Low Dose Naltrexone and Neuropathy

Posted by lorirenee1 @lorirenee1, Jan 6, 2020

Hi everyone. Lori Renee here. I have been on Low Dose Naltrexone for about 2 weeks. It may be too soon to post about this medication, but I thought I would post now, and post again, in about 2-4 weeks. Bottom line is that Low Dose Naltrexone has helped considerably with my foot neuropathy. My pain is sometime gone, and usually only reaches a level 5 or so, sometimes. Usually, it is about a 2-3, kind on a low level foot throbbing. Enough to be annoying, but not enough to want to cut my feet off. Without it, I wanted to cut my feet off. Certain problems do remain, so my feet are far from normal still. I put on shoes, and feel like my socks are bunched up, or that there are pebbles in them. It takes me a long time to find a shoe to wear. The balls of my feet still feet like they have been stuck in cement, but not all the time. My toes still feel stuck together, or too widely spread. All crazy sensations of neuropathy. So Low Dose Naltrexone has not taken all the crazies away. However, the pain is so much lower, that I am amazed. I have only used Kratom once in two weeks, which is remarkable. I have no side effects at all from the drug. It is not covered by my Medicare insurance, but is about 35 bucks a month. Not too bad. Anyway, it really is the best pain killer I have tried, other than Kratom. I don't have to taste the vile Kratom, so that is very good. I suggest that everyone give it a try. I read that it helps approximately 25% to 40% of people that try it. The endorphin rush it produces is loaded with pain fighters. Yes, give it a try. I will post again about it, as I use it more. Love to all, Lori Renee

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@julkun

How do you get Low Dose Naltrexone? Any side effects? Thank you!!!

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Any doctor can prescribe it but discussing it with a pain doctor would be helpful. I have not had any side effects. Check here for details:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf

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I have had no side effects but take it as prescribed to avoid any problems. Check here for information:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf

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@solobeee1

I have had no side effects but take it as prescribed to avoid any problems. Check here for information:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf

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Thanks, be well!!

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@solobeee1

I have had no side effects but take it as prescribed to avoid any problems. Check here for information:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf

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Thanks for the info. Stay Well!!

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@kle

Hi, My pain management doctor prescribed it to me. It has to be compounded. I recently have bloat and I'm questioning if this is due to naltrexone. I tend to be sensitive to a lot of medication though.

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Thanks for the response and your reminder to everyone that all meds can have a different effect on each individual.

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Is this still going well with you?

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@asergio714

Is this still going well with you?

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Yes it is!

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@lorirenee1

@jeffrapp Hi Jeff, The 50 mg pill is the regular Naltrexone. It is not the Low Dose Naltrexone. That is not the right pill. You must find a pharmacy that will make this Low Dose Naltrexone, 4.5 mg. pill for you. Furthermore, you generally start out at about 3.0 mg., and have to work up to 4.5 mg. after 3 days. It is called a "compounding pharmacy" that you have to find. The pharmacist, literally, makes the LDN special order, just for you. You cannot just cut up the 50 mg. regular Naltrexone pills. You will not get the dosage right. Good luck, and give it a try. Lori

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Hi Lori. Just saw your original post on LDN a few days ago & was able to get in to see my doctor. She just emailed saying a local compounding pharmacy has naltrexone 4.5 mg tablets, but you said 3.0mg is what you start out taking? Do you take just one per day? I take Hydro at 3:00pm or so, because that's when the hardcore pain usually starts. It would be nice to have some relief during the day as well, so I thought the LDN might be good to take in the morning. Any input would be greatly appreciated. I would really like to try this & am glad I found your post. Thank you.

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I've read several articles regarding LDN's effectiveness with neuropathy pain relief. Does anyone have experience trying LDN, or additional information?

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@rawbar533

I've read several articles regarding LDN's effectiveness with neuropathy pain relief. Does anyone have experience trying LDN, or additional information?

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I read:
Low-dose naltrexone (LDN) has increased in popularity as a non-opioid medication that may decrease chronic pain symptoms. LDN is most commonly used to treat fibromyalgia, complex regional pain syndrome (CRPS), and painful diabetic neuropathy.

I did not think naltrexone was usable since it was for treating opioid and acholol abuse.

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