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DiscussionAnyone Found Help/Explanation for Long Covid Neurological Symptoms?
Post-COVID Recovery & COVID-19 | Last Active: 22 hours ago | Replies (184)Comment receiving replies
Replies to "@julieilic This is a grossly irresponsible, inaccurate article. The author ignores all medical research and essentially..."
@onpainsufferer
Yes I was thinking of posting a link to this wired.com story (as I did for a previous one), but it's both very lengthy and a bit suspect in its premise, as the strikingly numerous and often very angry comments by its readers on the site demonstrate, some of whom are apparently going to cancel their subscriptions.
It seems to be extolling a "mind/body" approach to LC, which to many people is redolent of calling it psychosomatic (which might not be quite fair), so it pushed a lot of buttons in a patient population for whom the medical establishment has often failed to take seriously.
It was written by a professor of theology, not somebody with any particular medical qualifications, so that seems an odd choice for a magazine with a tech-savvy and, by extension, somewhat science-savvy readership.
In fairness to the author, he does respond to a lot of the comments. Part of his premise, too, is that there is what might be called a conspiracy of sorts against the positing of a non-biochemical cause for this syndrome, which might be a bit overblown.
Some people do indeed respond well to this neuroplasiticity-based "brain-retraining", apparently, but then people seem to respond to a myriad of treatments, as perhaps befits a syndrome(s) that presents with such a wide assortment of symptoms.
I, myself, am truly at a loss as to what I would suggest for anyone. I'm just hoping that I experience a repeat of what occurred some forty years ago when I was felled by CFS/ME which lasted for two years and then just mysteriously faded away. I'm coming up on two years in about a month, and my symptoms--just chronic fatigue, thankfully--feel identical.
Crazy that more progress hadn't been made over the intervening decades, isn't it?
The mystery of it certainly persists.
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@onpainsufferer I agree that the article is substandard and irresponsible and it reinforces inaccuracies. Just about every day, I'm asked, "Are you feeling better yet? You shouldn't just lay around. Go get some exercise." And this is from friends who I expect more from. Even my PCP says things like, "You're just getting old. Maybe you should join a gym." His nurse said she'd never heard of long covid before I came in.
On a more positive note, I wanted to point out the latest news on the Health Rising website about long covid and ME/CFS research, "Major Study Validates a Long COVID Autoimmune Subset". Also, the ScienceDirect website has this article from Cell Reports Medicine ("Transfer of IgG from long COVID patients induces symptomology in mice").