Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@kiltipepper

I’m not sure if I’m posting in the correct way…but I do need help. I’ve had PVC’s for about 15 years. I’ve had all the tests, stress, echo, ultrasounds, CT. Calcium levels at zero. My primary and cardiologist both tell me the PVC’s are benign. They are so troublesome to me. They are definitely impacting my mental health. My anxiety goes through the roof as soon as I feel them. A few years ago I asked my GI if my GERD could trigger the PVC’s and she said no. Now I’m reading that eating can trigger them. I see my cardiologist 1-13-25 and it can’t come soon enough. Thanks for listening I know I’m all over the place but it’s one of those evenings! Be well all.

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@kiltipepper
We can pass on to you our experience in hope that helps you. I see vickif5 has already answered you with good information.

One thing I have found over my 77 years is not all doctors know the impact of mental health over physical health. Some individuals with PVCs do not have strong feelings from them and others it is a real problem.

If you suffer from GERD and is affecting your mental health the extra stress can affect your PVCs. My EP and HF told me this not my opinion. Finding ways to lower your stress and anxiety is important with PVCs that affect your mental health.

I had bad PVCs in right ventrical that my EP did a ablation. It fixed it and has not return many years later. However my LV PVCs got really bad. I asked about (EP) about another ablation but wanted to try medication first. The medication I was put on reduced my PVCs about 75%. And of course my stress level went down and I think both like both my specialst has said affect eath other.

Do you see a cardiologist or electrophsiologist (spell). If you can see a EP I would sure recommend it. My EP also put me on magnesium. But you should check with your doctors and not assume you should take because I do. But magnesium has been shown to help with PVCs and asked your cardiologist about it.

Also do not stress out on your posts. We all started where you are and it is a site to express your feelings and get feedback from others with similiar expereiences.

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@jc76

@kiltipepper
We can pass on to you our experience in hope that helps you. I see vickif5 has already answered you with good information.

One thing I have found over my 77 years is not all doctors know the impact of mental health over physical health. Some individuals with PVCs do not have strong feelings from them and others it is a real problem.

If you suffer from GERD and is affecting your mental health the extra stress can affect your PVCs. My EP and HF told me this not my opinion. Finding ways to lower your stress and anxiety is important with PVCs that affect your mental health.

I had bad PVCs in right ventrical that my EP did a ablation. It fixed it and has not return many years later. However my LV PVCs got really bad. I asked about (EP) about another ablation but wanted to try medication first. The medication I was put on reduced my PVCs about 75%. And of course my stress level went down and I think both like both my specialst has said affect eath other.

Do you see a cardiologist or electrophsiologist (spell). If you can see a EP I would sure recommend it. My EP also put me on magnesium. But you should check with your doctors and not assume you should take because I do. But magnesium has been shown to help with PVCs and asked your cardiologist about it.

Also do not stress out on your posts. We all started where you are and it is a site to express your feelings and get feedback from others with similiar expereiences.

Jump to this post

Thank you so much JC. I do have a cardiologist and this one I trust. I've never heard of an Ep but will ask my Cardiologist what he thinks. I'm flying through all the posts and am unfortunately happy that I am not alone. I searched for a long time to find others that are in the same predicament. My PVC's have been so bad lately that I've resorted to taking a half of Xanax at night so I can sleep. I wake and feel so much better but then feel the anxiety build as I'm just waiting to feel it start again. I feel like I'm living on pins and needles. I'm also going to ask my doctor about possibly an anti depressant. I have been on them in the past while I watched my da die from Alzheimers. That did help bring stress down. Again thank you for reaching out to me even while you too, are dealing with what life throws at you. Be well, JC and again I am grateful for you.

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@vickilf5

Just because they are benign doesn’t mean it’s not impacting your quality of life. Some people never feel them or aren’t bothered by them others are highly symptomatic. I too was highly symptomatic. I tried different meds until I found one that worked well for me. Sometimes it’s trial and error. After about a year I developed side effects from the meds and in consultation with my EP opted for an ablation. I’ve now gone from 10k a day to under 100. Feeling great. If you’re miserable - push back and ask for treatment. You don’t have to suffer.

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Thanks for reaching out Vicki. I am determined this time to push back. Don't get me wrong, my doctors all have been very kind and understanding but that doesn't help at 6 at night when they suddenly flare and you feel paralyzed by fear. I'm going on the 13 of Jan and I'm going to have everything written down. All that I've learned and read and felt. I'm not going to take reassurance from them...well I will, but I want to know more about magnesium and ablation and other meds that may be better for me. I cannot walk around all day just waiting for them to jump out and send me reeling. Again, thank you for responding. I am so happy I found you all.

