1. < Parkinson's Disease
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Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 1 day ago
In reply to @pbarr "My name is Tom Barry Live in lincoln nebraska My wife was diagnosed with parkinsons about..." + (show)
@pbarr

My name is Tom Barry
Live in lincoln nebraska
My wife was diagnosed with parkinsons about 2 months ago she has already dealt with glomus tumors , gastroperesis, asthma, and diabetes. I know this sound out there but it's true. She went from 176 lbs down to 120 lbs and all the doctors that we have seen tell us I wish we could do something for you mrs Barry. And on top of all this because she can hardly eat her teeth are going bad ! I know this is hard to believe but it the truth. We have been married for 56 years this July. I don't know how she can keep going. I couldn’t. Sorry about all the texting just needed to vent. Everyone have a good evening!
Thomas Barry Jr
Lincoln Ne 68504

Jump to this post

@pbarr Hello Tom and welcome to Mayo Connect. I am sorry to hear of all of the health problems your wife has had. The PD diagnosis must be a difficult one for her in addition to the other health issues.

What symptoms led to her PD diagnosis? Is she having problems walking or does she have tremors? Has she begun any PD medications?

REPLY
2 replies
jtes | @jtes | 19 hours ago
In reply to @pbarr "My name is Tom Barry Live in lincoln nebraska My wife was diagnosed with parkinsons about..." + (show)
@pbarr

My name is Tom Barry
Live in lincoln nebraska
My wife was diagnosed with parkinsons about 2 months ago she has already dealt with glomus tumors , gastroperesis, asthma, and diabetes. I know this sound out there but it's true. She went from 176 lbs down to 120 lbs and all the doctors that we have seen tell us I wish we could do something for you mrs Barry. And on top of all this because she can hardly eat her teeth are going bad ! I know this is hard to believe but it the truth. We have been married for 56 years this July. I don't know how she can keep going. I couldn’t. Sorry about all the texting just needed to vent. Everyone have a good evening!
Thomas Barry Jr
Lincoln Ne 68504

Jump to this post

My husband was diagnosed several years ago. Parkinsons of the Rockies has been very helpful to him with regular Parkinsons Boxing, stretching classes. There are people there in all stages of the disease and aside from the exercise they and their caregivers help and connect with each other. Nebraska also has an association, Parkinsonsnebraska.org. Check it out. I’m so sorry that your wife and you are going through this. Best of luck.

REPLY
pbarr | @pbarr | 15 hours ago
In reply to @hopeful33250 "@pbarr Hello Tom and welcome to Mayo Connect. I am sorry to hear of all of..." + (show)
@hopeful33250

@pbarr Hello Tom and welcome to Mayo Connect. I am sorry to hear of all of the health problems your wife has had. The PD diagnosis must be a difficult one for her in addition to the other health issues.

What symptoms led to her PD diagnosis? Is she having problems walking or does she have tremors? Has she begun any PD medications?

Jump to this post

The meds she tried didn't help made her other conditions act up worse she thinks.

REPLY
1 reply
pbarr | @pbarr | 15 hours ago
In reply to @hopeful33250 "@pbarr Hello Tom and welcome to Mayo Connect. I am sorry to hear of all of..." + (show)
@hopeful33250

@pbarr Hello Tom and welcome to Mayo Connect. I am sorry to hear of all of the health problems your wife has had. The PD diagnosis must be a difficult one for her in addition to the other health issues.

What symptoms led to her PD diagnosis? Is she having problems walking or does she have tremors? Has she begun any PD medications?

Jump to this post

Trouble walking and use of her hands

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 14 hours ago
In reply to @pbarr "The meds she tried didn't help made her other conditions act up worse she thinks." + (show)
@pbarr

The meds she tried didn't help made her other conditions act up worse she thinks.

Jump to this post

@pbarrier1

I'm wondering if she has tried other meds to help with Parkinson's. Have you contacted her doctor to see if another medication might be tried?

If her worst symptoms are walking and use of her hands. She might be helped by working with a physical therapist (for the walking problem) and an occupational therapist who can help with the use of the hands.

Would she be willing to see a physical therapist?

REPLY
1 reply
pbarr | @pbarr | 11 hours ago
In reply to @hopeful33250 "@pbarrier1 I'm wondering if she has tried other meds to help with Parkinson's. Have you contacted..." + (show)
@hopeful33250

@pbarrier1

I'm wondering if she has tried other meds to help with Parkinson's. Have you contacted her doctor to see if another medication might be tried?

If her worst symptoms are walking and use of her hands. She might be helped by working with a physical therapist (for the walking problem) and an occupational therapist who can help with the use of the hands.

Would she be willing to see a physical therapist?

Jump to this post

After about 2 .months finally talked her in to ding therapy. Started about 2 was ago. She is talking about trying some patches costly but if it helps cost would not be a factor. Wondered if you have heard of anyone using a patch for pd?

REPLY
1 reply
sillyblone | @sillyblone | 10 hours ago
In reply to @54maerose73 "Hello. My name is Rose. I was diagnosed with Parkinson in 2018. I have had good..." + (show)
@54maerose73

Hello. My name is Rose. I was diagnosed with Parkinson in 2018. I have had good and bad days. I would love to learn more about Parkinson and see how others are dealing with Parkinson Disease as well. Thank you. Rose

Jump to this post

Hello Rose
Hope you feel comfortable on this site.
Everyone I have been sharing with are very caring individuals. If you are not sure about something .. just ask.
Sillyblone

REPLY
sillyblone | @sillyblone | 10 hours ago
In reply to @pbarr "My name is Tom Barry Live in lincoln nebraska My wife was diagnosed with parkinsons about..." + (show)
@pbarr

My name is Tom Barry
Live in lincoln nebraska
My wife was diagnosed with parkinsons about 2 months ago she has already dealt with glomus tumors , gastroperesis, asthma, and diabetes. I know this sound out there but it's true. She went from 176 lbs down to 120 lbs and all the doctors that we have seen tell us I wish we could do something for you mrs Barry. And on top of all this because she can hardly eat her teeth are going bad ! I know this is hard to believe but it the truth. We have been married for 56 years this July. I don't know how she can keep going. I couldn’t. Sorry about all the texting just needed to vent. Everyone have a good evening!
Thomas Barry Jr
Lincoln Ne 68504

Jump to this post

Hello Tom,
Welcome to the group.
Sillyblone

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 5 hours ago
In reply to @pbarr "After about 2 .months finally talked her in to ding therapy. Started about 2 was ago...." + (show)
@pbarr

After about 2 .months finally talked her in to ding therapy. Started about 2 was ago. She is talking about trying some patches costly but if it helps cost would not be a factor. Wondered if you have heard of anyone using a patch for pd?

Jump to this post

@pbarr

We have had several members talk about using the patch. Here is a link where you can see the discussions on this topic,
https://connect.mayoclinic.org/group/parkinsons-disease/?search=patch#discussion-listview
You mentioned in your post, "ding therapy." I'm not sure I understand what that is. Could you describe it for me?

REPLY
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