Living with Prostate Cancer: Meet others & introduce yourself
Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.
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Let’s start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?
Interested in more discussions like this? Go to the Prostate Cancer group.
Very similar to my treatment. You are right on the money about a 2nd opinion and going to a world class facility. I went to Moffitt Cancer Center in Tampa. Great place and staff.
Marko, I agree with Bob that Proton radiation therapy may be your best option, it was actually my second choice after HIFU. I searched for the closest Proton center to Maine and it is in Boston at Proton Therapy Center Massachusetts General Hospital. I would recommend you get another opinion there. Here is a link for other proton centers in the USA. http://proton-therapy-centers.com/
I just checked Dana-Farber in Boston and they do have a clinical study on HIFU See: https://www.dana-farber.org/clinical-trials2/detail/13-184/ there are certain criteria you have to meet to join the study. Let everyone know how your appointment goes with them.
Dave, what type of genomic test did your Dr order? Polaris, Oncotype,etc?
That’s a very good direction to go
Mine was Oncotype. It did show that I was above the median figures for the genomic testing, and having had my prostate out on Feb. 28th they found that the tumor had advanced from a Gleason 3 + 4 to a Gleason 4+3 so I guess they were right…………
Thank you for your reply
They were right on for me..
If you are looking at HIFU I would also look at FLA Focal Laser Ablation less invasive the HiFU. See Dr Sperling in Florida
Hello. After several psa readings that jumped from 5.6 to 9.6 to 6.9 and finally to 8.7, I had an mri and finally a biopsy on 12/26/2019, that confirmed I had cancer. Confined to the prostrate with a Gleason score (3+4) 7. Had a Zoladex shot (10.8) January 7, 20 radiation treatments in March, followed by a Zoladex 3.6 shot on 4-1. It’s been 2 weeks since the end of radiation. The worst side effects have been from the Zoladex shots. Tiredness, weakness, being the most troublesome. Will have a follow up psa at the end of June. Am very grateful for the care received from the Mayo Clinic (ROCHESTER and Northfield -radiation-). Looking forward to positive results in June.
@bodeygolfer what do you do to manage the tiredness and weakness side effect?
I’m learning that I can’t go as hard and long as I used to. Even if I feel ok, I’ve learned to rest and take it easy. When tiredness comes, I just sit down, nap if needed, until it passes. Hoping the strength and stamina return soon. My final Zoladex shot should be through my system in 2 days. Looking forward to getting back to “normal “. Very grateful for the excellent care giving by Mayo!