Loss of taste after liver transplant

Posted by kaegee @kaegee, Dec 9, 2018

Hi everyone, my husband is 14 days post liver transplant. He has completely lost his sense of taste and even worse, nearly all food and drink (besides water) taste awful to him. Has anyone else experienced this? Do you know what medication causes it? Does it go away? What did you find you could tolerate the taste of to eat or drink?

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@arqui02000

RoseMary sure I can share to the group the Liver Transplant experience I had since May 14-2020. At Monday 01-Nov-2022 the Endoscopy have done and doctor informed there is not any varices in the esophagus and my stomach look normal. This means to me the medicine Beta Block is working reducing the portal hypertension. Nadolol helps with this but not CURE the cirrosis by next December 07 I have video appointment with hepatology doctor and I have many questions one of this is where is the doctors plan? is he plan to do the Tips? or he will keep me taking the medicine so the Cirrosis runs it self until my liver stop function well ?

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Arqui, those are good questions. Did you have a chance to ask the doctor your questions during the video appointment? What did you learn?

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@kaegee - I didn’t loose my sense of taste, but food did taste terrible after transplant. It happened in the hospital right after the transplant. The nurses said that it happens.
After a month I ended back in the hospital for malnutrition. They put a feeding tube down my nose- it was horrible. I had to commit to drinking a minimum of 3 boosts a day and trying to get something in my stomach in between.
I ended up taking a cbd/thc edible, which was approved by one of the transplant surgeons. I am small so I only took 1/2. It helped quit a bit. At about 3 months post transplant I started eating more normally. I only took the edibles for 1 month and only at night. There are also prescriptions your doctor can give your husband to try to increase appetite.

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