Connect
Long term medication Hydroxyurea
Hello
I was recently diagnosed with the JAK 2 mutation. My hematologist prescribed 500 mg of Hydroxyurea 2 times a day.
I just started taking it 6 days ago. So far I haven’t had any side effects, maybe stomach upset but I also have diverticulitis so it’s hard to tell.
I’m really grateful for this support group. So many of my questions have been answered by reading through the posts.
Most of all it’s nice to find others who know what’s going on, none of my family & friends understand this.
Thank you
Like
Helpful
HugInterested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Connect
By sharing our experiences, we ETrs become our own research team into this mysterious malady.
I always take HU after eating . . . what works for you, lindy25?
What's more fun than blood cancer? DIY blood cancer!
-
Like -
Helpful -
Hug
3 ReactionsI was diagnosed with ET and the JAK2 mutation almost 3 years ago and have been taking HU ever since. The only side effect I had was very brief (30 seconds), intense headaches when going quickly from sitting to standing. That subsided after about a week and since then I have had zero side effects - and my platelets dropped from 792 to right around 200. I take 500 mg 2x a day, Mondays through Thursdays, and always take it with a meal.
-
Like -
Helpful -
Hug
1 Reaction@janemc
I have just been taking it twice a day, about 10-12 hours apart, usually at 9am and 9pm, I am still having trouble getting into the habit of taking meds twice a day so sometimes I do forget at night and end up taking it much later.
It does feel like it's DIY!
-
Like -
Helpful -
Hug
1 Reaction