I have posted a few months back, when my son, 27, was suddenly diagnosed with a primary brain tumor in left temporal lobe on December 12, 2018. After 3 brain surgeries and 6 weeks of brain and spine radiation, He spent 4 months, fighting like the warrior he is, battling what was a rare Glioblastoma and Embryonal Tumor (CNS) hybrid Tumor .. The tumor in his brain ended up a mix of Embryonal, which meant tumors spread throughout brain and in spinal cord via cerebral spinal fluid. April 10th, after all treatments to fight this monster cancer were exhausted, the tumors came back and my precious son passed in hospice on April 17. It has been unbearable, as those on this site know all too well. I know we all grieve for our losses, parents aren’t supposed to write the obituary and plan a service for their child, nor their siblings. Is there anyone that has experienced this type of brain tumor that leaves the brain, travels throughout the CNS and paralyzes a soldier of 9 years to not leave a hospital bed until Hospice. I am desperately looking for other people who experienced this type of cancer as it is rare and leaves me and my family completely at a loss as to cause. We are told it is due to cells splitting abnormally and more molecular and very rare and “extremely bad luck “. Our docs and medical team have been wonderful but so much unknown about this hybrid of tumor.
Holly Derek’s mom
Liked by Scott, Volunteer Mentor