spread to my hand affecting three fingers. After 3 1/2 years I still have pain from my elbow to my hand in my right arm. My left hand has pain, but it is not nearly as bad as my right hand. I have the same pain that you have – burning, tingling, and occasionally shooting pain. Mine is pretty constant, 7 out 10 normally. On bad days it’s an 8. Most any activity I do makes it worse, but I know that after a while it will return to my normal level of pain. I use ice also when the pain is real bad. None of the many creams I’ve tried have helped at all.

As I said compression gloves help a lot. I wear ones with open fingertips because it’s easier to do things with your hands. The brand I mostly use is Isotoner. They are easy to get on and off because they stretch. Ones that are difficult to take off only cause more pain. Another brand I tried recently is ZZCARE. They are very reasonably priced. I like the way they feel when they are on, but are a little more difficult to take off. I find myself wearing a ZZCARE glove on my right hand and an Isotoner glove on my left hand because it’s easier to take off when I need to. As you can tell I’m not fashion conscious!

Rachel, I hope this information will help you.
Patrick

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@patrick17 Thank you very much for the detail. Your post not only helped me but, may help others as well. We can never have too many tips to learn from. Thanks again and if I could, I would wish your pain away for you. Take care.
Rachel

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@patrick17

@rwinney Hi Rachel, I’m so sorry for all of your pain. The nerve pain I have is from Parsonage Turner syndrome. It started out as severe pain in my right shoulder. Little did I know at the time that it was more than just shoulder pain. After several weeks I noticed tingling and pain in my arm and eventually it spread to my hand affecting three fingers. After 3 1/2 years I still have pain from my elbow to my hand in my right arm. My left hand has pain, but it is not nearly as bad as my right hand. I have the same pain that you have – burning, tingling, and occasionally shooting pain. Mine is pretty constant, 7 out 10 normally. On bad days it’s an 8. Most any activity I do makes it worse, but I know that after a while it will return to my normal level of pain. I use ice also when the pain is real bad. None of the many creams I’ve tried have helped at all.

As I said compression gloves help a lot. I wear ones with open fingertips because it’s easier to do things with your hands. The brand I mostly use is Isotoner. They are easy to get on and off because they stretch. Ones that are difficult to take off only cause more pain. Another brand I tried recently is ZZCARE. They are very reasonably priced. I like the way they feel when they are on, but are a little more difficult to take off. I find myself wearing a ZZCARE glove on my right hand and an Isotoner glove on my left hand because it’s easier to take off when I need to. As you can tell I’m not fashion conscious!

Rachel, I hope this information will help you.
Patrick

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Hi patrick17, I am so sorry for the pain you describe here! Really sorry! I have never even heard of Parsonage Turner syndrome so I will look it up and learn about it. I wish for you healing, comfort, support and many, many blessings. Warmest regards, Sunnyflower

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@cnn

Any specific type of compression glove?

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@cnn The two brands of compression gloves that I like are Isotoner and ZZCARE. They are on Amazon as well as many others. It’s important to get the right size. They usually show how you should measure your hand for each of the brands. Please see my post to @rwinney from earlier today for more information.

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@sunnyflower

Hi patrick17, I am so sorry for the pain you describe here! Really sorry! I have never even heard of Parsonage Turner syndrome so I will look it up and learn about it. I wish for you healing, comfort, support and many, many blessings. Warmest regards, Sunnyflower

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@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either. It is somewhat rare. I was seen by several doctors before one of them, a neurologist, diagnosed it. I even had surgery on my neck which I probably didn’t need because it didn’t help my condition. I wish I could have a “do over” on the surgery. Perhaps the surgeon had never seen anyone with Parsonage Turner syndrome. Thanks for your kind words and thoughts! I wish you healing as well.
Patrick

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