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Recommendations on specific clinics for long COVID

Posted by kentkemmerling1949 @kentkemmerling1949, Oct 27, 2023

I am totally frustrated with the options for getting treated for Long COVID. I have been unable to basically walk since Jan. 2021 and have tried everything I can think of to improve with no help. I know long COVID is a new disease and there is not much known about it, but I am ready to try anything. I tried getting many, many tests, a ton of physical therapy and nothing has helped. I think it has to do with my inner ear and when I get stuffed up, my balance gets even worse. Any suggestions and specific recommendations on doctor or clinics to try???

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lkoch | @lkoch | Jul 30 10:50am
In reply to @ejrussell1 "Worth looking into. Saved my life and sanity after 5 years of long COVID with no..." + (show)
Profile picture for ejrussell1 @ejrussell1

Worth looking into.
Saved my life and sanity after 5 years of long COVID with no help. It has all been remote, zoom or telephone.
Stay strong and be kind to yourself ❤️‍🩹
Contact info below ⬇️

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Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason why I ask is because I just started going to an acupuncturist/Chinese herbalist after exhausting all my other options and everything she has tried has made my symptoms a million times worse. She keeps on saying we are taking it very slow and that I am doing great. But I don’t feel like I am. She also likes to look at my tough for clues I guess. I know not everyone responds the same. Would like your input. Thank you.

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3 replies
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bmekdeci | @bmekdeci | Jul 30 11:10am
In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)
Profile picture for lkoch @lkoch

Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason why I ask is because I just started going to an acupuncturist/Chinese herbalist after exhausting all my other options and everything she has tried has made my symptoms a million times worse. She keeps on saying we are taking it very slow and that I am doing great. But I don’t feel like I am. She also likes to look at my tough for clues I guess. I know not everyone responds the same. Would like your input. Thank you.

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Acupuncture has helped many members of my friends and family with sports injuries, but it doesn't work for me. Both acupuncture and massage make me feel worse, sometimes for days. It is disappointing because I really believe in acupuncture's ability to heal many conditions.

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jsnfltn | @jsnfltn | Jul 30 4:56pm
In reply to @arichards3 "@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC..." + (show)
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@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC and to Mayo Clinic Rochester. All tests showed normal (and of course I knew better with PEM, Exercise Intolerance, Rocking, Brain Fog) and my symptoms began within 2 weeks of my first and last Moderna booster. I never gave up and turned to Doctors YouTube and Google happily discovering there are small groups of Doctors and Medical Journalists worldwide working to help people with LC. Good news is in my case all treatment is virtual working through my local GP. If you feel you've exhausted all local possibilities suggest you spend many hours on YouTube finding, listening, studying. Best wishes and don't ever give up.

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Beach bum, can u share your clinics or doctors phone numbers who u are working with? Would like to see if they can help us.

Thanks

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1 reply
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beachbum | @arichards3 | Jul 31 8:26am
In reply to @jsnfltn "Beach bum, can u share your clinics or doctors phone numbers who u are working with?..." + (show)
Profile picture for jsnfltn @jsnfltn

Beach bum, can u share your clinics or doctors phone numbers who u are working with? Would like to see if they can help us.

Thanks

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@jsnfltn After lots of time spent with Dr YouTube and Dr Google and sorting out the snake oil salesman I selected Dr Bruce Patterson and his team. There are lots of great YouTube videos posted by some wonderful groups of Doctors and Medical Journalists who are trying to help LC sufferers. Spend some time watching those to bring yourself up to speed on what's possible. Those same videos provide all of the contact information, but in Dr Patterson's case (providing the process has not changed since December 2024) it was a very simple step by step beginning with this website below. However, I strongly suggest you spend many hours watching YouTube and Googling about. If you are in the same situation as many there is nobody local who can help.
https://www.covidlonghaulers.com/north-america/home

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ejrussell1 | @ejrussell1 | Jul 31 9:03am
In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)
Profile picture for lkoch @lkoch

Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason why I ask is because I just started going to an acupuncturist/Chinese herbalist after exhausting all my other options and everything she has tried has made my symptoms a million times worse. She keeps on saying we are taking it very slow and that I am doing great. But I don’t feel like I am. She also likes to look at my tough for clues I guess. I know not everyone responds the same. Would like your input. Thank you.

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Around 50 ish symptoms, Nuero logical issues. I did not do acupuncture. Diet modification and herbs and essential oils. Rotating quantities and types in 7 week intervals. I’m in the 7th month of the regimen and believe I have recovered to 80% so far. Coming from not even knowing my own name 🤯 and relearning how to talk. Worth a phone call.

