Living with Prostate Cancer: Meet others & introduce yourself

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let’s start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

@cmartin65

Dave, what type of genomic test did your Dr order? Polaris, Oncotype,etc?

Jump to this post

Mine was Oncotype. It did show that I was above the median figures for the genomic testing, and having had my prostate out on Feb. 28th they found that the tumor had advanced from a Gleason 3 + 4 to a Gleason 4+3 so I guess they were right…………

REPLY
@ronan2011

Mine was Oncotype. It did show that I was above the median figures for the genomic testing, and having had my prostate out on Feb. 28th they found that the tumor had advanced from a Gleason 3 + 4 to a Gleason 4+3 so I guess they were right…………

Jump to this post

Thank you for your reply

REPLY
@ronan2011

Mine was Oncotype. It did show that I was above the median figures for the genomic testing, and having had my prostate out on Feb. 28th they found that the tumor had advanced from a Gleason 3 + 4 to a Gleason 4+3 so I guess they were right…………

Jump to this post

They were right on for me..

REPLY
@cupman

Basically Pro and Cons, I am candidate. I continue to read and still question which is better, Surgery or HIFU? However, as of this week I committed to HIFU, and I am now researching to find the most experienced HIFU doctor in the country. Call it a second and third opinion from docs that provide this treatment. Thank you for the article. I will continue to share any new information

Jump to this post

If you are looking at HIFU I would also look at FLA Focal Laser Ablation less invasive the HiFU. See Dr Sperling in Florida

REPLY

Hello. After several psa readings that jumped from 5.6 to 9.6 to 6.9 and finally to 8.7, I had an mri and finally a biopsy on 12/26/2019, that confirmed I had cancer. Confined to the prostrate with a Gleason score (3+4) 7. Had a Zoladex shot (10.8) January 7, 20 radiation treatments in March, followed by a Zoladex 3.6 shot on 4-1. It’s been 2 weeks since the end of radiation. The worst side effects have been from the Zoladex shots. Tiredness, weakness, being the most troublesome. Will have a follow up psa at the end of June. Am very grateful for the care received from the Mayo Clinic (ROCHESTER and Northfield -radiation-). Looking forward to positive results in June.

REPLY
@bodeygolfer

Hello. After several psa readings that jumped from 5.6 to 9.6 to 6.9 and finally to 8.7, I had an mri and finally a biopsy on 12/26/2019, that confirmed I had cancer. Confined to the prostrate with a Gleason score (3+4) 7. Had a Zoladex shot (10.8) January 7, 20 radiation treatments in March, followed by a Zoladex 3.6 shot on 4-1. It’s been 2 weeks since the end of radiation. The worst side effects have been from the Zoladex shots. Tiredness, weakness, being the most troublesome. Will have a follow up psa at the end of June. Am very grateful for the care received from the Mayo Clinic (ROCHESTER and Northfield -radiation-). Looking forward to positive results in June.

Jump to this post

@bodeygolfer what do you do to manage the tiredness and weakness side effect?

REPLY

I’m learning that I can’t go as hard and long as I used to. Even if I feel ok, I’ve learned to rest and take it easy. When tiredness comes, I just sit down, nap if needed, until it passes. Hoping the strength and stamina return soon. My final Zoladex shot should be through my system in 2 days. Looking forward to getting back to “normal “. Very grateful for the excellent care giving by Mayo!

REPLY
@bodeygolfer

I’m learning that I can’t go as hard and long as I used to. Even if I feel ok, I’ve learned to rest and take it easy. When tiredness comes, I just sit down, nap if needed, until it passes. Hoping the strength and stamina return soon. My final Zoladex shot should be through my system in 2 days. Looking forward to getting back to “normal “. Very grateful for the excellent care giving by Mayo!

Jump to this post

Sorry golfer had my treatment 5 yrs ago and am still suffering fatigue I had 50 RT treatments and 8 injections of female hormones, Cancer gone and PSA is ok. Advice was "keep exercising". Coincident with all this I have balance problems, MRI indicates that the supply to the balancing centre of my brain is restricted. Anybody experienced this ???

