Living with Prostate Cancer: Meet others & introduce yourself

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let’s start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Interested in more discussions like this? Go to the Prostate Cancer group.

Colleen, where do you find the translation tool? Thank you.

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@gregorylynn

Colleen, where do you find the translation tool? Thank you.

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View Translation will appear automatically below any Spanish comment. Read more about how it works here:
– Automatic translation Spanish and English https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/nueva-funcin-traduccin-automtica-entre-espaol-e-ingls-new-feature-automatic-translation-between-spanish-and-english/

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@gregorylynn

I return to Mayo Nov. 15th for more tests and consultations. I hope I will at least have a sense of direction afterwards.

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I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks ago. I think I’m on information overload now. I seem to go back and forth between the feeling of “this can’t be” and “I have to be realistic”. I hope you find that sense of direction you’re looking for after your follow up tests and consultations. I’m hoping for the same. Take care.

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@jhowle

I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks ago. I think I’m on information overload now. I seem to go back and forth between the feeling of “this can’t be” and “I have to be realistic”. I hope you find that sense of direction you’re looking for after your follow up tests and consultations. I’m hoping for the same. Take care.

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I appreciate your comments. I don't know about you, but the more I read the more ominous it appears. And I agree with your feelings. The first time around with prostate cancer, I did not feel bad. So I thought the same, this can't be. I guess that is what makes cancer so scary, because there may well be a day that it will be much more difficult. Please stay in touch and thank you. Hope you also find a measure of peace and comfort.

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@waynen

Hi jhowle, your PSA is the same as mine was 3 years ago. Completed Proton Beam radiation and 18 months of Antigen Deprivation Therapy (ADT). If they don't bring up ADT as part of your treatment, ask them about it. My radiation oncologist highly recommended it because of the high risk nature of the cancer. By the way, cancer free for nearly 3 years with PSA negligible. There's a light at the end of the tunnel.

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Thanks for the encouraging words. I think it will be better when some decisions can be made. I’m glad it’s going well for you. Take care.

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@drggkelley

I wish you all the best and am praying for you and everyone here. I have not yet had my biopsy. Discovered a lesion, grade 5 from imaging. Doc says it indicates aggressive. Won't know until biopsy. I am in the same boat. I have found learning as much as possible helps me and this site also is comforting. The good news is that there is a very high probability of recovery. What is your age and family history? How often did you do a PSA? What if any symptoms did you have?

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I also wish the best for you. My biopsy did confirm the cancer so will be back at Mayo next week for more testing, consultation and follow up. I’m 65, only history of metastatic prostate cancer was an uncle on mothers side (as far as I know). Did PSA every year at annual physical. Didn’t really recognize symptoms until diagnosed (just wrote them off to aging process). I hope everything goes well for you at your follow up with your doctors.

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@jhowle

Thanks for the encouraging words. I think it will be better when some decisions can be made. I’m glad it’s going well for you. Take care.

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You're right. Once you have a plan for treating it, the better you'll feel. I went through the same thing.

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Hi,
I was diagnosed with prostate cancer in June 2021 at the Mayo clinic in Jacksonville,Florida. After a bunch of tests, blood, urine, CT scan, MRI'S and Doctor visits, my surgeon told me he doesn't feel like I am not a candidate for surgery. I was diagnosed with NET cancer in November 2019 at Mayo, and they are afraid that surgery might adversely impact that cancer. I opted for gold seed and spaceOAR implants and finished my last SBRT radiation treatment two days ago on Friday the 5th. I am dealing with the side effects on a daily basis.
Chuck

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@chuck53

Hi,
I was diagnosed with prostate cancer in June 2021 at the Mayo clinic in Jacksonville,Florida. After a bunch of tests, blood, urine, CT scan, MRI'S and Doctor visits, my surgeon told me he doesn't feel like I am not a candidate for surgery. I was diagnosed with NET cancer in November 2019 at Mayo, and they are afraid that surgery might adversely impact that cancer. I opted for gold seed and spaceOAR implants and finished my last SBRT radiation treatment two days ago on Friday the 5th. I am dealing with the side effects on a daily basis.
Chuck

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Welcome, Chuck. Congrats on finishing radiation treatment. What side effects are you dealing with?

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@jhowle

I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks ago. I think I’m on information overload now. I seem to go back and forth between the feeling of “this can’t be” and “I have to be realistic”. I hope you find that sense of direction you’re looking for after your follow up tests and consultations. I’m hoping for the same. Take care.

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I was re-reading some posts and wanted to reach out and find out how your tests went. I have all my tests (I thought) done, only to find out they were for the bone structures only. I go back in December to have scans done on organs and flesh. The anxiety has subsided somewhat. But the continuing wait for the other scans is creating pressure. I do have a tentative game plan in place, IF no further cancer spots are found. My last visit was somewhat traumatic because we discussed all the things that I worried about. Including life expectancy. Time to take to heart on all the advice to be positive and set new goals. I have to chuckle…..I am about to start working harder as a retired person, than I ever did as a business owner. Ironic!

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@gregorylynn

I was re-reading some posts and wanted to reach out and find out how your tests went. I have all my tests (I thought) done, only to find out they were for the bone structures only. I go back in December to have scans done on organs and flesh. The anxiety has subsided somewhat. But the continuing wait for the other scans is creating pressure. I do have a tentative game plan in place, IF no further cancer spots are found. My last visit was somewhat traumatic because we discussed all the things that I worried about. Including life expectancy. Time to take to heart on all the advice to be positive and set new goals. I have to chuckle…..I am about to start working harder as a retired person, than I ever did as a business owner. Ironic!

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Hi, good to hear from you again. I understand about the pressure created by waiting. I think all of my tests are done now and I’ve been scheduled for a radical prostatectomy in January. I also had a very difficult and frank discussion about my many concerns. Although didn’t like some of the answers I was glad to have them so I can begin to move forward. Although some of my priorities have changed, I’m working on being positive and moving ahead. I wish you the best with your tests in December and everything your future holds. Take care my friend.

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Good to hear from you my friends. December, 18th will be my one year Prostate Cancer diagnose anniversary. I've adapted to hearing/saying "Can never be cured, but can be treated." My PSA Angst has shifted from a "fear/anxiety" automatic response to a more healthy "good-to-know" information is knowledge response. What's surprised me the most is how human kindness factors into my treatment plan. Family, friends, healthcare staff, even the VA have been extremely supportive and kind. Thankful for your update. Enjoy today.

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