Gratefully, I was able to visit Mayo Clinic in-person and participate in their Post-Covid Care Clinic's program for patients impacted by Long-Covid or Post-Covid issues. After spending a week their and moving thru a series of tests, etc., their team was able to properly diagnose what was happening with me and then I went thru their virtual program and they worked with my local PCP on a treatment plan that included the following pieces as well as working with a local professional on Cognitive Behavioral Therapy.
My main symptoms were the muscle tremors, overall chest pain, radiating nerve pain, overall CNS and ANS dysfunction (rapid heart rate, GI issues, etc.), overall fatigue, and difficulty with sleeping. For the pain management and sleep disruption, my PCP started me on a low dose (10mg) of Amitriptyline and a regimen of Low Dose Naltrexone (LDN) with the hopes of resetting my central and autonomic nervous systems - I've been increasing dosage from 1mg to 4mg presently (increasing 1mg every 3 months) and my pain is much improved, I am sleeping well again, and I've had nervous system functioning (heart rate, tremors, muscle spasms, GI issues) almost restored to normal. LDN in higher doses is given to opioid overdose patients with the hopes of resetting their CNS and helping the body to naturally produce endorphins.
I hope you find this helpful and please reach out with any questions, Steve
@sdykema Hi Steve, I'm new here and have yet to make a post to introduce myself, so I hope I'm doing the right thing in asking you these questions.
I have been experiencing internal tremors and vibration in my head, torso and legs, for 3 months now. They are preceded by Tinnitus which ramps up to intense, then the tremors start. Prior to that I had an all over very fine skin "electric current" feeling very occasionally for about 6 months. My other main symptoms are GI issues, extreme fatigue especially post activity, and intense spinal pain in the two locations where I have severe facet joint arthritis (the pain in these locations has changed in nature, frequency, and intensity quite dramatically since the tremors ramped up). I've seen a lot of mention about the use of LDN in long Covid treatment and am planning to ask my PCP about trying it and Amitriptyline. I'm in Australia and we seem to be quite a way behind in recognition and treatment of LC, I think my PCP may not be very amenable to my suggesting LC investigation for my symptoms.
So, having said all of that, would you mind telling me how long you've had LC, how long you've been taking the Amitriptyline and LDN, are you still taking taking them and the dose, and have you improved further?
I'm so hoping that my PCP will agree to prescribe these for me to try. Thank you for your time and I hope things are going well for you, G.
@2638
Thank you for sharing this. I have the same. The first 6 months after COVID my whole body shook. After 3.5 years I still have internal vibrations - worse upon waking - and when I'm tired I also have tremors in my hands. Exertion - mental or physical makes it worse.
The only thing that helps is rest, quiet or meditation.
Take care.
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@sdykema Hi Steve, I'm new here and have yet to make a post to introduce myself, so I hope I'm doing the right thing in asking you these questions.
I have been experiencing internal tremors and vibration in my head, torso and legs, for 3 months now. They are preceded by Tinnitus which ramps up to intense, then the tremors start. Prior to that I had an all over very fine skin "electric current" feeling very occasionally for about 6 months. My other main symptoms are GI issues, extreme fatigue especially post activity, and intense spinal pain in the two locations where I have severe facet joint arthritis (the pain in these locations has changed in nature, frequency, and intensity quite dramatically since the tremors ramped up). I've seen a lot of mention about the use of LDN in long Covid treatment and am planning to ask my PCP about trying it and Amitriptyline. I'm in Australia and we seem to be quite a way behind in recognition and treatment of LC, I think my PCP may not be very amenable to my suggesting LC investigation for my symptoms.
So, having said all of that, would you mind telling me how long you've had LC, how long you've been taking the Amitriptyline and LDN, are you still taking taking them and the dose, and have you improved further?
I'm so hoping that my PCP will agree to prescribe these for me to try. Thank you for your time and I hope things are going well for you, G.
@2638
Thank you for sharing this. I have the same. The first 6 months after COVID my whole body shook. After 3.5 years I still have internal vibrations - worse upon waking - and when I'm tired I also have tremors in my hands. Exertion - mental or physical makes it worse.
The only thing that helps is rest, quiet or meditation.
Take care.
Thanks so much to everyone who responded to this. Ill post back to this thread myself if im able to find any answers.