REPLY
@doncampbell

Sorry golfer had my treatment 5 yrs ago and am still suffering fatigue I had 50 RT treatments and 8 injections of female hormones, Cancer gone and PSA is ok. Advice was "keep exercising". Coincident with all this I have balance problems, MRI indicates that the supply to the balancing centre of my brain is restricted. Anybody experienced this ???

Jump to this post

I am experiencing balance and dizziness problems. Sometimes the dizziness is so bad I can't drive. I had a Radical Prostatectomy 13 years ago. Other than the dizziness, everything else is fine.

REPLY
@doncampbell

Sorry golfer had my treatment 5 yrs ago and am still suffering fatigue I had 50 RT treatments and 8 injections of female hormones, Cancer gone and PSA is ok. Advice was "keep exercising". Coincident with all this I have balance problems, MRI indicates that the supply to the balancing centre of my brain is restricted. Anybody experienced this ???

Jump to this post

doncampbell Thanks for the reply! Hope your fatigue eventually subsides. Take care.

REPLY
@tmclain

I am experiencing balance and dizziness problems. Sometimes the dizziness is so bad I can't drive. I had a Radical Prostatectomy 13 years ago. Other than the dizziness, everything else is fine.

Jump to this post

tmclain… appreciate the reply. No dizziness and balance issues to date. Glad all else is going well for you.

REPLY

I am not steady on my feet ..weak knee,s last injection Feb final one august 2020

REPLY

Since you're talking about balance issues and fatigue, I'd like to direct you to a few discussions in other groups on Mayo Clinic Connect that you may be interested in reviewing or participating in:

– What exactly is proprioception? Anyone with experiences? https://connect.mayoclinic.org/discussion/propriociption/
– Having trouble keeping your balance? https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/
– Fatigue and cancer treatment https://connect.mayoclinic.org/discussion/fatigue-in-cancer-treatment/

REPLY

Want to go by Michael "T" for this group. Diagnosed with Gleason 7 Bi-lateral (unfavorable intermediate) cancer on 4-6-2020 via biopsy (TRUS procedure). PSA went from 6.4 to 8.5 roughly over the last year. I'm healthy and 62 (just retired – incredible timing huh). Waiting to find out if constrained to the prostate, but MRI imaging a year ago indicated that it was. Will have another on June 1. Although leaning in direction of surgery (RARP), not totally their yet. I like the probability of being cured with a good chance of having my original life span back! However, new forms of radiation therapy (IMRT, proton SBRT) may still be an option for me. Undecided. It seems to me that the post-op biopsy of the prostate and surrounding tissue is a huge plus for being cured with surgery. This of course not possible with radiation. Looking for any feedback, or key points learned from personal experience or research which could help me with this decision. Thanks a bunch!

REPLY
@mahowey5835

Want to go by Michael "T" for this group. Diagnosed with Gleason 7 Bi-lateral (unfavorable intermediate) cancer on 4-6-2020 via biopsy (TRUS procedure). PSA went from 6.4 to 8.5 roughly over the last year. I'm healthy and 62 (just retired – incredible timing huh). Waiting to find out if constrained to the prostate, but MRI imaging a year ago indicated that it was. Will have another on June 1. Although leaning in direction of surgery (RARP), not totally their yet. I like the probability of being cured with a good chance of having my original life span back! However, new forms of radiation therapy (IMRT, proton SBRT) may still be an option for me. Undecided. It seems to me that the post-op biopsy of the prostate and surrounding tissue is a huge plus for being cured with surgery. This of course not possible with radiation. Looking for any feedback, or key points learned from personal experience or research which could help me with this decision. Thanks a bunch!

Jump to this post

Michael T, Strongly rec: 2nd opinion and evaluation radiation and surgery. Our med backgrounds very similar,except I am 77 and that may be tie-brkr. Mayo's radiation was 20 sessions + hormone for Gleason of 8/cancer all in prostate. Terrific program, manageable side effects; rad. 4/19; wonderful staff/support. Rec/Dr. Pisansky and staff!
All the best,
Mike C.

REPLY
Please login or register to post a reply.