Love is all there is

Posted by georgescraftjr @georgescraftjr, Mar 19 12:29pm

Good morning from a fellow sleep-deprived caregiver.

First, whether you believe in God or not, I want you to know that I believe that there is a positive force in this Universe and that there are good people (like our Mayo Clinic Connect Community Director), who have our backs.

Second, I also want to share that it doesn't matter whether or not the "calvary is...coming," as long as you love.

From a caregiver's perspective, love often feels like a one-way street, especially when the person for whom we provide care doesn't smile, can't talk, or never initiates tenderness. Although any of those scenarios may be hurtful, they are also gifts: Pain teaches us to open our hearts even further than we realize is possible, and to continue to give all the love we have. As the song goes:

https://genius.com/Sheryl-crow-love-is-all-there-is-lyrics

At the end of this journey, it matters not how much we acquired or achieved in this life: all that really matters is whether we loved regardless of whether we feel we were loved in return. (When we feel lacking in love, perhaps we have unrealistic expectations, or we have lost sight of God's eternal love.)

And when we on occasion ask God, "where are you God?," the answer may be found in many things of grandeur--and in many small moments of grace or good fortune. For example, several months ago, I left the keys in the ignition of my car with the engine running while I was at the doctor's office with my husband; but no one drove off with our car. Another example: Last night I left the garage door open, and the door that leads into our house from the garage unlocked; but we did not have any intruders. (Hopefully, these examples of my mindless acts will make some of you feel better about yourselves--real life, action heroes!--and about things like losing or misplacing your keys, glasses, wallets, etc. (things we do when we are overtired or overwhelmed).

In closing, again, love--and keeping our perspective and sense of humor--is all that matters; so we can't sweat the little things. To drive this point home, I want to share a story: I called a fellow caregiver and told her that my husband rinsed his urinal in our kitchen sink. She laughed so hard, and could barely speak when she was telling me that her husband rinsed his diapers in her kitchen sink because he didn't want her to know that he had diarrhea!

Be well, and enjoy the day because this is the BEST day. It keeps going downhill from here; so be grateful and prepare yourselves for the journey ahead. My heartfelt thank to the members of this forum.
You are my calvary.

Love and prayers,
George's Wife

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Sorry for the typos. Also, I meant to say "morale boost."

REPLY

I found that little typo particularly charming -- thought maybe the vixen in you was coming out! 🙂

I am so sorry that the caregiving did not work. Does your husband stay up all night and wander when you two are sleeping together?

I have 24x7 caregivers but the caregiver is in another room and my husband and I still sleep together. The blessing for all of us is that my husband sleeps through from 8 PM until about 7 AM. Someone checks on his diapers after midnight and removes the pad and/or inner diaper ( We put two on him for ease at night) if they are wet.

It was not always the case that he slept through, but stopping his water intake early really helped when he was waking up to go to the bathroom 4 times every night (with me helping of course).

Regarding feeding the caregivers. OMG. Not needed. My caregivers bring and prepare their own food and eat it when they want and when it works given our schedule. I understand that other people make a different arrangement, but my goodness, that is a whole different level of inconvenience that I don't think any of us can afford!

All the best.

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I think you are doing an admirable job taking care of your husband! Good for you! My husband had lung cancer and for about a year before he died in 2024 we were getting up 4 times a night so he could use his nebulizer to handle his terrible breathlessness. I understand what you are going through. We loved each other very much like I'm sure you and George do also. It can be physically hard taking care of someone but when they are gone you wish you could do it all over again no matter how much sleep you didn't get and just hug them one more time.

It sounds like the caregivers were no help at all! You did a better job than they did! You even made them breakfast! We didn't have anyone come in. My husband didn't like the idea of strangers in the house and neither did I.

I'm so glad that you have God in your life at this time! That is very helpful. My husband and I prayed everyday and God was there for us. My husband lived 14 years with stage 4 lung cancer. Now I'm alone but I have God and Jesus and all the angels. They are always there for me and I am so grateful.
I'll say a prayer for you and George. It's so wonderful how you are caring for him! I wish you the best.
PML

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