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Long term medication Hydroxyurea
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (94)Comment receiving replies
Interesting my doctor told me to take 2 HU caps once a day.....not twice? Seems everyone gets different instructions. Also the thought of swallowing toxic pills, I take a few spoonfuls of yogurt or a piece of cheese (my reward)
Replies to "Interesting my doctor told me to take 2 HU caps once a day.....not twice? Seems everyone..."
I think that doctors just wing it based on the response of the platelets to the HU. I started out with 500 mg of HU daily. When my platelets didn't decrease much in the first two weeks, my doc wanted to change the medication. I dug in and asked if we couldn't wait for one month to see what happened. He agreed, but increased the HU to 500mg in the morning and in the evening. The platelets dropped 10% then, and in the next month another 10%. We're hoping for another 10% this month, then platelets will be at 400. He's going to let me play around with the medication at that point. I'm a control freak and like being part of the management team.
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@1995victoria my doctor has me taking one HU a day 5 days a week. I'm with you I don't like taking a toxic pill. I also have headaches, nausea and no energy. I sleep a lot during day, which is not good. Bn taking for 3 years. My platelets are still high. I think doctor will change my meds but all have bad side effects.