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@kiltipepper

Thanks for reaching out Vicki. I am determined this time to push back. Don't get me wrong, my doctors all have been very kind and understanding but that doesn't help at 6 at night when they suddenly flare and you feel paralyzed by fear. I'm going on the 13 of Jan and I'm going to have everything written down. All that I've learned and read and felt. I'm not going to take reassurance from them...well I will, but I want to know more about magnesium and ablation and other meds that may be better for me. I cannot walk around all day just waiting for them to jump out and send me reeling. Again, thank you for responding. I am so happy I found you all.

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An EP (electrophysiologist) is a cardiologist that specializes in heart rhythm issues. Pacemakers, implantable defibrillators, ablations etc. Your general cardiologist can always ask for a consult if they don’t have all the answers. Here’s a nice summary with some hopefully helpful tips. https://www.mayoclinic.org/diseases-conditions/premature-ventricular-contractions/symptoms-causes/syc-20376757 - try not to lose sleep over this (easier said than done, I know) but if your cardiologist has assured you that the rhythm is not harmful - focus on symptom management. Anxiety and stress in general can exacerbate the condition and then it becomes a vicious loop. It took 4 different medication trials before I found one that was right for me. There is no one size fits all. Good luck and keep us posted.

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@kiltipepper

Thank you so much JC. I do have a cardiologist and this one I trust. I've never heard of an Ep but will ask my Cardiologist what he thinks. I'm flying through all the posts and am unfortunately happy that I am not alone. I searched for a long time to find others that are in the same predicament. My PVC's have been so bad lately that I've resorted to taking a half of Xanax at night so I can sleep. I wake and feel so much better but then feel the anxiety build as I'm just waiting to feel it start again. I feel like I'm living on pins and needles. I'm also going to ask my doctor about possibly an anti depressant. I have been on them in the past while I watched my da die from Alzheimers. That did help bring stress down. Again thank you for reaching out to me even while you too, are dealing with what life throws at you. Be well, JC and again I am grateful for you.

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I just tried the xanax also. It did help. I have had PVC's since March 2024. It seems once they start they are very hard to stop. I have the KardiaMobile card and check often. I had a heart attack in 2006 and have been told I have no damage to my heart muscle. Over the years I have had stents put in (4 at the time of the heart attack and 2 over the years) I am 67 and very active around the house. Plant large shrubs 10 at a time, break out concrete patio's and walkways, yard work, washing waxing cars. I never sit down, but the PVC's are driving me crazy. The test showed me at 24%, that's 24,000/day. Now i have them at every heart beat, I believe its called Bigeminy. They gave me a couple of medicines to try and if they don't work they will do an Ablation. It definitly has a lot to do with the slightest amount of increased adrenaline. Even just a thought, conversation, TV show, eating, physical activity can trigger them.

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@jeffjaguar4

I just tried the xanax also. It did help. I have had PVC's since March 2024. It seems once they start they are very hard to stop. I have the KardiaMobile card and check often. I had a heart attack in 2006 and have been told I have no damage to my heart muscle. Over the years I have had stents put in (4 at the time of the heart attack and 2 over the years) I am 67 and very active around the house. Plant large shrubs 10 at a time, break out concrete patio's and walkways, yard work, washing waxing cars. I never sit down, but the PVC's are driving me crazy. The test showed me at 24%, that's 24,000/day. Now i have them at every heart beat, I believe its called Bigeminy. They gave me a couple of medicines to try and if they don't work they will do an Ablation. It definitly has a lot to do with the slightest amount of increased adrenaline. Even just a thought, conversation, TV show, eating, physical activity can trigger them.

Jump to this post

Dear lord...what am I griping about. I can imagine how scary that all is. I do not want these to progress but they have gotten worse over the years. I get them more often and in a row. I had a Zio heart monitor on in June and the doctor told me I'm at less than 1%. It doesn't feel like that to me. Then I start imagining if the heart monitor was accurate. I'm my own worse enemy. Because I have these thoughts/doubts I'm wondering if an anti depressant will help. I'm rooting for you Jeff!! You responding to me as you go through what you're going through shows me that I'm actually pretty lucky and need to stop being a cry baby.

