Looking for a doctor who isn’t

Posted by jsnfltn @jsnfltn, Jul 29 12:28pm

Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had stroke like symptoms but no stroke. Her symptoms are light headed, brain fog, tumors, left side body tingling, extreme tiredness, head pressure and racing heart. We have seen many doctors including neurologist with no diagnosis or treatment. They say it’s made up but they have witnessed the tumors. We believe this could be long COVID or vaccine related. We are looking for a doctor who isn’t afraid to diagnose that if that is it and treat if possible. We live in southern IN but will travel if need. Any advice?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

covidstinks2023 | @covidstinks2023 | Jul 30 7:55am

jsnfltn, I agree that it's Long COVID or vaccine related. Is there a Covid Recovery Clinic near your are an
Integrative Medicine doctor close by that treats Long COVID symptoms?

Praying for her and you. Blessings & Prayers....

beachbum | @arichards3 | Jul 30 8:22am

@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC and to Mayo Clinic Rochester. All tests showed normal (and of course I knew better with PEM, Exercise Intolerance, Rocking, Brain Fog) and my symptoms began within 2 weeks of my first and last Moderna booster. I never gave up and turned to Doctors YouTube and Google happily discovering there are small groups of Doctors and Medical Journalists worldwide working to help people with LC. Good news is in my case all treatment is virtual working through my local GP. If you feel you've exhausted all local possibilities suggest you spend many hours on YouTube finding, listening, studying. Best wishes and don't ever give up.

ejrussell1 | @ejrussell1 | Jul 30 8:44am

Worth looking into.
Saved my life and sanity after 5 years of long COVID with no help. It has all been remote, zoom or telephone.
Stay strong and be kind to yourself ❤️‍🩹
Contact info below ⬇️

jsnfltn | @jsnfltn | Jul 30 10:45am

In reply to @covidstinks2023 "jsnfltn, I agree that it's Long COVID or vaccine related. Is there a Covid Recovery Clinic..." + (show)

Not that we can find but we are still looking.

lkoch | @lkoch | Jul 30 10:50am

In reply to @ejrussell1 "Worth looking into. Saved my life and sanity after 5 years of long COVID with no..." + (show)

Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason why I ask is because I just started going to an acupuncturist/Chinese herbalist after exhausting all my other options and everything she has tried has made my symptoms a million times worse. She keeps on saying we are taking it very slow and that I am doing great. But I don’t feel like I am. She also likes to look at my tough for clues I guess. I know not everyone responds the same. Would like your input. Thank you.

bmekdeci | @bmekdeci | Jul 30 11:10am

In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)

Acupuncture has helped many members of my friends and family with sports injuries, but it doesn't work for me. Both acupuncture and massage make me feel worse, sometimes for days. It is disappointing because I really believe in acupuncture's ability to heal many conditions.

jsnfltn | @jsnfltn | Jul 30 4:56pm

In reply to @arichards3 "@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC..." + (show)

Beach bum, can u share your clinics or doctors phone numbers who u are working with? Would like to see if they can help us.

Thanks

beachbum | @arichards3 | Jul 31 8:26am

In reply to @jsnfltn "Beach bum, can u share your clinics or doctors phone numbers who u are working with?..." + (show)

@jsnfltn After lots of time spent with Dr YouTube and Dr Google and sorting out the snake oil salesman I selected Dr Bruce Patterson and his team. There are lots of great YouTube videos posted by some wonderful groups of Doctors and Medical Journalists who are trying to help LC sufferers. Spend some time watching those to bring yourself up to speed on what's possible. Those same videos provide all of the contact information, but in Dr Patterson's case (providing the process has not changed since December 2024) it was a very simple step by step beginning with this website below. However, I strongly suggest you spend many hours watching YouTube and Googling about. If you are in the same situation as many there is nobody local who can help.
https://www.covidlonghaulers.com/north-america/home

ejrussell1 | @ejrussell1 | Jul 31 9:03am

In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)

Around 50 ish symptoms, Nuero logical issues. I did not do acupuncture. Diet modification and herbs and essential oils. Rotating quantities and types in 7 week intervals. I’m in the 7th month of the regimen and believe I have recovered to 80% so far. Coming from not even knowing my own name 🤯 and relearning how to talk. Worth a phone call.

annlandi | @annlandi | Jul 31 9:26am

In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)

I have been suffering from long Covid for more than two years (worst symptom is extreme fatigue) and have been to two acupuncturists. Several sessions with needles and expensive herbal medicines and no improvement whatsoever. LC is a viral phenomenon which Chinese medicine is not equipped to treat, and a lot of these people are money-sucking quacks. I advise you give it up.

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