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annlandi | @annlandi | Jul 31 9:26am
In reply to @lkoch "Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason..." + (show)
Profile picture for lkoch @lkoch

Just curious what your symptoms were and how the acupuncture and Chinese herbs helped? The reason why I ask is because I just started going to an acupuncturist/Chinese herbalist after exhausting all my other options and everything she has tried has made my symptoms a million times worse. She keeps on saying we are taking it very slow and that I am doing great. But I don’t feel like I am. She also likes to look at my tough for clues I guess. I know not everyone responds the same. Would like your input. Thank you.

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I have been suffering from long Covid for more than two years (worst symptom is extreme fatigue) and have been to two acupuncturists. Several sessions with needles and expensive herbal medicines and no improvement whatsoever. LC is a viral phenomenon which Chinese medicine is not equipped to treat, and a lot of these people are money-sucking quacks. I advise you give it up.

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2 replies
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lindalk | @lindalk | Jul 31 10:21am
In reply to @jsnfltn "Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had..." + (show)
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Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had stroke like symptoms but no stroke. Her symptoms are light headed, brain fog, tumors, left side body tingling, extreme tiredness, head pressure and racing heart. We have seen many doctors including neurologist with no diagnosis or treatment. They say it’s made up but they have witnessed the tumors. We believe this could be long COVID or vaccine related. We are looking for a doctor who isn’t afraid to diagnose that if that is it and treat if possible. We live in southern IN but will travel if need. Any advice?

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Good luck I had the vaccine over 3 1/2 yrs ago but actually had 2 tias small strokes, then got covid then had long covid. Been to 4 neurologists, 1 rheumatologist, er's keep sending me home and tell me to go see my pcp. 80 yrs old now, i just want the right answers

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1 reply
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bigj | @bigj | Jul 31 11:48am
In reply to @jsnfltn "Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had..." + (show)
Profile picture for jsnfltn @jsnfltn

Need guidance. My wife had 1 covid vaccine 2.5 years ago. 6 months later she had stroke like symptoms but no stroke. Her symptoms are light headed, brain fog, tumors, left side body tingling, extreme tiredness, head pressure and racing heart. We have seen many doctors including neurologist with no diagnosis or treatment. They say it’s made up but they have witnessed the tumors. We believe this could be long COVID or vaccine related. We are looking for a doctor who isn’t afraid to diagnose that if that is it and treat if possible. We live in southern IN but will travel if need. Any advice?

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Sorry to hear the same brain fog memory lost anxiety for 3 plus years just to name a few it,s like they take turns attacking different parts of my body an mind
when I go see my doc as soon as I say COVID she immediately changes the subject tells me everything checks out fine now shes telling me it must be in my head
Doctor,s like Ostriches bearing their damn heads in the sand
anyone know of good support in the san Francisco bay area ?
Ps. before Covid I was in great shape No smoking drinking good diet weight training 6 days a week memory was great
but thank God I am getting better

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1 reply
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h2998sc | @h2998sc | Aug 1 1:25pm
In reply to @arichards3 "@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC..." + (show)
Profile picture for beachbum @arichards3

@jsnfltn My short story, figuratively through every Doctor in the 2 medical organizations in Charleston, SC and to Mayo Clinic Rochester. All tests showed normal (and of course I knew better with PEM, Exercise Intolerance, Rocking, Brain Fog) and my symptoms began within 2 weeks of my first and last Moderna booster. I never gave up and turned to Doctors YouTube and Google happily discovering there are small groups of Doctors and Medical Journalists worldwide working to help people with LC. Good news is in my case all treatment is virtual working through my local GP. If you feel you've exhausted all local possibilities suggest you spend many hours on YouTube finding, listening, studying. Best wishes and don't ever give up.

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you can check out Dr Paul Anderson on utube.Amazing GENUINE doctor.His videos have really helped me get the right vitamins and things to take.Serious long covid symptoms for 5 years...but now feeling so much better.Might take a look at his site...he's for real.

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h2998sc | @h2998sc | Aug 1 1:30pm
In reply to @lindalk "Good luck I had the vaccine over 3 1/2 yrs ago but actually had 2 tias..." + (show)
Profile picture for lindalk @lindalk

Good luck I had the vaccine over 3 1/2 yrs ago but actually had 2 tias small strokes, then got covid then had long covid. Been to 4 neurologists, 1 rheumatologist, er's keep sending me home and tell me to go see my pcp. 80 yrs old now, i just want the right answers

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Sorry to hear this.I've had it 5 years.Still have some strong episodes of being 'sick".They don't last now for long.I'm generally now feeling pretty well.Taking particular vitamins targeting my cells and the rebuilding of my immune system cells.I'm 72 this year.I feel for ya...Dr Paul Anderson can help you...he's on youtube.God Bless.

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