Losing weight due to MAC

Posted by Flib @flib, Jul 24, 2019

I understand that weight loss is part of the MAC experience. I keep losing. I am 5’7” and weigh 95lbs down from 120 over the two past years. The loss seems to be accelerating. Quite worried and I welcome any suggestions or sharing. Flib

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@colleenyoung

@esssbeee I moved your message and question about how to stabilize weight with MAC to this existing message about weight loss. I did this so your question along with @sueinmn's fabulous response would also help others who are talking about this and keep all the suggestion in one place.

I agree with consulting a nutritionist. Esssbeee, in addition to weight loss, have you loss your appetite? Or is eating not a problem, it's just that the weight doesn't stay on?

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Eating is not a problem for me although I do forget to eat! Used to laugh when I heard people say this. No nausea. For the first time in my life I am not feeling guilty when I crave and eat pizza! I even indulge in a full strength beer while doing so! Still the weight continues to come off! Wish I could bottle this!

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@esssbeee

Eating is not a problem for me although I do forget to eat! Used to laugh when I heard people say this. No nausea. For the first time in my life I am not feeling guilty when I crave and eat pizza! I even indulge in a full strength beer while doing so! Still the weight continues to come off! Wish I could bottle this!

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No you don’t!!!

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@irene5

No you don’t!!!

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Ever since being diagnosed with bronchiectasis, keeping weight on is challenging. I have been very fortunate in not developing any long term infections to this point but my interest in eating comes and goes. I find myself forgetting to eat as their is occasionally no interest which I know is very bad for my overall health. @sueinmn has some wonderful ideas to help and I do try to force myself to eat, although keeping food with me has to be more of a priority. To get sick without some weight as a cushion is concerning.

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@esssbeee

All my life I have fought weight gain. Now, I am losing weight without wanting to do so. Recently diagnosed with MAC. Waiting to be seen at NJH before starting any treatment. Only symptoms are continuing weight loss, extreme fatigue and cough, controlled by airway clearance with 3% hypertonic saline via nebulizer. Am eating everything I want to eat. Still losing weight! Any ideas to help stabilize weight? Thanks!

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@esssbeee Hi there. I too lost weight rapidly at the height of my infection. I went from 142 lbs to 116. I was losing like 4 lbs aweek. I thought surely I must have cancer. Once the antibiotics started kicking in and killed the infection; my weight came back on. I am now at 130 lbs and do not wish to add more. I still eat food with fattening ingredients to maintain my weight. I move a lot so I am not likely to become overweight. I know it is hard to eat when you have no appetite whatsoever and nothing tastes good. You have to be creative and make what food you can eat really count. Rice and avocados are very high in calories. Cucumbers and celery are good inflammation killers. In fact, celery juice is now a big thing for treating inflammation (which is the root of most diseases). Keep me posted on how you are doing and if you come across some good high calorie recipes.

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Thank you for your positive comments and suggestions!

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