Living with Parkinson's Disease - Meet others & come say hi

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for southwest @southwest

@jatonlouise
I bring along a five page list Word doc. of pharmacy, OTC supplements, allergies to drugs, current RXs, major illnesses and procedures, immunizations.

On the kind of forms you refer to, which are absurdly set up so that in real life they cannot be filled out completely or legibly, I write "see attached" for the meds and ilnesses part, and give them my long list

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@southwest I'll bet the doctors and the nurses appreciate it.

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Profile picture for meg17 @meg17

Hi I have pd..can't still bring myself to say full word..tremors mainly but not exclusively in jaw and tongue..I have also a myriad of other health issues but on the things to be grateful side is the fact I am still fully compos mentis..won't list all my other issues here or it would be like writing an epic saga..

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Hello @meg17, and welcome to the PD support group on Mayo Clinic Connect. I can certainly understand your difficulty in not wanting to "say the full word." It does take time to get used to a new diagnosis, especially one like PD.

Share, as you are comfortable, a little about your history with PD. For example, how long ago were you diagnosed? What treatments, such as medications, physical or speech therapy, have you tried?

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My name is Boat4557 , I was diagnosed with PD about 1 year ago.

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Profile picture for boatman12 @boatman12

My name is Boat4557 , I was diagnosed with PD about 1 year ago.

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@boatman12
Hello. I was officially diagnosed 3 weeks ago. I have been dealing with various doctors and symptoms since last summer. I'm in early stages and my symptoms are manageable right now. lately its stiffness and soreness. need to try adding stretching exercises. Hope all is well

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Profile picture for boatman12 @boatman12

My name is Boat4557 , I was diagnosed with PD about 1 year ago.

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Hello @boatman12

How are you doing since your diagnosis? Have you begun any PD treatments such as physical therapy, exercise, or medications?

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Profile picture for emmit @emmit

@boatman12
Hello. I was officially diagnosed 3 weeks ago. I have been dealing with various doctors and symptoms since last summer. I'm in early stages and my symptoms are manageable right now. lately its stiffness and soreness. need to try adding stretching exercises. Hope all is well

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Hello @emmit

How are you managing the symptoms of stiffness and soreness? Have you begun physical therapy for PD or any other medications?

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