Looking Back - What Were Your Early Warning Signs of Parkinson's?

Thanks for reading sbout me and my dad
Lets chat again

You are right, @dodeebug, it is worth a try! I appreciate your response.

Slowed motor skills, constipation, shuffling when I walked, right wrist twisted sporadically

Keep fighting the fight! The doc thinks it is Parkinson’s plus syndrome oh well that’s why the meds aren’t working..

I am very sorry to hear this. Definitely don't give up or in. CL does treat some of the symptoms of PPS, but is not always effective, even in some PD patients like my husband. There are different medications that can be used depending on your symptoms with Parkinsons Plus. You need to find your right cocktail so to speak. Exercise is necessary as well. It took me since last October to figure out what worked for my husband. Don't get discouraged! Figure out what works best for you.

Well hello all I can say is that like any body part that aches and you use a muscle rub on it, it seems to just feel better. No a cure but sure does help me get to sleep.
I also have spinal Stenosis which at times goes from my spine down the back of my legs and I will rub bio freez on them. Just feels good.
Just try it.

I have had a very stiff left leg for at least 5 years before my recent diagnosis. What have you done to alleviate your leg stiffness?

My meds C/L has helped with the stiffness and I also attended Big and Loud physical therapy which helped give me exercises to maintain stretching and movement.

My husband has PD and we were told by the neurologist that C.Levadopa will help the tremors but not balance/mobility issues. For that he has to go to PT and work on daily mobility exercises.

My husband's early signs were major depression/anxiety issues for years before and i was noticing about 4 years ago he was not swinging his arms when he walked and had a slight shuffle walk and his handwriting was getting small and cramped. He was experiencing some short term memory issues and some acting out dreams. He had OH but that was attributed to his heart issues. We went to a neurologist but when he heard he did not have symptoms of PD (he did not share anything and would not was not asked to talk to doc to share what i was seeing- he never shares anything well with docs and was in denial cause his mom had PD and he did not want to hear it. Go forward a year, very small tremors in hands, constipation issues, some dizziness on standing and PCP referred him to neuro again. Saw a different doctor. This time was told he did not have enough definitive symptoms but could be on the verge. Offered to start Levadopa- he turned it down - all he heard was that he did not have it- more denial. Another year, several falls - like at least once a week (broke hip on one- needed total replacement. And fell flight of stairs twice) more hand tremors, he finally realized he needed help and back to neurologist. This time diagnosed with PD. Unfortunately i feel he is escalating fast in just a few months- tremors, dyskinesia with major leg spasms, can barely walk even with a rollator walker, more memory issues, slurred speech, confused easily, hallucinations, lots of constipation, poor sleep but also very fatigued, can't write anything and mobility getting so bad because he falls frequently and with bad knees he struggles to get up- i can not lift him. i think we now need a wheelchair. I so wish he had not been in denial for so long as we might have been able to slow things down with meds and exercise.
My recommendation is do your research- there are lists of PD symptoms, including early ones that are non-mobility ones. Start exercise daily- that is good for anyone, PD or not. Journal any symptoms to be able to share concerns with Dr and self advocate - i felt the 1st Dr we went to should have asked me what i was seeing and on the day of the visit he was actively hiding his visible symptoms, so in a short 10 min visit declared him okay. If you feel you are having early signs, do not let it go, seek another opnion if needed.