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@kiltipepper

Dear lord...what am I griping about. I can imagine how scary that all is. I do not want these to progress but they have gotten worse over the years. I get them more often and in a row. I had a Zio heart monitor on in June and the doctor told me I'm at less than 1%. It doesn't feel like that to me. Then I start imagining if the heart monitor was accurate. I'm my own worse enemy. Because I have these thoughts/doubts I'm wondering if an anti depressant will help. I'm rooting for you Jeff!! You responding to me as you go through what you're going through shows me that I'm actually pretty lucky and need to stop being a cry baby.

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Yes, Buy the Kardia mobile than you can see for yourself. 18% is where you have to be for an ablation. Very easy to figure the %. The card gives you a 30 second EKG, count the total waves, ( the PVC's and normal). than divide the amount of PVC's by the total. That will give you your % at that time. A heart moniter than averages your time over 24 hours. A 1% average is normal.

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@kiltipepper

Dear lord...what am I griping about. I can imagine how scary that all is. I do not want these to progress but they have gotten worse over the years. I get them more often and in a row. I had a Zio heart monitor on in June and the doctor told me I'm at less than 1%. It doesn't feel like that to me. Then I start imagining if the heart monitor was accurate. I'm my own worse enemy. Because I have these thoughts/doubts I'm wondering if an anti depressant will help. I'm rooting for you Jeff!! You responding to me as you go through what you're going through shows me that I'm actually pretty lucky and need to stop being a cry baby.

Jump to this post

I have had PVCs for several decades now. I have gone through ablations. What helped me was my EP suggested magnesium and a heart rhythm drug. Both worked to drastically reduce my PVCs. Supplements and and prescriptions though need to come from your doctors not what mine found were best for me.

With that my mind settled down and yes still felt PVCs but were reduced to an annoyance level not mind crushing.

If you can reduce your anxiety and stress it will help (at least for me and many others) you with PVCs. My EP and HP all say stress and anxiety will cause PVCs to be worse. So yes the PVCs cause stress and anxiety and the stress and anxiety can cause more PVCs.

Talk to your doctors about doing counseling, medciations for depression and anxiety, exploring hoppies and or exercise classes. Just keep trying to find something that helps you. Be proactive and speak out. I do take a depression medication along with rympthm medications.

You are not a cry baby don't belittle yourself. Know that you are not alone just keep working, asking and even seeking new medical doctors like EPs if you don't have one.

REPLY
@jc76

I have had PVCs for several decades now. I have gone through ablations. What helped me was my EP suggested magnesium and a heart rhythm drug. Both worked to drastically reduce my PVCs. Supplements and and prescriptions though need to come from your doctors not what mine found were best for me.

With that my mind settled down and yes still felt PVCs but were reduced to an annoyance level not mind crushing.

If you can reduce your anxiety and stress it will help (at least for me and many others) you with PVCs. My EP and HP all say stress and anxiety will cause PVCs to be worse. So yes the PVCs cause stress and anxiety and the stress and anxiety can cause more PVCs.

Talk to your doctors about doing counseling, medciations for depression and anxiety, exploring hoppies and or exercise classes. Just keep trying to find something that helps you. Be proactive and speak out. I do take a depression medication along with rympthm medications.

You are not a cry baby don't belittle yourself. Know that you are not alone just keep working, asking and even seeking new medical doctors like EPs if you don't have one.

Jump to this post

Thanks Jc. Knowing that it is possible to take an anti depressant with PVC's is good info. I have been on them in the past. I think this new flare up for the last two weeks has me anxious. I will talk to my Cardio and see what he says. Thanks for being there!!

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@jeffjaguar4

I just tried the xanax also. It did help. I have had PVC's since March 2024. It seems once they start they are very hard to stop. I have the KardiaMobile card and check often. I had a heart attack in 2006 and have been told I have no damage to my heart muscle. Over the years I have had stents put in (4 at the time of the heart attack and 2 over the years) I am 67 and very active around the house. Plant large shrubs 10 at a time, break out concrete patio's and walkways, yard work, washing waxing cars. I never sit down, but the PVC's are driving me crazy. The test showed me at 24%, that's 24,000/day. Now i have them at every heart beat, I believe its called Bigeminy. They gave me a couple of medicines to try and if they don't work they will do an Ablation. It definitly has a lot to do with the slightest amount of increased adrenaline. Even just a thought, conversation, TV show, eating, physical activity can trigger them.

Jump to this post

I had bigeminy first when I was 40, for an entire year. I thought I would lose my mind. I have had PVCs all my life and worse the older I am. They can precipitate panic attacks in me. I have also nearly passed out when there is a long interval before the next beat. It is terrifying to live with, even if mostly benign. What it does to your life is anything but benign.

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